Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uti's


glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast

Ok so for the last year or so I suddenly have een getting these UTI's which by the way I never even knew I was getting they just keep picking them up when they ck my urine for all this testing I have been having....

I have never been prone to them ever and now suddenly it is like the little critters have taken residence are they related to celiac?

I can seem to get rid of them when ever Iup the cranberry juice they will go away but then return anyone have insight on this weird thing?

Hugs to everyone Enjoy your beautiful day...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreegirl Enthusiast
Ok so for the last year or so I suddenly have een getting these UTI's which by the way I never even knew I was getting they just keep picking them up when they ck my urine for all this testing I have been having....

I have never been prone to them ever and now suddenly it is like the little critters have taken residence are they related to celiac?

I can seem to get rid of them when ever Iup the cranberry juice they will go away but then return anyone have insight on this weird thing?

Hugs to everyone Enjoy your beautiful day...

In case no one is responding as they do not know what UTI's are I just realized I never explained that very well so sorry... anyway i mean Urinary tract infections..

ShayFL Enthusiast

The are almost always from e-coli that migrates from you know where. It could be that you have a higher level in your poopie right now, so more can migrate. It isnt hygiene as I used to get them too (randomly) and I am a super clean person. Wipe from front to back too.

What cured mine was D-Mannose. D-Mannose is a natural sugar that when ingested goes into your bladder and urinary tract. While there the little e-coli buggers cannot resist this yummy sugar, so they attach themselves to the D-Mannose and get peed out.

Works like a charm. And I do not get them anymore, since I took the D-Mannose for a few months. I stopped taking it 6 months or so ago. So far so good.

glutenfreegirl Enthusiast
The are almost always from e-coli that migrates from you know where. It could be that you have a higher level in your poopie right now, so more can migrate. It isnt hygiene as I used to get them too (randomly) and I am a super clean person. Wipe from front to back too.

What cured mine was D-Mannose. D-Mannose is a natural sugar that when ingested goes into your bladder and urinary tract. While there the little e-coli buggers cannot resist this yummy sugar, so they attach themselves to the D-Mannose and get peed out.

Works like a charm. And I do not get them anymore, since I took the D-Mannose for a few months. I stopped taking it 6 months or so ago. So far so good.

Oh sounds good to me... can I purchase this at a health food store??

ShayFL Enthusiast

Yes you can. Comes in pills and powder. I used the Solary which is a combo of D-Mannose and Cranberry Extract. I keep a fresh bottle in the pantry so if I ever feel an inkling....I would be right on it.

Once a few years ago my DD came to me and said her pee pee burned a little bit. I gave her the D-Mannose for a few days and it cleared right up and never returned.

Rivka Newbie

I get UTIs and Kidney stones. My stones are calcium based. I was reading recently that people with calcium stones should get screened for celiac! I haven't been gluten-free long enough to tell if it will make a difference in the kidney problems but I'm amazed how different I feel all ready in so many other areas!

Rivka

Gemini Experienced
I get UTIs and Kidney stones. My stones are calcium based. I was reading recently that people with calcium stones should get screened for celiac! I haven't been gluten-free long enough to tell if it will make a difference in the kidney problems but I'm amazed how different I feel all ready in so many other areas!

Rivka

Rivka....my husband has had episodes of kidney stones off and on. I am the Celiac, he is not. However, I strongly believe he may have celiac disease also because of the stones and the fact he consumes about 5,000 calories a day and has trouble maintaining his 135 lb. frame. He is 5' 7" tall. He is also slightly anemic. As usual, his doctor does not think these are related at all. My feeling is that if you are a Celiac and are ingesting gluten without knowing you shouldn't, whatever you aren't absorbing will collect and make stones. You may not have a future problem with stones if you stay gluten-free but it won't help any stones that are already formed but haven't passed yet.

Thanks for posting this.....hubby needs to read this because he's in denial. It's OK for me to have celiac disease, although he's incredibly supportive, but it's a different story with him! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rivka Newbie

Hi Gemini,

I was easily eating 3000 cals per day and struggling to maintian weight until about 2 years ago when I think my body started putting on weight, but still not absorbing adequate nutrition from the food I ate. Now that I am gluten-free, I am stunned how 1300-1600 cals per day leave me feeling deeply satisfied.

I go to see the kidney specialist later in September, it will be interesting to hear his take on this!

Good luck with the husband! Mine could never imagine going gluten-free, but is happy to support me and our daughter in this !

