Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Issues Losing Weight


cherishlife

Recommended Posts

cherishlife Rookie

I have been attempting to eat a gluten free diet for the past eight months. I learn more and more and realize, it has not been 100%, but I am working on it. My questions is: Has anyone else experience problems with weight gain or extreme difficulty losing weight? Most people I read about lose weight, which at different times in my life, I did lose extreme amounts of weight. However, now that I am eating the diet, I actually gained weight and now trying to lose it!!! If any one has ever experienced this or have any information for me I would greatly appreicate it. I have a nutrition background and I am very careful about what I eat and how much. I feel like my metabolism has stopped!!! Thanks!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Authentic Foods



Celiac.com Sponsor (A8-M):
GliadinX


curlyfries Contributor

It's hard to know if I'll be any help, since I don't know what you're eating.

I gained 10 lbs while *trying* to be gluten free. It was a long learning process. I have now lost 23 lbs. I was having reactions to sugar, so when I cut that out, I started losing weight. This included fruit...which I dearly miss....rice, and pretty much everything made with rice.( It turns to sugar rather quickly) I have been losing the weight at about 1 lb a week. This has been awesome for me as I have been overweight for a long time. I am hoping I will be able to add sugar back eventually, but will only do it in limited amounts.

purple Community Regular

High Fructose Corn Syrup, HFCS, can make you gain weight. Its in everything. Like ketchup, syrup, BBQ sauce, other sauces, drinks, soda pop, some canned goods- tomatoes, etc. See if you are consuming any.

Diet pop can make you can weight too. :rolleyes:

ShayFL Enthusiast

When I used to want to lose weight (when I was heavy) I would cut ALL dairy and ALL sugar (I still ate fruit) and the pounds would just melt off........

That meant no sugar, syrup, honey, high fructose corn syrup, etc.

Sweetfudge Community Regular
  curlyfries said:
It's hard to know if I'll be any help, since I don't know what you're eating.

I gained 10 lbs while *trying* to be gluten free. It was a long learning process. I have now lost 23 lbs. I was having reactions to sugar, so when I cut that out, I started losing weight. This included fruit...which I dearly miss....rice, and pretty much everything made with rice.( It turns to sugar rather quickly) I have been losing the weight at about 1 lb a week. This has been awesome for me as I have been overweight for a long time. I am hoping I will be able to add sugar back eventually, but will only do it in limited amounts.

what flours do you bake with (what's a good rice sub)? what do you do to satisfy a sweet tooth? i've cut out sugars (temporarily, to help lose 15 lbs), but not rice or fruit.

  ShayFL said:
When I used to want to lose weight (when I was heavy) I would cut ALL dairy and ALL sugar (I still ate fruit) and the pounds would just melt off........

That meant no sugar, syrup, honey, high fructose corn syrup, etc.

i've been doing this for almost 3 weeks...have only lost 1.5 lbs. ><

MyMississippi Enthusiast

Some medications make it difficult to lose weight---- have you started any new ones?

curlyfries Contributor
  ShayFL said:
When I used to want to lose weight (when I was heavy) I would cut ALL dairy and ALL sugar (I still ate fruit) and the pounds would just melt off........

I forgot to mention that I also had to cut out all dairy. I am now able to tolerate cheese but only eat it occassionally.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
NutHouse! Granola Co.
GliadinX



Celiac.com Sponsor (A8-M):
Food for Life


glutenfreewithease Rookie
  cherishlife said:
I have been attempting to eat a gluten free diet for the past eight months. I learn more and more and realize, it has not been 100%, but I am working on it. My questions is: Has anyone else experience problems with weight gain or extreme difficulty losing weight? Most people I read about lose weight, which at different times in my life, I did lose extreme amounts of weight. However, now that I am eating the diet, I actually gained weight and now trying to lose it!!! If any one has ever experienced this or have any information for me I would greatly appreicate it. I have a nutrition background and I am very careful about what I eat and how much. I feel like my metabolism has stopped!!! Thanks!!!!

I would love to find an answer to your question! I'm in the same boat. In 3/2006 when I was at my worst and went gluten free I was weighing about 200lbs. I went on an wlim diet, eliminating just about everything, but lettuce and dropped to 156 by 2/2007. Now, I can't lose any more. I'm stuck. I eat honey in my tea, stopped eating rice and white potatos. I eat fruit because without it I get constipated. I have not tried Benefiber or anything like it. I might because both of my girls are suffering with the constipation as well and I need to adjust. I cut all fruit out at the beginning and I think when I added it back to my diet attempting to the food combining, this has thrown me off. I have this thought that because it is fruit-it should be good for me. However I think I need to try cutting it out again.............

