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- Auldtwa commented on Scott Adams's article in Product Labeling Regulations2FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
Another strange failure of the FDA just happened to me. Like many, if I DO ingest gluten I experience massive projectile vomiting. This can be life threatening when it messes with my insulin/food balance. So my doctor has prescribed for years two anti nausea drugs. I don't, thank goodness, have to use them often. This time, my doctor apparently, when...- fda
- fda regulations
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- knitty kitty replied to sillyyak52's topic in Coping with Celiac Disease9Family education
@sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with... -
- Lotte18 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26Can food allergies like milk and soy flatten villi?
I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!- 1
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- knitty kitty replied to Soleihey's topic in Related Issues & Disorders8
Gluten Ataxia and Malabsorption
I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg). I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep. -
- knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26
Can food allergies like milk and soy flatten villi?
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia...
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By knitty kitty · Posted
@sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment. Sometimes people are just scared of having to change their comfortable lifestyle. -
I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
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By knitty kitty · Posted
I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg). I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep. -
By knitty kitty · Posted
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia. Have you been checked for tTg 6 antibodies? P. S. Can you share your B vitamin test results? -
By knitty kitty · Posted
I agree that you were not eating sufficient gluten prior to your endoscopy.
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