Rivka

Judyin Philly Enthusiast

I suffered for years from UTI's and the testing wouldn't show e-coli but elevated white cells.

They would put me on abx and then after the celiac dx after 20 years un dx'd, they were gone

I too use pure cranberry capsules and they did help me

Then I stated getting the burning again and found if I cut out foods high in oxalates I was fine again.

There is a great fourm on this.

I can link it if you are interested.

Judy

Rivka Newbie

Hi Judy,

I'd be interested in the link and learning more about this.

Thanks,

Rivka

Judyin Philly Enthusiast
Hi Judy,

I'd be interested in the link and learning more about this.

Thanks,

Rivka

Morning Rivka

I am sending just on link as you can link to the forum and read so such from this site.

i lost all my links when my computer crashed but will look on this site to see if i can find the one good article that really explaines it

there is a fourm also that's been very helpful for me.

Open Original Shared Link

this link will at least allow you to do some seaching till i find the article i want

you can email me also through my c.com profile

OK ---still didn't find the one i wanted but did a copy of some info in the INFO link on this link

Urinary Tract Infections

Women in the Vulvar Pain Foundation have described a no-win scenario that may happen in other populations. They found that they were being treated prophylactically with antibiotics when they went to the doctor complaining of symptoms that suggested they had a urinary tract infection. Later, the culture would come back negative after they had already been on yet another round of antibiotics. Of course, those antibiotics may have further damaged the flora by killing off the oxalate degraders. IF OXALATE WAS THE CAUSE OF THE SYMPTOMS, then you can see that this scenario would keep the problem perpetuating itself. Many of these women found that on the low oxalate diet, they lost the symptoms that felt like a UTI, and stopped being on this antibiotic merry-go-round. Many found similar relief from yeast infections on this diet, so they no longer required constant anti-fungal medication. Clearly, this is an area where a correct diagnosis that recognizes oxalate's role in these symptoms may be able to end the otherwise endless rounds of medication...that is, IF oxalates were the cause of symptoms

vulvar pain foundation is also a place you can google and get alot of info

hope some of this helps

judy

GF avenger Apprentice

GFG and others -

Out of curiosity - are any of you with UTI trouble IgA deficient? My mom and I are still in the process of being diagnosed, and I've just realized that we probably both have low IgA levels, hence the positive IgG result, and negative TTG.

In any case, just recently I stumbled across a little information about what low IgA levels might mean - not terribly traumatic for most folks, but some folks may be more susceptible to infections in mucous membrane areas - sinusitis, UTIs, etc.

Thought it was interesting given that I've not been able to get rid of a UTI for 2.5 years - and this infection is what led me to the celiac diagnosis...

Fiddle-Faddle Community Regular

I'm reading this thread because I have a friend whose 4-year-old daughter has recurrent UTI's. She doesn't feed her daughter a lot of sugary juice, has her drink lots of water, keeps her daughter very clean, wipes front-to-back, no bubble baths, etc, but still has recurring infections.

I tend to want to blame everything on gluten, but wonder what studies or even links there might be to help her??(And maybe it's not gluten anyway.)

dilettantesteph Collaborator

Found out I had celiac disease at 48 when I went gluten free after son was diagnosed. Mother died of lymphomia at 47. I know I've been sick for a long time. I have had problems with UTI forever. Spent time getting tests in hospital at 3 years old. As a teenager I started drinking cranberry juice and that stopped the UTI problems. Much later some study found that it does prevent UTI. I would just drink the juice. There are nice mixes. It doesn't seem to take that much, just half a glass of mix and I'm good.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,217
    • Most Online (within 30 mins)
      7,748

    Tiara
    Newest Member
    Tiara
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Milarynn,  Welcome to the forum!   Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies.  Be sure to have your Vitamin D level checked.  Vitamin D helps prevent bone loss, including loss from the jaw and teeth.   Magnesium and calcium are both important to bone health as well.  Magnesium helps keep the calcium from leaving your bones.  Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1.  Low Magnesium and/or low Thiamine results in muscle cramping.   Thiamine deficiency is found in Pre-diabetes and Diabetes.  Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease.  Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums.  Vitamin C is needed to fight bacteria that cause plaque which causes cavities.  Vitamin C helps rebuild tooth enamel.   I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems.  Do talk to your dentist about having Celiac Disease.  Practice good oral hygiene.  I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress!
    • trents
      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
    • Milarynn
      Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks. 
    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
×
×
  • Create New...