Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's The Deal With Soy?


ATX

Recommended Posts

ATX Rookie

I have noticed from reading a few posts that many of the members of this forum are soy-free and I would like to know what might be a problem with soy products. I eat tofu almost every day--a cheap and I thought healthy way to increase protein, notably tryptophan, in a diet.

I have heard of the theory that soy may interfere with thyroid activity, but are there other reasons? If one is allergic to soy, what is the culprit in the soy bean that causes the problems? Also, what tend to be the symptoms of soy intolerance/allergy/....?

Have a great weekend.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tim-n-VA Contributor

Soy alone is not a problem due to celiac.

Some confusion comes from the fact that many brands of soy sauce have wheat.

Many diseases/conditions occur in clusters so it is not unusual for someone who has a problem with gluten to have problems with other items which could include soy.

There was at least one member in the past who insisted her medical provider told her that no celiacs should have soy but no independent verification was provided.

ATX Rookie

Hi Tim,

Well I'm assuming some people in the forum have gone off soy for reasons other than that soy products might be contaminated with wheat or gluten. Those reasons are what I am interested in knowing more about, if anyone cares to divulge.

happygirl Collaborator

There are some people (Celiacs, and non-Celiac gluten sensitive people) who have multiple food intolerances on this board.

Soy is one of the top 8 allergens.

RiceGuy Collaborator

Some people feel soy is bad, and others feel it is good. I have no doubt that the debate will rage on for a long time to come. Soy is a legume, which is one reason some need to avoid it. Perhaps the best advice I have on this is that if soy (or anything else for that mater) bothers you, then don't eat it. If you aren't sure, keep a food journal, and try with and without soy for a few weeks each and see if there are any noticeable differences in how you feel.

GFinDC Veteran

Sorry, I know this isn't a direct answer to your question about reactions, but I thought it might be interesting anyway. I avoid soy because of the thyroid effects. I don't think there is any doubt about the negative effect of soy on the thyroid. But there are other negative aspects too. For instance, did you know it is not good for rats? Here is an article describing some possible problems with soy, at least for rats. Don't feed it to your rats! Poor things!

Open Original Shared Link

"As early as 1917 researchers noted that soybeans had to be heat-treated in order for soy-fed rats to grow--presumably because soy contains a substance that inhibits digestion."

This one talks about soy impairing intestinal cell growth in infants. Basically raisies the concern that infant formulas with soy might need to be reconsidered. So I guess maybe we shouldn't feed it to babies either.

Open Original Shared Link

"Sharon Donovan show that the soy isoflavone genistein, in amounts present in commercial soy infant formulas, may inhibit intestinal cell growth in babies."

ATX Rookie

Thanks GFinDC for those links. The first article especially spells out a lot of the areas I had questions about. I suppose I will give miso or tempeh a go and see if I notice any substantial difference in energy or digestion. Alas, I have no rats to test on :(

I was fed with an infant formula and I would be interested to know what was in that stuff. I have had bad allergies all my life, not just to foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



white ridges Newbie
I have noticed from reading a few posts that many of the members of this forum are soy-free and I would like to know what might be a problem with soy products. I eat tofu almost every day--a cheap and I thought healthy way to increase protein, notably tryptophan, in a diet.

I have heard of the theory that soy may interfere with thyroid activity, but are there other reasons? If one is allergic to soy, what is the culprit in the soy bean that causes the problems? Also, what tend to be the symptoms of soy intolerance/allergy/....?

Have a great weekend.

white ridges Newbie

Before I was officially diagnosed as gluten intolerant, I suspected that soy was an issue as well. I knew that wheat was a problem for me and was avoiding that ,so when a little cup of miso soup caused me to bloat, I figured that soy should be off my list too. As it turns out, I later tested reactive to gluten, casein, soy, eggs and dairy. I also have figured out from trial and error that peanuts and the nightshade family do not work well for me either. I love fruit, but my body can't tolerate too much of that either--too much sugar, I guess.

This is what I have read about soy: many people believe that those people who CAN eat soy should only consume FERMENTED soy products and not just anything soy.

raen Apprentice

i am becoming very concerned about soy as well - as a baby i hurled up every formula containing milk/casein, and accepted soy. i like the taste of soy, and only drink silk which is a seemingly reliable brand, as well, i love plain tofu be it raw, in miso, or mixed with a vegetable stir fry. but if so many people with gluten & casein allergies alike cant have soy.. is that a sign of problems? where else are we supposed to get calcium? are there any Benefits of soy or is it all bad?

RiceGuy Collaborator
i am becoming very concerned about soy as well - as a baby i hurled up every formula containing milk/casein, and accepted soy. i like the taste of soy, and only drink silk which is a seemingly reliable brand, as well, i love plain tofu be it raw, in miso, or mixed with a vegetable stir fry. but if so many people with gluten & casein allergies alike cant have soy.. is that a sign of problems? where else are we supposed to get calcium? are there any Benefits of soy or is it all bad?

