Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Gluten Nightmare


FoxersArtist

Recommended Posts

FoxersArtist Contributor

My while family has been gluten free for 3 1/2 months after being shocked to learn that both hubby and I as well as at least one of our 2 kids has celiac. I could not feel more happy about being gluten free and can't imagine going back - though going into walmart where their Subway Restaurant is baking bread still makes me want to cry. (Why couldn't they have put a McDonald's or some other gross restaurant in there, why a SUBway?!)

Anyway, we have been really proud of our efforts to go gluten free and to keep it out of our house and wont even touch an item that we are unsure about. Unfortunately it seems like we are still suffering as casualties of the gluten nightmare. Something no one here has known about me until now is that my husband and I run a rescue for parrots. We care for between 20-30 parrots at any given time and work to improve their diets, overall health, and any behavioral issues before adopting them out to responsible homes. Unfortunately all of the food we use for our birds staple diets contain gluten. We feed mostly pellets and fresh foods but even most bird seed mixes have gluten in them! We have gotten really good about spraying down newspapers before changing bird cages (this keeps any of the food dust from becoming airborne) and have not seemed to have many problems, but my goodness - mixing the food every month has KILLED me. I have been sure to use protection such as a chemical grade respirator and have showered promptly after mixing food, but I still seem to get glutened every time. We also have several birds with special diets. These birds, called lories, eat a powdered nectar (all of which are just swimming with little gluten monsters) instead of solid foods. The birds like to spring out of their cages and onto my shoulder before I can react and on multiple occasions they have quickly leaned down to give me a kiss with their nectar covered beaks. Glutened! Ack! I have done as much research as I could find on switching these guys to an all fruit and veggie diet but finding a balanced diet for them is very complex and I'm afriad of not providing them with the balanced diet that their bodies need.

My husband, who has managed mostly to keep himself from being exposed to the birds food, seems to be running to the bathroom more frequently than I have ever seen. The gluten free diet has taken away so many of his other health issues but he has found himself to be extremely sensitive to most other foods now. He cut out dairy after going gluten free thinking this was probably the source of his troubles but still seems to get sick randomly with no clear pattern as to what the offending food was. Sometimes it's meat, sometimes it's a salad, sometimes from drinking a beverage. We are stumped. It's hard to watch him feeling so sick, especially since he didn't have too many symptoms before going gluten free. When I get glutened I seem to have an instant colitis flare up and lots of troubles breathing, symptoms that seem to be getting more intense each passing month, so I dred any possible exposure to gluten anywhere. Our birds are an irreplacable part of our lives so I am really just at a loss for what to do and feeling a little frustrated. Thoughts?

-Anna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am really wondering why in the world all the bird food has gluten in it. In the wild parrots absolutely do NOT eat gluten grains! They live in the jungle, where they live on fruits, nuts, seeds etc.

Here is a good website with ideas on how to feed your parrots without any of the gluten stuff you have been feeding them (which is probably not even good for them).

Open Original Shared Link

Here is another good site: Open Original Shared Link

I know they say to feed the parrots pellets. But I don't think that is necessary. When I was a kid we had an amazone, and I don't think we fed him pellets. He got seeds, nuts, fruits and vegetables, and he demanded to get a dish of our supper every night (which often included meat, and he loved it). He lived to be about 50 years old (we got him when he was 30), and eventually died of pneumonia because of a draft.

Natural Diet:

Their diet typical consists of seeds from eucalyptus and acacia, as well as nuts, fruits (including berries), nectar, flowers, and insects and larvae.

In order for you and your husband to be healthy, you really need to stop feeding that gluteny food to the parrots. Even that nectar should be replaced with gluten-free nectar (even if you have to make it yourself).

It sounds like you could end up with life threatening symptoms if you don't stop exposing yourself to airborne gluten, and being glutened by 'bird kisses'.

YoloGx Rookie

Seems like if you make your own gluten free bird feed others might want to buy it too.

Bea

Jestgar Rising Star

No advice. Just want to mention that you are AWESOME for rescuing parrots. I could never keep one myself as I don't have the time to give such an intelligent animal the attention it needs, but thank you for doing it.

Jestgar Rising Star

I was curious about what parrots eat so I did a quick google search and found Open Original Shared Link which seems awful pricey to me, but if you decide to make your own mix it might give you an idea of where to start.

Ginsou Explorer

I'm also a Subway fan. I've solved the problem.....I buy a Subway sub and put the "fixings" between 2 corn tortillas. Usually bring the sub home, so I can warm the tortillas and use my special mayonnaise. Another time I purchased some corn tortillas in Walmart and went into the Subway area of the store and simply sat there and transferred the fixings to cold tortillas. It was heaven.

