Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Questions


Vickie Bedford

Recommended Posts

Vickie Bedford Rookie

Thanks to all of you who replied to my original blog.

My family doctor doesn't seem to know anything about this disease and the Gastro doctor that diagnosed me gave me a pamplet and said read this get on the web and change your diet. Now he had a list of the other meds I take and never said anything about changing those. I take Lipitor and it is the only thing that has ever worked for my cholesterol. According to the web it has gluten in it. No one seems to really know if I should stop taking this - and I don't want to. Also, why should I change my make-up and lotions, etc. if I am not having any skin problems. I am a cook so I can deal with the diet end of it but the rest of this seems a little too much!!! Is a total change really necessary?

V Bedford


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
Thanks to all of you who replied to my original blog.

My family doctor doesn't seem to know anything about this disease and the Gastro doctor that diagnosed me gave me a pamplet and said read this get on the web and change your diet. Now he had a list of the other meds I take and never said anything about changing those. I take Lipitor and it is the only thing that has ever worked for my cholesterol. According to the web it has gluten in it. No one seems to really know if I should stop taking this - and I don't want to. Also, why should I change my make-up and lotions, etc. if I am not having any skin problems. I am a cook so I can deal with the diet end of it but the rest of this seems a little too much!!! Is a total change really necessary?

V Bedford

Hi, Vickie

I had the same thoughts about lotions, shampoo, etc. when I first started. You do need to make sure they are gluten free because you touch them with your hands and then if you touch food or your mouth, you transfer the gluten into your system. It isn't just when you apply lotion after your shower - any time you touch your skin that has gluteny lotion on it, you have recontaminated your hands. Shampoo always has the possibility of getting into your mouth.

As far as Lipitor goes, you may find that you don't need it once you are completely gluten free and your body has adjusted. In the meantime, you may be able to have it specially formulated for you. But as long as you take it in it's gluten-containing format, you have not eliminated gluten from your diet or system.

It may seem like all of this is a bit too much, but it really is necessary.

Spend time reading in this forum. You will learn a lot! :)

GlutenGalAZ Enthusiast

My mom and mother in law both take cholesterol medicine (they are not celiac). My mom takes the one you are on and my MIL take a generic. There are a lot of generics out there for what you are taking you might be able to find one that you can switch over to.

In regards to make-up and lotions. That is up to you on changing. Some of us have noticed differences with having everything gluten free. Some people have skin irritations or DH so they make sure all is gluten free. I used an acne wash that I believe had gluten in it and my face broke out and got red and irritated so I went back to one that I knew was safe. You also have to think am I touching my face and then eating or resting my hand on my face that has make-up on it and then eating or running my fingers through my hair (say it is windy or you are pulling your hair up) and then eating or touching your mouth area. Some people have had incidents and some haven't but it is up to you on the make-up topic. Some make-ups/lotions are hard to wash off so the residue can stay on your hands.

Since you like to cook you should look at all of your kitchen equipments (pots/pans, toasters, storage containers, wooden spoons etc). Dish soap, laundry detergent, tooth paste etc. It is up to you on the degree you will go with getting things gluten free.

As time goes on you may decide that yes I am noticing that things are not clearing up completely and decide to change your make-up or other things that you haven't yet.

GOOD LUCK

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,116
    • Most Online (within 30 mins)
      7,748

    Jacqueline12
    Newest Member
    Jacqueline12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...