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- trents replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Not sure if this is Celiac or just a gluten-free intolerance
A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the... -
- chrish42 commented on Scott Adams's article in Latest Research12Impact of a Gluten-Free Diet on Gut Function and Microbiome in Celiac Disease (+Video)
I tend to agree. I just wanted to pass it along for what it's worth. Thanks!- bifidobacteria
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- MomofGF replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Not sure if this is Celiac or just a gluten-free intolerance
Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer. so we got a blood test done for my daughter that can... -
- trents commented on Scott Adams's article in Latest Research12
Impact of a Gluten-Free Diet on Gut Function and Microbiome in Celiac Disease (+Video)
I'm very skeptical. The presenter makes statements that reflect a total misunderstanding of the nature of celiac disease. He talks about being "cured" of celiac disease. There is no cure for it in the sense of making it go away. Once the genes are switched on such that the genetic potential to develop celiac disease becomes actual celiac disease, drinking...- bifidobacteria
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- Scott Adams replied to mark w's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2Query
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the testing. Was there a blood test done for IGA deficiency? Can you post the test names that were done with the scores and with the reference ranges used by the lab? By the way, with celiac disease the issue is not being able to digest gluten. Celiac disease is an autoimmune disorder defined by the fact that ingestion of gluten triggers an immune system response that attacks the membrane that lines the small bowel. The immune system mistakenly identifies the protein gluten as a biologic invader. -
Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer. so we got a blood test done for my daughter that can’t digest gluten. She had been eating gluten for 2 weeks. The blood work came back normal? How is that possible. I see her with my own eyes and it’s not normal. Is that not long enough? I am thinking about having her eat gluten another week then go to the hospital and see what they say. She did have 3 gluten-free days in those 2 weeks but she was getting afraid to eat and I told her to may take a day off - was this a bad thing to do? Girl was having constant back pains and muscle soreness as well. Headaches/migraines…should I wait longer. I did see 4-6 weeks of Gluten consumption prior to testing… kind of at a loss now. Thanks to everyone for whatever advice you can give. Enjoy your Sunday 😃👋👋
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By Scott Adams · Posted
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
By Scott Adams · Posted
Here is a category of study summaries on the relationship of Type 1 diabetes and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/diabetes-and-celiac-disease/ This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20. This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any additional information?
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