Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Fatigue And Lack Of Stamina

jymles

By jymles
in Coping with Celiac Disease

Recommended Posts

kabowman Explorer
kabowman
Posted

I take multi vitamins (don't care for the liquid), plus 500 C, 1000 calcium, and the B vitamin-complex/complete.

Blood sugar is a problem but I keep that pretty controlled because of a yeast intolerance too which elimates almost everything sweet and I eat protein with most carbs for balance. Discussed with dietition.

I have been gluten-free since July 2004, soy, peanut, and corn free since August 2004, almond and garbonzo bean free since September 2004, yeast free since October 2004, and lactose/casein and MSG free for more than 5 years

My thyroid has been checked within the last 6 months. My iron, last we checked about 6 months ago was OK too...and the doc said I don't have all the points for (sp) fibremyalga.

I have NOT been formerly dx with celiac disease. I was gluten-free for several months before my doc checked and by then (not before) I knew there was a danger of no visible signs for a positive ID and I told the docs that I REFUSED to go back in order for a positive ID and no definitive signs of damage were found.

-Kate

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mela14 Enthusiast
mela14
Posted

Hi Kate,

Boy you sound a lot like me with all the intolerances. How do you do it? I am still having a hard time and often find myself eating something I think is safe and then reacting to it. Vitamins are a little problematic for me as they irritate the heck out of my gut. I just started cutting my vitamins in quarters. Let's see how that works for me. All my blood tests were good....not showing any vit deficiencies.

I am going to columbia presbyterian tomorrow for a consult ....just in case someone is missing something. I know I will NOT go back on gluten for an endoscopy so let's see what they have to say about that. I thought I was doing a good job watching the gluten but test results yesterday showed a number of 35.....still high but at least nowhere near 66 from 4 months ago.

My dr also ran other tests and of course soooooo many more intolerances...ones that I have been reacting to. What do you eat? I am having a hard time with variety and often find myself craving something sweet. I have given into raisins, and some fruits and apple sauce but now...the Candida is in flare! back on a round of Nystatin to help me along. With my immune deficiencies it is hard to keep things in check.

OH WELL................more chicken tonght for dinner!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,547
    • Most Online (within 30 mins)
      7,748
    Phil Davis
    Newest Member
    Phil Davis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New Guy Here...

      By trents · Posted

      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
    • Jordan23
      Shortness Of Breath (the "sighs")?

      By Jordan23 · Posted

      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      I haven't been on the site for a while and I have some update info.   Genetic tests show I have the Celiac markers and high risk for Celiacs's  (10X it shows).  Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'.  Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI for two weeks now and no real problems...minor heart burn and OTC antacids fix that.  So that's good to be off of that for good. I switched to a b complex sub lingual vitamin. I was surprised about the genetic results on Celiac markers. To my knowledge no one in my family had it or were diagnosed with it.  But they could have had and never been diagnosed.  And at 76 this has come up for me. Gluten free diet is going well and I do feel better on it - nothing major in changes - just better. I appreciate all the advice I've gotten on this site - lots of experience knowledge to draw on here. So thank you, all.
    • ALBANICKAP
      Celiac, Fructose and Lactose

      By ALBANICKAP · Posted

      Thank you Scott, I will try what u suggested. 
    • pplewis3d
      Citracal Petite supplements

      By pplewis3d · Posted

      Does anyone know if Citracal Petites supplements for Calcium and Vitamin D3 are gluten free?
×
×
  • Create New...