Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Keep Getting Sick From Kisses!


raen

Recommended Posts

raen Apprentice

I have been gluten free for almost 3 months now, and my general health has been improved dramatically.. My apartment is gluten-free, except for one room where people who come over sometimes have pizza. My shampoo, handsoap, and sanitizer are all organic and gluten free, and so is my dish soap.

But still, i find myself getting cross-gluttened once every 2-3 weeks!! I cant sleep, up all night with stomach pains TWO days in a row. Ive wanted to hurl half both days (but in staid belch, if anything) and my throat feels like it swallowed big balls of salt. now that im finally healthy i cant take getting sick like this anymore. its like having a cold mixed with food poisoning!

my only pathetic excuse for comfort is always the uncertain "if it IS gluten and im not ill, i will feel better 3 days from the start" :angry: ontop of that, i have chronic hyperventilation syndrome, the symptoms are somewhat similar to the pains belching and sick feeling of gluten, i sometimes mix them up and it gets nerve-wracking. being stressed form the gluten makes me all the more likely to hyperventilate too, and overlapping Cant be good for long-term health.

My boyfriend brushes his teeth and washes his hands, and now even washes his face whenever he eats gluten, but that obviously isnt enough.. how can keep kissing without getting contaminated?? he would give up gluten for me if needed, but i would rather not ask him to do that. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Well, maybe it's time to not allow gluten in your home. You may be getting CC'd from that. I have been gluten free for 8 yrs, and I do react to the smallest amount of gluten...yet, I have never been glutened by a kiss. My guy rinses his mouth out after eating gluten, even washes his mustache, just to be sure he doesn't gluten me, and it works. I think probably you are being CC'd by the other gluten in the house. If your boyfriend is willing to go gluten-free for you, then let him. He can eat gluten outside your home if he wants it. Give it a try and see if it helps.

RiceGuy Collaborator

Since you didn't specify what sort of hand soap you use, I'll suggest a liquid soap, not bar soap. That way, there won't be gluten all over a bar of soap, so you won't be washing your hands in gluten.

Still, I agree it doesn't seem wise to allow gluten into your home.

raen Apprentice

i use burts bees, bar soap in the shower (no other type of soap), and liquid soap for washing hands.

i only allowed it because i almost never go into that room, i obsessive compulsively wash my hands, they only eat over the floor (which i have him vacuum for me), and are not allowed to use any of my dishes. still it can't hurt to say "eat it outside" anyway.

I know for a fact i have been glutened form kissing before, after he had beer even though he brushed his teeth, for one example. i considered "crumbs on his shirt" and "i can sometimes smell it in his breath or skin" as potential problems. i think brushing isnt enough, and mouthwash may help more.. has anyone else had that problem?

aikiducky Apprentice

Mouthwash won't help, since gluten isn't a germ and cannot be killed. I really don't know what the next step would be from brushing teeth and rinsing, apart from not eating gluten at all, which is quite a lot to ask I'd think.

To me it really sounds like you're being quite careful. I wonder if it really is cc that is getting you or if there is a product that is slipping through the cracks, or possibly another food that you are also intolerant to? Do you eat out at all?

I used to get mystery "glutenings" until I figured out that I get almost the same symptoms from dairy as I get from gluten.

One idea could be too keep a food/mood/symptoms journal for a while, that way you can start to detect patterns. If for example you're always sick the day after seeing your boyfriend, that is a clue. ;) But it could also be after eating tomatoes (just making something up here).

Also if you want you could write down here what you usually eat, maybe someone on the board has some ideas.

Pauliina

purple Community Regular

Could he floss before/after brushing his teeth and eat apples and carrots to get between the teeth?? Just a thought...

Generic Apprentice

Let me just start by saying, please don't take think that I am attacking you.

But they say that once something is in a person's mouth for 20 minutes or longer it is neutralized by the saliva. They had thought a woman died from kissing her boyfriend because he had eaten peanut butter and she was severely allergic. Turned out it wasn't possible.

What I am trying to say is, it is very unlikely if he is brushing, etc.that you are getting sick from him. I would look into other issues like what was suggested. Keep a food diary and you will get to the bottom of it. I figured out the hard way, (years ago) that licking stamps was making me sick. :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,159
    • Most Online (within 30 mins)
      7,748

    Elaine Gilbert
    Newest Member
    Elaine Gilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...