Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aveeno Says Product Is Gluten Free But Lies!

Terbie
 Share

Recommended Posts

Terbie Apprentice
Terbie
Posted

I just got off the phone is an Aveeno customer service representative and I am completely pissed off!

I asked if a particular product is gluten free and she said that it is. Then I asked if it contained oats (because lots of Aveeno products do) to see if there might be a chance that I would get glutened from the oats and the woman said that she didn't know.

Then, I asked if there oats were certified as gluten free and she had to go ask her manager. She came back and said that their products are only tested for wheat. She said that their oats and parsley aren't certified gluten free.

Parsley?!? Huh?

I doubled checked that I heard her correctly and she said yes. That the only thing that they test for is wheat, NOT GLUTEN.

How is your product gluten free if you don't test for it?!?

Answer: "Because we say it is."

Excuse me?!?!?!?

Not only that, the woman started lecturing me on the fact that I need to educate myself about gluten because it's found not only in wheat, but also in parsley!!! Parsley?!?

I said that gluten is found in wheat, barley, and rye, not parsley. I also told her that wheat free and gluten free are NOT the same thing and that they shouldn't tell people that their products are gluten free if they are only wheat free because that could seriously hurt someone. She said that I needed to educate myself more on gluten because I obviously didn't know what I was talking about.

WHAT THE?!?

PLEASE contact the company with me and demand that they stop telling people that their products are gluten free when they really only test for wheat in their products! Here is their contact info online: https://www.aveeno.com/contact-us.jsp

Also, don't try the number on the back of your Aveeno product. I called it and person on the other line said, "Hi, this is Universal Studios." I called again to double check and behold, the number on the product is wrong. Here is the correct number I got off the website: 1-877-298-2525

Stop using all your Aveeno products! Even if they said that they are gluten free because apparently they don't actually test for it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MyMississippi Enthusiast
MyMississippi
Posted

Gluten in Parsley????????????????????????? :lol:

It's hard to get "good help" these days.

ShayFL Enthusiast
ShayFL
Posted

Barley and parsley sound similar phonetically. She is sooooo confused. I avoid their products anyway because of the oats. I use mostly Dove and Burt's Bees that I know are safe.

ravenwoodglass Mentor
ravenwoodglass
Posted
I just got off the phone is an Aveeno customer service representative and I am completely pissed off!

I asked if a particular product is gluten free and she said that it is. Then I asked if it contained oats (because lots of Aveeno products do) to see if there might be a chance that I would get glutened from the oats and the woman said that she didn't know.

Then, I asked if there oats were certified as gluten free and she had to go ask her manager. She came back and said that their products are only tested for wheat. She said that their oats and parsley aren't certified gluten free.

Parsley?!? Huh?

I doubled checked that I heard her correctly and she said yes. That the only thing that they test for is wheat, NOT GLUTEN.

How is your product gluten free if you don't test for it?!?

Answer: "Because we say it is."

Excuse me?!?!?!?

Not only that, the woman started lecturing me on the fact that I need to educate myself about gluten because it's found not only in wheat, but also in parsley!!! Parsley?!?

I said that gluten is found in wheat, barley, and rye, not parsley. I also told her that wheat free and gluten free are NOT the same thing and that they shouldn't tell people that their products are gluten free if they are only wheat free because that could seriously hurt someone. She said that I needed to educate myself more on gluten because I obviously didn't know what I was talking about.

WHAT THE?!?

PLEASE contact the company with me and demand that they stop telling people that their products are gluten free when they really only test for wheat in their products! Here is their contact info online: https://www.aveeno.com/contact-us.jsp

Also, don't try the number on the back of your Aveeno product. I called it and person on the other line said, "Hi, this is Universal Studios." I called again to double check and behold, the number on the product is wrong. Here is the correct number I got off the website: 1-877-298-2525

Stop using all your Aveeno products! Even if they said that they are gluten free because apparently they don't actually test for it!

