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Oh Canada!


theceliachusband

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Felidae Enthusiast
Another Canadian, from Vancouver. Nice to see there's a few of us here :)

I've been haunting the local Choices recently but found that Famous Foods on Kingsway has slightly better prices for most products plus they have a seriously WIDE range of flours!!!

I have positive dietary reaction but negative bloodwork, my GP wont go to a referral for the biopsy without the positive bloodwork :( problem is I had already reduced my gluten intake for about a week or so b4 the blood test (I told him, he said take it that day anyway) and had been relatively gluten lite, by accident really, for the past couple of years.

I'm going to go the Enterolab route at this point and then take the results to my GP to discuss...any other Canucks have a similar experience with their GP?

My blood work tested negative both times I was tested. So, I was not sent for an endo test. I was so fed up and very sick for such a long time, that going gluten-free was a last choice for me and I had no expectations since nothing else had worked. I had a positive dietary response within the first month of being gluten-free. I saw my GP at that point and she was so happy with the complete change in my health that she said to not eat gluten again. As far as she was concerned I had gluten-intolerance and possibly celiac disease but did not think it would be worth the health risks to eat gluten again just for the endo test.


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NorthernElf Enthusiast

Northern BC here (where it's a balmy -36C this am)...

I had a similar experience with my GP - I'm a pretty fit & otherwise healthy person & I think she just decided I couldn't have celiacs...but I call myself one. I had a negative blood test too, a negative H Pylori test and, while she did send me for a scope, she sent me for one to look at damage from reflux. I was very upset when I asked the guy who did the scope if there was gluten damage and he said he hadn't been looking for any, only reflux damage. :angry: And, as is common, I was limiting my gluten when I had the blood test and had to wait several months for the scope, during which I eliminated it altogether since I didn't know any better.

I fit the profile though - I have had "IBS" most of my life and some joint pain issues with no cause. I had a wicked virus that left me unable to eat for over a week and took me a year to totally recover from. It was during this year that I started eliminating gluten - due to headaches, stomaches, joint pain, fatigue, reflux, etc. It all fits the celiac diagnosis route - a big stress and the body's inability to cope with gluten. Now that I am gluten-free I feel much better, less pain, less stomach issues and little reflux (though I take Zantac). Unfortunately, I am also way more sensitive to gluten.

maile Newbie

Thank you both for the feed back! I'm finding this can be a very confusing condition so it's nice to hear from others :)

  • 2 months later...
Mrs-Mama Newbie

Another Canadian here...it's actually my hubby that's been diagnosed with Celiac but I'm the shopper and cook, so he gets me to do all the research and then report back to him.

I'm very happy to have found this forum. It's been a great help to us.

Mrs_Mama

  • 4 weeks later...
Nadia2009 Enthusiast

I am from Toronto :)

If there are others from here, would like to know where are the places to shop for gluten free foods.

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    • Scott Adams
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    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
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