Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"specialists"


new2glutenfree2

Recommended Posts

new2glutenfree2 Newbie

ANYONE ELSE AGREE THAT THEIR DOCTOR'S DON'T KNOW ANYTHING ABOUT CELIAC DISEASE? I JUST CAME BACK FROM THE GASTEROENTEROLOGIST,(WHICH I DON'T EVEN KNOW WHY I NEED TO GO THERE) AND I ASKED HIM FOR MY BLOOD RESULTS (WHICH TESTED FOR ANTIBODIES) TO SEE IF I HAVE BEEN DOING WELL ON MY DIET, AND HE DIDN'T EVEN KNOW HOW TO READ IT. HE SAID, WELL LAST TIME IT WAS 37, WHICH MEANS YOU STILL WERE EATING IT. AND NOW IT IS 17, SO IT IS BETTER" I TOLD HIM THAT I THOUGHT IT TOOK A WHILE FOR IT TO BE NORMAL(I HAVE ONLY BEEN gluten-free FOR ABOUT 4 MONTHS OR SO) HE TOLD ME YES, THAT IS TRUE. I SAID, "WHAT LEVEL IS CONSIDERED NORMAL?" HE DIDN'T KNOW. AT FIRST HE SAID "0", THEN HE LOOKED ON HIS CHART AND SAID 10 AND BELOW. THEN HE SAID "OH, WAIT, LOOKS LIKE 20 AND BELOW. SO, I GUESS YOU'RE FINE." DOES ANYONE KNOW THE TRUE ANSWER???????? THEN MY SISTER (ALSO DIAGNOSED CELIC) WENT THERE THE SAME DAY(COINSIDANCE) AND HE TRIED TO GIVE HER SOME FIBER SAMPLES, WHICH IN THE INGREDIANCE IT LISTED "WHEAT". WHAT A MORRON!!!!!! IS THERE ANY OTHER OPTION OUT THERE? DO YOU GUYS SEE A SPECIALIST??? <_<:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Different tests have different levels, but on the most common one in the U.S. anything below 20 is considered normal. As for seeing a specialist, the GI is the specialist for this. You apparently have one who doesn't know about celiac.

richard

LDJofDenver Apprentice

My medical plan gives the following info on the Anti-TISSUE TRANSGLUTAMINASE IGA (tTg-IgA),

standard (normal) = less than or equal to 19

weak positive = 20-29

positive = 30 and higher

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,017
    • Most Online (within 30 mins)
      7,748

    allis
    Newest Member
    allis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Marie
      Thanks so much for your thorough reply! I was able to schedule with the local pediatric gastroenterologist who specializes in celiac but we have to wait 3 months to see her. 
    • trents
      Sorry, meant to type "or dermatitis herpetiformis for short". What? Every time I try it, the abbreviation for this skin condition is converted to the full length term. I'm trying to type "D" followed by "H". 
    • trents
      Welcome to the forum, allis! By "skin response to gluten products" are you saying you develop a rash when you use lotions, creams, shampoos, etc. that contain gluten? One of the classical symptoms of celiac disease is a skin rash known as dermatitis herpetiformis or "dermatitis herpetiformis" for short. Celiac disease is the only known cause for dermatitis herpetiformis. It has a distinct appearance. It has little blisters or pustules in the bumps. Does this sound like what you experience? Is so, it might be possible to get a punch biopsy done when you are having an outbreak. This would be an alternative to eating gluten. If your skin biopsy was positive for dermatitis herpetiformis you could be diagnosed with celiac disease on that basis alone. Apart from that, I know of no other way to get a diagnosis apart from returning to eating gluten for a period of weeks.
    • allis
      Hi folks, I have type 1 diabetes and was having some serious digestive symptoms about ten years ago, and my endocrinologist (who sees a lot of type 1s with celiac) told me to assume I was celiac and be gluten free from now on. I’ve been doing so since then, but my skin response to gluten products has been getting worse and worse so I was hoping to get a diagnosis. However, my general practitioner and my endo both told me that to get a celiac dx I would have to eat gluten for six weeks for the antibody test to work! That would make me so sick and unable to work! Is there any way to get a celiac dx through a combination of other tests? Should I give up on seeking a dx and just be more careful about skin contact? Thanks in advance ❤️
    • Jsingh
      Hi, Were you able to get a response from them? I have written to Nuts.com asking info. om how to they test, etc. I am awaiting a reply. And, my daughter is allergic to tree nuts, so we only buy their straightforward organic dried fruits sans any preservative/additives.
×
×
  • Create New...