I would toss that product it may be counterfit with an interesting phone number like that. Did you read the rep the UPC code to verify that it was actually a product of theirs, not that that couldn't be faked also.

I also avoid their products and since you were talking to a rep in heaven knows where I agree with Shay that they were most likely saying barley. I do agree they are giving misleading info though if they ignore the oat issue.

Terbie Apprentice
Terbie
Posted
  • Author

I bought the product at a huge chain grocery store (Ralphs) a few months back before I knew that you really shouldn't use beauty products that aren't gluten free. I hadn't used it yet.

Counterfeit? Geez, that would be a twist! I figured that they just changed their phone number.

Aveeno makes that product because the woman on the phone knew what I was talking about, so at least that's true.

All I know is, I wanted to post my experience just in case people were searching online about Aveeno because what they said on the phone doesn't lead me to believe their product is safe and I wanted people to know. Plus, mixing up parsley and barley would be really amusing if it wasn't so dangerous. The woman was SO sure that she knew what she was talking about. Sigh. :rolleyes:

Phyllis28 Apprentice
Phyllis28
Posted

I am sorry to hear Aveeno customer reps are not trainned well. I always use Dove products.

I usually start a conversation or e-mail with one of the two following statements depending on who I am talking to:

Is your product gluten free? Does it contain any wheat, oats, rye or barley?

OR

Does your product contain an wheat, oats rye or barley?

I try to never assume the person on the other end of the phone actually knows what gluten is.

  • 9 years later...
Mark Hammer Newbie
Mark Hammer
Posted

Are people directly sensitive to gluten on their skin? I thought the whole fear of gluten was it making its way to your digestive system. 

https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbrookes Community Regular
mbrookes
Posted
21 hours ago, Mark Hammer said:

Are people directly sensitive to gluten on their skin? I thought the whole fear of gluten was it making its way to your digestive system. 

https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879

That is also my understanding. I can see concern about lip products, but who eats deodorant? Shampoo? I close my mouth in the shower. 

Gemini Experienced
Gemini
Posted

I will also add that people who have skin sensitivities either have an additional wheat allergy or with DH, skin is almost always very sensitive overall.  The gluten reaction is caused by gluten making it's way into your gut, which does begin at the mouth.  So, if you cannot shower without ingesting wheat/barley containing shampoo into your mouth, or have additional allergies, use a gluten free shampoo.  Otherwise, it is not a problem.

  • 1 month later...
Moggy Apprentice
Moggy
Posted

I've got dh, and cannot tolerate wheat on my skin. Shampoo residue stays on hair, hands go on hair, then to mouth. Same with skin cream. If I have to touch a gluteney thing I wash my hands. Cross contamination is a real thing.

The Aveeno rep sounds infuriating. Nowadays I presume even gluten-free labelled products are not gluten-free until ive checked. Ive been glutened too many times. Its marketing blurb, they dont care about our health. 

The 20ppm thing is a joke too. I cant be the only one to react to that level. Anyway, eat enough 20ppm products it all.adds up. 

Companies get away with it because they are allowed to.

 

 

  • 1 year later...
Lover89 Newbie
Lover89
Posted

Gluten cannot be absorbed by the skin according to the Mayo Clinic.  A rash can occur from gluten products, but it is not part of a celiac diagnosis, but of a secondary diagnosis.  So if you’re simply “celiac,” then you shouldn’t worry unless you have the other diagnosis as well. 
 

https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,836
    • Most Online (within 30 mins)
      7,748
    Art Glassman
    Newest Member
    Art Glassman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Guidance on next steps after the lab tests

      By knitty kitty · Posted

      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
    • DayaInTheSun
      Being a burden to family/friends

      By DayaInTheSun · Posted

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      9 Year Old test results - help interpret

      By trents · Posted

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      9 Year Old test results - help interpret

      By Gill.brittany8 · Posted

      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
×
×
  • Create New...