Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Allergy Testing?


gfmigraine

Recommended Posts

gfmigraine Newbie

Hello. I am new to this community, and I registered in order to hopefully gain some assistance and maybe guidance from experienced people and/or medical professionals in the gluten-free community. My path to this website and the gluten-free community in general began with researching better ways to conquer severe migraines rather than the toxic medications (for onset and prevention) that have not worked for me. I had read in several areas about the connection between gluten and migraines, but I have just begun to learn about the elimination diet. Should I be going for gluten allergy testing before driving myself crazy with what so far seems to be a very difficult dieting endeavor? Is there an accepted type of gluten testing as it pertains to migraines? I do not have intestinal issues (except when I overdo it with the meds), so I don't have a reason to believe I have Celiac disease. I really could use some guidance. Thanks, community!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The first thing you want to do before you eliminate gluten is to get a celiac panel done by your doctor. There are up to 30% of us who will show up with a false negative so if the test is negative or positive a dietary trial may be in order. I am someone who has never had another migraine gluten free and others have also seen this effect. Do you have any other health issues at all, even if not tummy related? Arthritis, fibro, cfs, depression, anxiety are just of few of the other issues that can be seen that are gluten related.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

    2. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      5

      Vaccines

    3. - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      5

      Vaccines

    5. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      5

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,841
    • Most Online (within 30 mins)
      7,748

    Alejandra Narciso
    Newest Member
    Alejandra Narciso
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
    • Scott Adams
      Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celiac disease is well-documented, but your celiac panel results are inconclusive, with only the deamidated gliadin IgA elevated. As you doctor correctly mentioned, this could indicate non-celiac gluten sensitivity (NCGS) rather than celiac disease, especially since you lack classic GI symptoms. However, the absence of improvement after four months gluten-free is notable. While some non-GI symptoms like fatigue and brain fog can take longer to resolve, the lack of progress raises questions about whether gluten is the primary driver of your symptoms. It might be worth revisiting the possibility of a biopsy (after a gluten challenge) to rule out celiac definitively, or exploring other potential contributors, such as nutrient deficiencies, other autoimmune conditions, or even dysautonomia, given your temperature regulation and energy issues. Have you had your thyroid levels retested since going gluten-free? If not, I would do that before resuming a regular gluten diet. It would be interesting to see if there has been any normalization in those levels while on a gluten-free diet.
    • Dawn Meyers
      Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods. 
    • trents
      Dawn, are you diligent with the gluten free diet? When were you diagnosed with celiac disease?
×
×
  • Create New...