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Newbie, What Tests Should I Do, Entero Labs Or Optimum?


dizzygrinch

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dizzygrinch Enthusiast

First I would like to say hello to everyone, I am a new member, and hoping this site may be able to help with some issues. My first question is, should I go with Entero Labs stool testing for Celiac, or, I found OptimumHealthResource has a home blood test for celiac. I found them through a website, and also the Southern Arizona Celiac Support website mentioned them as well, but I dont know of anyone with experience. The reason why Im considering these tests, is like everyone on these boards, I think Im gluten intolerant. I have had "IBS" for over 20 years, and my last colonoscopy and endoscopy, last year, my GI doc noticed "flat spots", but never explained what that was. I have also been diagnosed with "unspecific rhumotoid arthritis", and GERD, the list goes on. So, I came across info regarding the possibility of celiac disease, but I am uninsured, so I am wanting to do some tests, that I would have to pay for out of my own pocket. Any advice? thanks for your help!


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dizzygrinch Enthusiast

Also, forgot to add, I am Vitamin D deficiant, and have a lung nodule, but not one doc can tell me why. Could the vitamin D, be because of celiac?

Lisa Mentor
Also, forgot to add, I am Vitamin D deficiant, and have a lung nodule, but not one doc can tell me why. Could the vitamin D, be because of celiac?

Celiac Disease has over 200 symptoms and deficiencies plays a big role. Enterolabs cannot diagnose Celiac, but the can tell you if you have sensitivities to certain foods. I have not used them, so I don't recommend them.

I would request the pathology report from your colon and endoscopy. Many people here can help you interpret them.

These are the test that should be ordered for Celiac:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

And welcome!

dizzygrinch Enthusiast

Hi! well, my pathology reports states that there were biopsys done, and they read like this: No pathological alteration. Negative for colitis. It also states that there is "somewhat flattened mucosa was seen within the TI. Dont know what that means. To sum it up, it states I have diverticulosis, significant bile in the stomach, but basically says other than the exam was "Tortuous" I guess Im normal. I do have what he said was evidenc of old, healed peptic ulcer disease. Anyway, all I know is I still feel sick all the time. I came across the site that does this testing:

cdSCAN IgA/IgG/IgM Tissue Transglutaminase

(tTG) and Gliadin Intolerance Rapid Test Kit

that is a home test from optimumhealthresource.com

Is this the correct testing I would need to request? Sorry for all the questions, Im just so sick of being sick!! thank you!

MLB Apprentice

I was debating between these two companies a few months ago (although I was looking into the 96 food allergy blood test at Optimum) and I went with Enterolab because I looked them up on the Better Business Bureau and Optimum got a grade "F" and has 85 complaints against it. I'm really happy with what I got from Enterolab.

ShayFL Enthusiast

I was satisfied with Enterolab as well. But I did a Celiac panel thru Labcorp too.

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    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
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