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- knitty kitty replied to Karen Chakerian's topic in Coping with Celiac Disease2Getting rid of the belly bloat
Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? ... -
- knitty kitty replied to SaiP's topic in Related Issues & Disorders18
Dangerously underweight, Perfect gluten free and insomnia
@SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential... -
- trents replied to SaiP's topic in Related Issues & Disorders18Dangerously underweight, Perfect gluten free and insomnia
Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat. -
- trents replied to Karen Chakerian's topic in Coping with Celiac Disease2
Getting rid of the belly bloat
Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct? -
- Karen Chakerian posted a topic in Coping with Celiac Disease2Getting rid of the belly bloat
I’m 70 years old and have RA for 25 years. I’d never had digestive issues or even heard of celiac until 2 months ago. 6 years ago I started having serious diarrhea, dropped what little weight I had, became very exhausted, developed rapid onset blood pressure and other symptoms. I went to the doctor for an unrelated matter and even with my records he ...
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By knitty kitty · Posted
Welcome to the forum, @Karen Chakerian, We need more information, please. What homeopathic remedies or medications are you taking now? Do you still have the blood pressure and other symptoms? What is included in your diet currently? Dairy? Oats? Processed gluten free foods? Vegetarian? Other food allergies? Do you take vitamins? When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease. To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer. A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue. Has your doctor checked you for nutritional deficiencies? Glad you're here! -
By knitty kitty · Posted
@SaiP, Insomnia is listed as one of the side effects of Loratadine. Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin. Insomnia can also be caused by low Vitamin D and low Vitamin A. A strict gluten free diet can be low in essential vitamins. Gluten containing products are required to replace vitamins lost in processing and milling. Gluten free processed foods are not required to have vitamins added. White rice is not a good source of B vitamins. Brown rice is little better. Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins. B vitamins are easily lost in urine and diarrhea because they are water soluble. If you have had diarrhea longer than two weeks, you are probably low in B vitamins. Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too. Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well. Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals. Vitamins are stored and utilized inside cells. Blood levels are not accurate measurements of vitamin deficiencies. You can have normal blood levels while having deficiencies inside cells. The brain orders cells to release their stores so the brain and heart can keep functioning. This results in normal blood levels, but vitamin deficits inside cells. Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high. In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels. Correcting my Vitamin D level to between 75-100 nmol/ml helped as well. Also Passion flower extract is helpful in falling asleep quickly. Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well. Celiac is a marathon, not a sprint. P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency. Benfotiamine is a form of thiamine that promotes intestinal healing. Thiamine is water soluble and nontoxic even in high doses. High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine. The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement. Diets that are high in carbohydrates like rice and gluten require more thiamine. For every 1000 calories from carbohydrates, we need 500 mg more thiamine. Thiamine is found in meat. Few veggies contain thiamine. Can you rise from a squat without assistance? This is the field test for thiamine deficiency used by WHO. If you cannot rise easily from a squat you may be thiamine deficient. -
Earlier, you mentioned the possibility of adding in sweet potatoes. Have you tried that? Have you tried sourdough bread? Some people with celiac disease claim they can eat sourdough without a gluten reaction. The fermentation process alters the protein somewhat.
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Welcome to the forum, @Karen Chakerian! So, for the sake of clarity, you have self-diagnosed yourself as having celiac disease but are not officially diagnosed by medical testing. Is this correct?
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By Karen Chakerian · Posted
I’m 70 years old and have RA for 25 years. I’d never had digestive issues or even heard of celiac until 2 months ago. 6 years ago I started having serious diarrhea, dropped what little weight I had, became very exhausted, developed rapid onset blood pressure and other symptoms. I went to the doctor for an unrelated matter and even with my records he told me they have ‘pills’ for all those things; which I turned down and sought to deal with this with homeopathic remedies. Mid October 2024 my guts hurt terribly and started to swell. My massage therapist asked about celiac and I started to do research on it. It absolutely fits all the symptoms so I’ve been gluten free since 2 days before Thanksgiving but the huge gut persists. Thankfully the pain and cramps are gone. I look like a 90# pregnant skeleton. I’m exhausted and looking for some encouragement from the tribe. I have good days and bad. I know living with an autoimmune disease sucks but this is even worse than the RA.
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