elye Community Regular

While it is possible to take weight off without exercising at all, it remains difficult. This could be all you need...... . . ...a pound of body weight equals roughly 3,500 calories. Therefore, eliminating 500 calories per day from your diet, whatever way you can, will result in a pound loss per week. If you've eliminated as much food as you comfortably can, then exercise is the other way to eliminate calories. Not to mention what it does for you emotionally and cardiovascularly! It's no lose. .. .. ... :)

Low thyroid can also make people hang onto excess weight - - it did me. Low thyroid levels seem common with celiac disease. Have you had your levels checked?

glutenfreewithease Rookie
  elye said:
While it is possible to take weight off without exercising at all, it remains difficult. This could be all you need...... . . ...a pound of body weight equals roughly 3,500 calories. Therefore, eliminating 500 calories per day from your diet, whatever way you can, will result in a pound loss per week. If you've eliminated as much food as you comfortably can, then exercise is the other way to eliminate calories. Not to mention what it does for you emotionally and cardiovascularly! It's no lose. .. .. ... :)

Low thyroid can also make people hang onto excess weight - - it did me. Low thyroid levels seem common with celiac disease. Have you had your levels checked?

Well, you had to mention the one thing that is realllllllllllllly hard! Exercise! LOL Yea a bit more of that wouldn't hurt huh! :D

ShayFL Enthusiast

I do exercise everyday (almost) and have for over 20 years. It does REALLY help.

Rya Newbie

You're metabolism may well have slowed down. The idea behind that is...if you've been consistently or at least frequently getting gluten, you're intestines are compromised, no two ways around it. That means you're probably not absorbing the nutrients you need. This can cause you're body to think it's starving, or going into a long period with very little food. It will slow down metabolism to conserve energy. If this is the case, severely cutting calories can worsen the problem.

To increase your metabolism - or lose weight in general - building lean body mass is the way to do it. (i.e. exercise.)

Another idea is a food scale. It takes a lot of the guesswork out. I recently found out I underestimated my bananas by 100 calories! Ooops :rolleyes:

Also, just a side note, fruit sugar is metabolized a little differently than table sugar. I wouldn't cut it out unless you're reacting adversely to it just because it's so nutritious.

anemonegirl Newbie

I'm no doctor and I don't even play one on TV, but I've read that as your intestines heal, they begin to absorb nutrients (calories) and you can gain a little weight or simply maintain. Now don't quote me on that because I can't even remember where I saw it.

The other thing that often happens is that newly diagnosed Celiacs discover all of the gluten-free goodies (high carb, high calorie cookies, etc.) out there and go on a free for all in the beginning. I'm guilty of that one.

I'd vote for the first theory though. Your villi are just sucking up all of that good nutrient rich food now that they can.

~Anemonegirl

mftnchn Explorer

I've struggled with weight too and I don't think I have all the answers but...I am one who lost weight after going gluten-free and SF. What I have learned is that the malabsorption I had from the celiac put my body in starvation mode, and it just would soak up everything I ate and turn it to fat. I have still been losing but slowed down a lot, and still at 20-30 pounds overweight. Then started SCD in mid July and it is melting off. 10 pounds or more so far.

The SCD addresses carbohydrate maldigestion and the resulting problems. I knew I was carb sensitive but just found it so hard to maintain a totally low carb diet for the long haul.

So I was shocked to find I would lose weight so quickly on the SCD while eating pretty good amounts of honey and also some fruits as well as more fat in nuts, yogurt, butter, eggs, meat, etc.

You might check into having stool testing to look at the sugar content; the carbs should break down to simple sugars in the upper GI and then all be absorbed so little or none is excreted. If it is excreted then there is a problem. It could be keeping your intestine from healing well enough even if your symptoms are improving on gluten-free.

glutenfreewithease Rookie
  mftnchn said:
I've struggled with weight too and I don't think I have all the answers but...I am one who lost weight after going gluten-free and SF. What I have learned is that the malabsorption I had from the celiac put my body in starvation mode, and it just would soak up everything I ate and turn it to fat. I have still been losing but slowed down a lot, and still at 20-30 pounds overweight. Then started SCD in mid July and it is melting off. 10 pounds or more so far.

The SCD addresses carbohydrate maldigestion and the resulting problems. I knew I was carb sensitive but just found it so hard to maintain a totally low carb diet for the long haul.

So I was shocked to find I would lose weight so quickly on the SCD while eating pretty good amounts of honey and also some fruits as well as more fat in nuts, yogurt, butter, eggs, meat, etc.

You might check into having stool testing to look at the sugar content; the carbs should break down to simple sugars in the upper GI and then all be absorbed so little or none is excreted. If it is excreted then there is a problem. It could be keeping your intestine from healing well enough even if your symptoms are improving on gluten-free.

