Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarrhea Medicine


jknnej

Recommended Posts

jknnej Collaborator

My doc just prescribed this stuff; I'm at work and don't have it with me but it's something long like Chloreo......?? Anyhow, it comes in little packets that you dissolve into water and drink. Anyone take this? Does it help? Are there side effects? Doc didn't explain anything, just gave it to me. But I won't take any medicine until I fully research it.

Also, he gave me the anti-depressant Elavel for my IBS..haven't taken that yet, either...any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

I think your talking about Questran, which has a long name that starts with what you were trying to spell. I took this medicine for awhile, but it didn't help me. I hurt and cramped alot more after taking it. I have starting taking another medicine that is similar to that, but it is in pill form, and seems to be working on the diarreha. I still have horrible gas and bloating! The name of the medicine that I am taking now is Colestid. If the powder doesn't help, you might mention this to your doctor. Both of these medicines are actually used to reduce Cholestral. I have been diagnosed with Microscopic Colitis, also, so I have opted to try this, instead of the steriods. The doctors also said that I had Ibs, for 30 years, before the diagnosis of Celiac, and now the colitis.

I also took Elavil, which I did not like at all. I gained alot of weight and I could not wake up in the mornings. I am taking Zoloft now instead. I don't really know, if it helps or not. I have thought about stopping it.

Good Luck! :D

SherriRoy Newbie

Ah yes...trying to control IBS. I'm sorry to say that no doctors have been able to even romotely help. I was once put on a narcautic to calm my intestines down..and all it did was take me out of my mind, and i was still sick. I just have to tell you that the side effects of those drugs can sometimes be worse than their help, but if it is something that actually makes a difference then it might be something you want to consider, as long as it is the lesser evil (if you know what i mean) As to the other thing...I run to the bathroom all the time..and as much as I've tried all the bulking agents allowed for celiacs ..so far I have found one that has sorta worked. I just started it ...so I'm still learning as I go. It is called SPR-CLNS, it is all natural and is a fiber blend. It is from a company called Vitamost in canada. The ingredients are Psyllium Husks, cellulose, pectin, pepper-mint leaf, lactobacillus acidophilus, garlic, guar gum, papya, dandelion root, red respberry leaf, magnesium stearate, elder bark, red clover leaf, ginger root, bachu leaf, burdock root, yellow dock root, rhubarb root, cinnamon bark, barberrybark, plantain leaf and gelatin. This is something that might help relax the spasaming intestines too cause if you intestines don't have to work so hard to grip what is inside them, and pull it through, then essentially the spasamings will slow and regulate. That is the theory and it makes sense to me, But I am still waiting for the full results. Anyhow, again I am just starting it, and right away I notice a difference. I can't say that it is all good, cause my body is not used to have fiber...at least not much of it..so I am slowing working my way onto a normal dosage. I noticed right away when I started with two capsules that my stomach cramped up and was very upset, but on just one ...I am much more comfortable. ideally, you should take three a morning..and this will give you your required 25-35g of fiber a day wich is really needed by celiacs. Drink a lot of water, and adjust to having something in you intestines, and it seem promising. I know that it has helped quite a few people with IBS and I know two other celiacs who are on it, that like it. Again...all natural, nothing that will cause your body to hate you later in life.

Hope this helps,

Sherri

jknnej Collaborator

I really would rather not take antidepressants if I can help it.

Where do you get this medicine you've tried? Do you have to have a prescription?

Do we really need fiber supplements if we go to the bathroom so much anyway?

MySuicidalTurtle Enthusiast

Fiber is for regulation.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,726
    • Most Online (within 30 mins)
      7,748

    Holly B
    Newest Member
    Holly B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      Hello, My mid twenties daughter is blaming my husband and I for her celiac disease.  She has not been diagnosed at all, but GOOGLE has informed her she has it.  She is going to go get tested now, but my question is, did we?  I was not the best cook while she was growing up and often made quick processed food for meals.  She is blaming us for what she ate growing up and is angry that we didn't feed her better.  I don't know how to react and all I could tell her was I was sorry.  Her older brother has Crohn's disease and he was diagnosed as a teenager.  She is also furious with us that we didn't change his diet either.  I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation.  Both sides of our family have a history of IBS, Celiac and Crohn's disease.   I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her.  I am thinking it most likely did. Thank you, Marie
    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
×
×
  • Create New...