I've recently discovered via blood tests, that I'm also allergic to corn, potatoes,yeast,eggs,peanuts,soy,carrots,peas,and much more. All of this in addition to being lactose and gluten intolerant. Don't quite believe the blood tests....food scratch tests will be next.

Adelle Enthusiast

Ginsou, do you mean that you buy the fixings FROM subway? If so you are definitely getting cross contaminated!! Those places NEVER keep things even close to safe!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dally099 Contributor
Ginsou, do you mean that you buy the fixings FROM subway? If so you are definitely getting cross contaminated!! Those places NEVER keep things even close to safe!!

holy cow i dont even get a salad there, as it is one big crumb factory there and crumbs are the enemy!

Ursa Major Collaborator
I'm also a Subway fan. I've solved the problem.....I buy a Subway sub and put the "fixings" between 2 corn tortillas. Usually bring the sub home, so I can warm the tortillas and use my special mayonnaise. Another time I purchased some corn tortillas in Walmart and went into the Subway area of the store and simply sat there and transferred the fixings to cold tortillas. It was heaven.

I've recently discovered via blood tests, that I'm also allergic to corn, potatoes,yeast,eggs,peanuts,soy,carrots,peas,and much more. All of this in addition to being lactose and gluten intolerant. Don't quite believe the blood tests....food scratch tests will be next.

Oh, goodness, you should NEVER take the fixings off any sandwich or pizza (or the croutons off a salad), and then eat them! They are cross-contaminated and NOT safe at all.

You have too many intolerances, meaning that there must be another underlying problem besides gluten intolerance. I am in the same boat, and I am working on finding out what is causing me to have leaky gut.

I do believe I am truly gluten intolerant, but there is something else wrong. It could be heavy metal toxicity or Lyme Disease for instance.

FoxersArtist Contributor

Jestgar,

Thank you SOO much for the help. The unfortunate problem is that each species of parrot requires a different diet...something that a lot of people don't understand and something I had perfected with their old diet, but I am now exploring the option of making my own mixes using quinoa or buckwheat, which would be better for them anyway. We'll see how it goes...oh and I did find a nectar that was safe for my lories, though it's extremely pricey. Did you know that wheat grass is actually gluten free unless it contains some of the "berry" or wheat grain (which is the part that contains gluten). I had no idea until I started doing research on wheat grass because it's listed in some of these bird foods.

As far as the Subway goes - I have dreamed many times about going to subway and just asking for their meat and cheese...heck, I would be in heaven just to have some of their mayo again BUT I know better and won't go anywhere near there. If you have ever seen what happens to the bread when they cut it open (crumbs pouring out everywhere) and then they touch the meat and cheese and lettuce and everything with the same gloves. Nooooo way! No thanks! I'll just keep on suffering those baked bread smells.

-Anna

FoxersArtist Contributor

Parrots are sooooo hard! In my opinion second only to adopting or having a human child. Very, very smart, very loud, very messy, frequently bite and command a lot of respect and attention from their people. They are not the right pet for the majority of the population and yet they are the 3rd most popular companion animal in the USA. Very sad. Amazingly, we have large parrots like macaws surrendered to us every few weeks and usually have about 30 at a time. I must say though, there is nothing like watching a malnourished, depressed, fearful parrot do a total 180 in your care! Sorry for the OT...just had to share. :D

-Anna

No advice. Just want to mention that you are AWESOME for rescuing parrots. I could never keep one myself as I don't have the time to give such an intelligent animal the attention it needs, but thank you for doing it.
ShayFL Enthusiast

We rescue Great Danes. Rescue work is very rewarding once you get past the anger and sadness. Great Danes are the worlds cutest puppies and people buy them because of this. Then that cute "little" puppy weighs 100 pounds in 6 months and has completely destroyed your hardwood floors, broken grandmas 100 year old vase and knocked the baby over too many times. Off to the pound/rescue they go. It is so sad. If you want a Great Dane, please consider rescue. You can get an older puppy that has been pre-screened.

PEOPLE SHOULD DO A LOT OF RESEARCH BEFORE THEY BUY A PET!!!

This is our Bacchus at 6 months:

http://www.terracegallery.com/bacchus2.webp

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,931
    • Most Online (within 30 mins)
      7,748

    cialiacroofer
    Newest Member
    cialiacroofer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
×
×
  • Create New...