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Before & After Cd Diet


Guest LuvtoLaff06

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Guest LuvtoLaff06

I was diagnosed last November with Celiac Disease due to symptoms of chronic diarrhea and weight loss. Confirmed through blood tests. I started on the diet. After one month I was sickly and depressed. My nails turned a grayish tint and became weak- easily splitting/breaking. My hair stopped growing completely. I was constantly starving!!! After almost 2 months, I gave up! I started eating normal again and now, 6 weeks later, my nails are white again and strong, my hair is growing, I'm slowly gaining back the weight, and have lots of energy and no longer depressed. The only symptom I still have is the chronic diarrhea, but I've lived with that for so long that it feels "normal" to me. I feel great!! So, it seems to me the diet doesn't always help! Just letting ya'll know my experience!


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Guest LisaB

Sounds like a misdiagnosis to me, if you have celiac and go gluten free your absorbtion would improve, not decline. Makes no logical sense.

aldociao Rookie
So, it seems to me the diet doesn't always help!

LuvtoLaff,

It does sound not logical. Are you sure your gluten-free diet was a good one? If it was, you should not have gotten the symptoms you mentioned even if you are not gluten intolerant. A gluten-free diet, a good one, should bring health regardless of one's sickness. There are those on this Board who might be able to tell you if you did have a good diet. (I'm still in the process of finding out myself.) Why not post what you ate on a typical day, or days, so that it can be evaluated by others here who have thrived on the gluten-free diet for years?

You mentioned that your only symptoms prior to being diagnosed were chronic diarrhea and weight loss. My only symptoms (I'm self-diagnosed, awaiting results from Interolab) were weight loss and a difficult to define feeling of being neither well nor sick, a kind of fatigue that wasn't severe enough to cause serious problems but kept me for doing many of the things I wanted to do. Though there were signs, very minor signs, of feeling better for the first two months being gluten-free, only now, as I'm approaching the third month, has there been a very noticeable change for the better--more energy. The weight, 2lbs in the last week, is the first weight gain in so long a time that I can't remember the last time I wasn't losing, or remaining the same. I guess the intestine is healing, but it took almost 3 months for any really noticeable results.

I'm not suggesting that you should stay on the diet you were on--there has to be something wrong with it. But it certainly couldn't be because it's gluten-free. What I'm suggesting is that you give it another try after getting feedback on what might be wrong from those here who have the experience to help you in your food choices. If you do have celiac disease and you don't take the necessary steps now to deal with it, it can only get worse as time goes by, especially since, like me, you are mostly symptom free, without the helpful, though annoying, reactions that will tell you that you are doing what you shouldn't be doing. Not if you want health. --Aldo

Laura Apprentice

Did your diet get worse in some other way? It can be hard to maintain a healthy diet when you have to eliminate so many things. Is there some nutrient that you got mostly through foods containing gluten or through something you ate with a food containing gluten that you didn't get on a gluten-free diet?

You don't say if you were diagnosed celiac with blood tests and/or biopsy, so if not maybe you were misdiagnosed. But I still don't see why, given a healthy gluten-free diet, you'd get the symptoms you describe. So you might want to go back and ask your doctor some questions, because neither of the sets of symptoms you describe sounds like anything I'd want to live with.

Guest shar4

Luvtolaf,

I'm sorry that the diet didn't work for you. I was diagnosed around the same time as you and went gluten-free, and have stayed that way. I had been taking iron supplements before diagnosis, and hadn't really noticed an improvement until I started getting B12 injections. I have to admit, I feel GREAT, and am starting to do things that I haven't done in a long time. I feel like I have years of downtime to make up for and I'm working on it every chance I get.

I hope things work out for you, and like some of the others, it sounds like there is something else going on.

Blessings.

Sharon

Guest LisaB
After one month I was sickly and depressed. My nails turned a grayish tint and became weak- easily splitting/breaking. My hair stopped growing completely.

Sorry to say, that is not enough time for those things to have occured in my opinion. I has taken years for that kind of decline even though I was very sick, once going gluten free and when I started to absorb nutrition, things started to turn around and quite quickly, but not that quickly.

It seems to me you would have to be only drinking water for something even close to that to be happening to you, you may have resented the diagnosis but I hope you aren't kidding yourself, your the only one that knows.

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      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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    • Jack Common
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