What does SCD stnd for?

  • 1 month later...
Maryruth1035 Newbie
  Sweetfudge said:
what flours do you bake with (what's a good rice sub)? what do you do to satisfy a sweet tooth? i've cut out sugars (temporarily, to help lose 15 lbs), but not rice or fruit.

i've been doing this for almost 3 weeks...have only lost 1.5 lbs. ><

I've been on a gluten free and low carb diet now for about 4 years. The only time I gain weight is when I reintroduce LARGE amounts of carbs. I've found some good gluten-free low carb cookbooks that use stevia as a sweetner and coconut flour, almond flour and other flours that are made from lower carb sources instead of the more carbohydraqte rich grains. There are also an increasing number of recipes made with splenda liquid (not the crystaline form which is 1/2 table sugar and 1/4 maltodextrin). You can get the DiVinci sugar Free sweetner now where the DiVinci syrups are sold--I buy mine at Sams Club. Also there are recipe books for cooking with coconut flour and for lowcarb gluten free 'comfort foods.' You can find many sources for these books online (like at Amazon if you trade with them).

Wheras whole fruit in moderation is not as threatening to weight loss, Rice is basically the same to your body as table sugar. Your body qiockly converts the starch in rice directly to glucose in your blood--thus you have a rapid insulin response and store the sugar--eventually as fat. Other starchy components of many recipes--potatoe flour, sorghum flour, etc. should be avoided if you're trying to loose weight (and for that matter white potatoes and corn should also be avoided.)

On the other hand, the sugars in whole fruit--especially fruits that are relatively high in fiber, such as apples, apricots, plums, berries of most kinds, etc. are actually not absorbed as quickly (the higher the fiber content in the fruit, the more slowly it cause a blood sugar rise) and will not stall weight loss as quickly as starches and sugars will.

As regards to sweet tooth--small amounts of bittersweet chocolate, if you like it, are usually OK. I do not know whether or not you eat eggs, but a flan (mexican custard) made with artifical sweetner (stevia or splends liquid) is one of my favorites--you can make it in the microwave even. Just combine 4 eggs with 1/2 C of milk or soy milk, blend with nutmeg or pumpkin pie spices, then sweeten to taste with an artificial sweetner that withstands high heat, place in a microwavable large bowl (the custard will double in size before it is done) and microwave on 40% (watching carefully) until just before it boils. If it boils it is not ruined--but will not have as creamy a texture. Sometimes I'll even have flan for breakfast! Yum!

Other sweet tooth choices--artificially sweetened Jello, Pop-sickles, a spoonful of peanut butter with a dab of low sugar jelly...there are lots more ideas out there, hopefully you'll get some other good postings.

  • 3 weeks later...
CurveSpaz Newbie

"I've found some good gluten-free low carb cookbooks that use stevia as a sweetner and coconut flour, almond flour and other flours that are made from lower carb sources instead of the more carbohydraqte rich grains. "

Could you mention what cookbooks you are referring to? After 3.5years low-carbing, I was maintaining an 80lb weight loss. Pregnancy, followed by a celiac diagnosis put 30 of those back on, and I am having a hard time finding recipes to satisfy both needs; low-carb and gluten-free. Thanks.

ShayFL Enthusiast

I didnt read the whole thread....but have you had your Thyroid checked?

And for me....dairy makes me gain weight like crazy. But it is edema (water weight), so as soon as I stop the dairy it melts away. Usually very quickly too. I need a few pounds as I am a thin gluten intolerant, but I dont want puffy water. :(

Just some thoughts.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Little Northern Bakehouse
    NutHouse! Granola Co.




    Celiac.com Sponsors (A17-M):

    Food for Life



  • Recent Activity

    1. - MichelleGrant replied to MichelleGrant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Months of diarrhea - Testing question

    2. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    3. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    5. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      128,772
    • Most Online (within 30 mins)
      7,748

    Shannon12
    Newest Member
    Shannon12
    Joined

  • Celiac.com Sponsor (A20):
    Authentic Foods


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Smith & Truslow



  • Upcoming Events

  • Posts

    • MichelleGrant
      I received my blood test results for celiac serology (attached file). Results were negative. Only thing not great is CRP at 5mg/L (indicating inflammation), High ferritin at 165 (also indicating inflammation). My doctor said to keep following a strict gluten-free diet and that my tolerance to gluten seems to have gotten worse, and created inflammation with all the diarrhea/ stomach issues. She said to also stay away from my other triggers which are alcohol, soy, legumes and some vegetables (eg. cabbage / cauliflower / brussel sprouts). I generally follow a low fodmap diet. The gluten-free diet is going well - things are returning to normal.
    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw...
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200...
×
×
  • Create New...