Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Defeated...

pewpewlasers

By pewpewlasers
in Doctors

Recommended Posts

pewpewlasers Rookie
pewpewlasers
Posted

I went to the doc last week to ask for celiac tests and what the doc's opinion was.

She said my symptoms sound like celiac-sprue and ordered blood work and an ultrasound of my abdomen. I'm paying everything out of pocket for this so I decided to wait on the ultrasound until my blood work came back.

They call me a couple days later saying I have mono and to drink plenty of fluids and get rest.

Mono?

I asked to be tested for Celiac, which they didn't. So that was a waste of $350.

The doctor was left a note to call me back, which she still hasn't done.

I have another appointment next week with the same doctor and I don't know if I should even see her again.

Where would they think to test for mono when I told them I've been having syptoms for years and for the past 14 months I've had the worst fatigue of my life and have been getting migranes and other terrible symptoms after I eat.

I'm not a doctor but I don't think that if I am sick from mono and have been on a gluten free diet for a couple weeks, have been feeling better, and accidentally ate something with gluten in it and suddenly got sick, had a migrane, felt nauseous, and couldn't get out of bed the next day.

Should I go to another doctor or just go to my next appointment and tell them to stop wasting my money and test me for celiac?

I want to know what it wrong with me.

I am tired of seeing doctors for years who try to bandaid things.

She offered me medicine for my migranes and said they would make me sleepy....

ummmm HELLOOOOOO!!!! I don't need to be anymore tired then I already am. I already feel like a zombie half the time and half the reason I know I'm still alive most of the time is because my head is throbbing even after popping tylenol all day.

Sigh...

I am so frustrated.

I would say screw it all and stay on my gluten free diet and stop getting frustrated with doctors but I want to rule out Crohn's and other things because it all runs in my family. I am 24 years old and would like to catch it now and make myself healthy NOW. I've seen the problems Celiac has caused after years and years of being left untreated in my Mother and I don't want those problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Sorry you are having such a hard time with Doctors.

You ALWAYS have options nowadays.

I use either diectlabs.com or healthcheckusa for my labs.

You can also get genetic tests through Enterolab or Kimball.

YOU DO NOT NEED A DOCTOR FOR THESE.

Or you can just stay gluten-free and live your life. BUT if you want answers, you can get tests on your own so you dont waste anymore of your money.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,098
    • Most Online (within 30 mins)
      7,748
    Lily1919
    Newest Member
    Lily1919
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kwinkle
      Update on Gaviscon

      By Kwinkle · Posted

      Thank you, Trents- are there any safe alternatives?
    • Scott Adams
      Delayed reaction

      By Scott Adams · Posted

      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
    • Scott Adams
      Polly-O all cheese products are gluten free?

      By Scott Adams · Posted

      Good to know, here is their website: https://polly-o.com/
    • Scott Adams
      Enegy level extremely low

      By Scott Adams · Posted

      No cure so far, and a treatment might still be years away. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can food allergies like milk and soy flatten villi?

      By Scott Adams · Posted

      I'm not sure the article would be misleading, as it offers many different avenues to pursue for those with ongoing symptoms. The recommendation to keep a food diary and remove common food intolerance triggers would be a good way to discover issues with casein/milk, especially if you added that back to your diet after a couple of months and your symptoms returned. Many additional food intolerance issues can be permanent in some people. 
×
×
  • Create New...