Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

She Ate Fruit Loops Today


sugarsue

Recommended Posts

April in KC Apprentice

Juliebove, the Trix I saw tonight at Minimus.biz contains "wheat starch" (last ingredient). Hope I'm wrong about that...but I wanted to let you know. - April

P.S. Thanks for the minimus tip, though...I have been wanting a source like this for convenience sized travel kits.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kat'sMommy Newbie

Hello there, I really relate! My daugter is now 7. She has been gluten free for about 15 months and WOW what a difference. During the first few months (seriously months) there were days that I thought I would never figure this thing out! Let me tell you just a few encouraging things.

First, my daughter loves her "diet". It took awhile but we have substitutes and safe options for nearly everything.

No more stomach aches or asthma.

So much energy, seriously this child could go and go and go.

When she was gluten free her focus became so much better that within 6 weeks she could read. We

homeschool and she could tell you everysound that every letter made, but stringing them together came and went. It was a focus issue it seems. One year later she reads 2 years above grade level.

Over the course of the year the families we meet together with for a one day a week co-op have learned so much and are so willing to help. Several are even taking this road now to see if it will help with ADD so they can avoid the meds.

No more body pain (which we did not even know she was having until it went away.)

Also, she has grown over 6 inches in the last year. We never realized she was short because she was at the 50%, ofcourse Daddy is 6 foot 5. So, 50% was short for her. She is tall and thinner (she was very inflamed - infact she lost a shirt size in the first 6 weeks!)

She has been glutened, one time she ate an entire piece of cake that we thought was gluten free. That was a horrible experience. An adult Celiac that I became aquainted with told me. Things will happen don't beat yourself up you are doing everything you can to make her healthy and happy. He said he glutens himself.

There are days when I wish I could call Pizza hut instead of making a pizza from scratch, though I must say with experimentation they are becoming pretty good. I get tired of taking everything with us to birthday parties and such. I have cried. But, it is so worth it.

I also rejoice! Yesterday I pulled in the driveway to see my 7 year old moving branches with her father from a newly trimmed tree. She was grinning and dripping in sweat! We live in Florida. She went on to climb trees and play outside for several hours. She looked and sounded so healthy.

We came in the door to pork roast from the crock pot, rice and veggie - pretty normal.

Life can be better gluten free than you would ever imagine. And when I start to think...wow I would really like a donut, I go to the health food store and buy a pack of gluten-free donuts.

We can do it day by day, but we don't learn anything overnight. Give yourself grace and forgiveness and know that over the days and weeks it becomes easier.

This forum is invaluable. I don't write often, but I search and read. Knowing I am not alone is wonderful.

I have gone on long enough. I hope this helps.

PS. Gluten every couple of months would not be a good idea - sorry.

mymagicalchild Apprentice
My son AND all his gluten-eating friends love the pizzas I make on corn tortillas.

The trick is to heat them for 1-2 minutes per side in a preheated pan sprayed with PAM before topping and broiling. This makes them nice and crispy (they'll look a little "blistered").

After you heat them, stick them on a coolie sheet (sprayed with PAM), top with your favorite sauce, cheese, and toppings, and stick under a broiler for 1-2 minutes until the cheese is bubbly and just starting to brown.

It's faster and cheaper than Domino's, and I can't make'em fast enough for the boys!

If you want a thicker crust, sandwich a piece of provolone (comes in a round shape like the tortillas) between 2 tortillas, then heat the "sandwich" on both sides, and top and broil like above.

I CANNOT wait to try this. I use tortillas all the time and never thought of using them for the one dish missing from my diet.

The other day I read on another topic that Trader Joe's has gluten free fresh french rolls. I literally floated out to the car on a French Dip Anticipation Cloud, arrived at our Trader Joe's in downtown San Diego, and found no French Rolls there. Went to another Trader Joe's at Liberty Station. Those nice folks checked their computer. Only available in the mid-West and East Coast from the distributor that services that area. DARNNN! (I did buy their brown rice tortillas. They might make a nice pizza crust, too!)

We then went to a newly opened pizza restaurant that charged over $20 for a medium-sized gluten-free pizza that tasted like tomato and cheese on compacted sand. Yuck!

dilettantesteph Collaborator

My son was 10 when diagnosed and threw up and felt awful for months before being diagnosed, so he understands the diet better. Nevertheless, let me suggest that you take kids shopping and let them pick out all the gluten free treats you can: Kininikinnick donuts are really good. Also ice cream, cookies, candy, pizza, soda. When you have something else to substitute it really helps. It was also nice at first to see my totally skinny son get a little fat. I guess I need to cut out some of those treats now!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Bebygirl01's topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - Bebygirl01 posted a topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    3. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    4. - knitty kitty replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    5. - knitty kitty replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,006
    • Most Online (within 30 mins)
      7,748

    anjie patterson
    Newest Member
    anjie patterson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
×
×
  • Create New...