Lots of veggies have calcium. Since the digestion of animal proteins depletes calcium up to three times faster than vegetable proteins, it makes sense to me to get calcium from veggies. You can search Open Original Shared Link to get a comprehensive list.

GFinDC Veteran

Hi ATX,

Just FYI,

There is another thread on this topic

Forum

Celiac Disease - Related Disorders & Research

Topic

Soy Intolerance, how do you react?

Open Original Shared Link

They haven't made the rat connection yet. ;) But lots of people have posted about their reactions to soy there.

ATX Rookie

Thankfully it looks like I am not allergic to soy, going by the symptoms people have mentioned in that thread GFinDC posted. I found another, if controversial, thread on the soy issue:

Open Original Shared Link

Still I am concerned about the possible mineral deficiencies and hormone disruption that soy may trigger, especially since I have been eating a few tablespoons of tofu a day. I doubt it causes any digestion problems--if we trust the rat study--as tofu is treated with high heat during processing. Is there any test to measure proper hormone balance??

I'll second RiceGuy on the importance of green vegetables for calcium. Since I avoid dairy whenever possible, I mostly get mine from spinach and broccoli. Raen, you can also find good nutritional information on many foods, including soy ones, here:

Open Original Shared Link

The page on soybeans lists several health-promoting factors in soy. I am starting to feel a little dizzy!

So the question then becomes, for those who like soy and are not allergic to it, how much is too much?

For White Ridges: the miso you ate may have contained gluten via barley and even wheat. Btw, what kind of test did you take to see if were reactive to certain foods?

missy'smom Collaborator
Before I was officially diagnosed as gluten intolerant, I suspected that soy was an issue as well. I knew that wheat was a problem for me and was avoiding that ,so when a little cup of miso soup caused me to bloat, I figured that soy should be off my list too. As it turns out, I later tested reactive to gluten, casein, soy, eggs and dairy. I also have figured out from trial and error that peanuts and the nightshade family do not work well for me either. I love fruit, but my body can't tolerate too much of that either--too much sugar, I guess.

This is what I have read about soy: many people believe that those people who CAN eat soy should only consume FERMENTED soy products and not just anything soy.

Bloat from miso can, as another poster pointed out, be from gluten. The bacteria that is used in the fermentation of miso is often grown on barley or wheat, It is not, technically an ingredient so is not required to be labeled. You can contact the manufacturer and ask if the koji(starter culture) is grown on a gluten containing grain. Separately, there is a mugi miso(barley miso) where the grain is incorporated into the miso itself but it is an ingredient then and will be on the label. This is not a common kind of miso though. There are some misos that are started on rice.

GFinDC Veteran

This page talks about carbohydrates in soy that can't be digested by the human gut. So they cause GI sypmtoms when the bacteria get happy with all that carbohydrate to eat. Seems this perosn wrote a book on it. I haven't read the book.

Open Original Shared Link

Quote below from

"THE WHOLE SOY STORY" by Kaayla T. Daniel, PhD

"THE TWO STOOGES: RAF AND STACH

The chief culprit, as with all beans, is the oligosaccharides in the carbohydrate portion. The word oligosaccharides comes from oligo (few) and saccharides (sugars). The best known oligosaccharides in beans are raffinose and stachyose. They require the enzyme alpha-galactosidase to be digested properly. Unfortunately, humans and other mammals do not come so equipped."

hawaiimama Apprentice

oh reading this is giving me a stomach ache. I seem to be able to eat fermented soy in small quantities but anything with any substatial amount I feel horrid. I've know about this for years. I have no overt celiac symptoms but I suspect I feel how a lot of you feel when you eat wheat when I eat soy.

I made some brownies for the first time the other day with soy flour. I thought, I've been wheat free for close to two months, so maybe I'd be albe to eat soy again. NOPE. Off to read the other thread...

ATX Rookie

That makes sense GFinDC. Beans in general, I suppose, are the #1 gas-producing foods. Perhaps if soy causes excessive gas and bloating, dysbiosis rather than an allergy may be the issue. Those interested might want to do a "dysbiosis" search in the forum--I remember seeing at least one thread on that topic.

My heart goes out to all the multiple food intolerance sufferers. Do look into the leaky gut/dysbiosis threads for some clues, about how to respond and get back your health. (Not that I am a doctor, just a reader amazed by how much some people on this board know about these kinds of illnesses).

  • 1 month later...
glutenfreenewbie Newbie

Hi,

I've never been able to tolerate fake dairy that's soy based. I get a pretty quick and nasty digestive reaction to it, especially soy 'butter' or soy 'cream'. white ridges is right - fermented is the key. My Naturopath warned me only to consume fermented organic soy products such as tofu, miso, tempeh, etc. and that the other processed stuff - the milk, the fake meat and so on is terrible for you.

Weston Price/Dr. Mercola is a good source of information on it. Soy has anti-nutrients, isoflavones that can interfere with hormones and thyroid that only get eliminated when fermented properly.

-I.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.