Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling So Sick After Going gluten-free


climbmtwhitney

Recommended Posts

climbmtwhitney Apprentice

Hello all.

O.K., so I'm completely new at this. My 10-year old daughter and I were diagnosed celiac last month -- which explains SO VERY MUCH!

Anyway, my daughter and I both felt great for about a week after going gluten-free. Then she went through withdrawl for about a week. Now she's feeling better each day. But I am NOT! I feel achy all over, headaches, terrible night sweats, really tired & cold, irritated throat, on and off grumpy, etc. It's been nearly 4 weeks since I went gluten-free. When will this end? My husband (gotta love him anyway) is really losing patience. I know I need to stick with this. I realize everyone is different, but on average, am I in for a few more weeks of this or months? Please help.

Thanks!

Sonya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It took me a SOLID 6 weeks to get through all that crap.....then I started feeling MUCH better!!

Hang in their sweetie....there is light at the end of the tunnel. :)

Just be mindful to avoid CC. Dont eat out and muck it up. Stay focused. Tell your husband that once you get through the poop, he will have a new and improved wife. Might even make you more frisky. ;) This might help him be more patient.

Lisa Mentor

Hi Sonya,

I would revisit your diet. Check you meds, vitamins, shampoos, makeup and lipsticks. In other words, anything that can get near or in your mouth.

Do you have a dedicated toaster just you for you and your daughter. Wooded spoons, scratched pots and pans, wooded cutting boards and colanders can be a good source for hidden gluten.

It is near impossible to begin this diet and be knowledgeable of every sneaky source. It took me many months to master the diet, and mistakes were frequent.

If you have any specific concerns, please feel free to ask.

And welcome to the Club!

climbmtwhitney Apprentice

Thanks much for the advice and hints! 6 weeks is a LONG time. Crap.

Here's another question.....If I handle, cook, prepare foods that have gluten for my other 2 children and my husband, is that cross contamination? Would that be different than using a gluten-containing hand creme for example? I did get a gluten-free toaster, cutting board, pots/pans, etc., but I'm still handling the gluten food for others. I do wash my hands a lot when I'm cooking, but should I not be handling the regular food at all? Thanks!

ShayFL Enthusiast

I wouldnt use ANY gluten containing "flours" in your house EVER. That stuff gets everywhere. Personally, I didnt want to have to always worry and feel sick, so I took my whole family gluten-free (including the dogs). There needs to be one place in the world where I can feel safe. It is my home.

Check your fingernails. Dont use teflon that has had ANY gluten foods in it. Same for cutting boards.

Amyleigh0007 Enthusiast

It is much easier to have a completely gluten free home. That's what we did after my son was dx.

Lisa Mentor

I can handle gluten, but I am always careful to wash my hands well and wipe down any counter top that is used.

I don't impose my restrictions on my husband and he is always courteous of mine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Puddy Explorer

I, too, handle gluten items with no problem. But like Momma Goose, I am very careful to wash my hands and wipe up crumbs.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,065
    • Most Online (within 30 mins)
      7,748

    George North
    Newest Member
    George North
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sicilygirl
      Hello,   Just wondering if anybody can help me out with energy levels. I am taking iron, vitamind3 and multivitamin as well and I cant seem to get back to how I was before. How long do the villi take to heal? I am in my 50s and I read somewhere that it can take longer to heal. I just got diagnosed in October2024 and I am brutely impatient any help would be greatly appreciated. Sophia  
    • cristiana
      HI @Kwinkle I am not sure where you are posting from, but here in the UK it is most definitely gluten free.  I think you ought to try contacting the manufacturers or distributors locally to see what they say.  Cristiana https://www.boots.com/gaviscon-peppermint-liquid-relief-oral-suspension-300ml-10023763#:~:text=or during pregnancy.-,This product is sugar free and gluten free.,are pregnant or breast feeding.
    • Lotte18
      Hi Matt,  So sorry you're having to suffer all this.  I'm just chiming in on your dairy question because the answers are often far from what we or our doctors assume.  For example, I thought I could go back to having dairy once my intestinal villi healed.  I was fine for about 8 months.  And then I wasn't.  Started having weird issues with maintaining my balance while walking.  Even my PCP who has celiac didn't relate it to dairy.  Had to have a second endoscopy with enzyme testing.  Sure enough my pancreas no longer produces enough Lactase to process lactose.  My GI just brushed it off as, "common for people with celiac."    I'd never seen or heard that before.  I should have pressed him on it.  Common for celiacs who are women?  Common for celiacs of a certain age group?  But I was so surprised I didn't say anything.  Maybe Scott has more information on celiac and pancreatic function.  At least I'm back to walking upright!  
    • Kwinkle
      Hi Christina, i’m interested in this gaviscon Dimension but when I look it up on Amazon, I don’t see that it says it’s gluten-free?   Thank you Sorry, not dimension - it was supposed to say ‘that you mentioned’. Duh 🙄 
    • Matt13
      Hi Deanne! Thanks for support but mu other EGD show normal VA (but some of the samples were not readable) but overall normal egd so after 1 year there is normal villi. I am glad that You solved our problem. Kind regards, matt
×
×
  • Create New...