Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Help For Infractions?

SilverSlipper

By SilverSlipper
in Coping with Celiac Disease

Recommended Posts

SilverSlipper Contributor
SilverSlipper
Posted

My daughter was diagnosed in February/March of this year with Celiac Disease. She is 7 yrs old. She has very severe reactions to gluten in the form of abdominal cramping. Usually her diet is not a problem, but she had an infraction yesterday, I believe to Erewhon rice cereal. One of the ingredients is organic barley malt which I believe is a big no on her diet. She spent the entire night absolutely miserable (and I was miserable along with her since I didn't double-check the ingredients). Is there anything that can be done to make her feel better once we realize that she has eaten something she shouldn't? Thanks in advance for any help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
My daughter was diagnosed in February/March of this year with Celiac Disease. She is 7 yrs old. She has very severe reactions to gluten in the form of abdominal cramping. Usually her diet is not a problem, but she had an infraction yesterday, I believe to Erewhon rice cereal. One of the ingredients is organic barley malt which I believe is a big no on her diet. She spent the entire night absolutely miserable (and I was miserable along with her since I didn't double-check the ingredients). Is there anything that can be done to make her feel better once we realize that she has eaten something she shouldn't? Thanks in advance for any help.

I know a lot of people use activated charcoal to help cleanse the system and shorten symptom periods. you might try some digestive enzymes as well.

For the future, Erewhon puts gluten free on the front of their safe cereals as far as I know.

Guhlia Rising Star
Guhlia
Posted

I don't know about for a 7 year old, but Red Bull is a life saver for me when I'm glutened. I also have an anti-spasmodic prescription for really bad glutenings. It takes away most of the stomach cramping. Other than that, lots of sleep and lots of love are about all that takes the edge off for me. I hope she's feeling better soon!

SilverSlipper Contributor
SilverSlipper
Posted
  • Author

Thank you both :) I have digestive enzymes here that I use with my oldest daughter (who has autism and many food sensitivities). I just gave my daughter one and I'm hoping that helps. When I go to the store later (after my husband is home to watch the girls), I'll pick up some activated charcoal to keep on hand. I'm also going to see if our gastro can prescribe something to help with the crampings. She's had about three reactions since diagnosis and they all included some very excruciatingly painful crampings.

Thank you so much for replying. :)

YoloGx Rookie
YoloGx
Posted

I find bromelain/papain and pancreatin enzymes really help plus enterically coated acidophilus. It also helps me and a friend of mine to go on a detox--use dandelion root and either yellow dock or oregon grape root. I also like to use cleavers or echinacea as lymphatic cleansers. Don't use alcohol extracts by the way since they use grain as a base usually for the alcohol. Caps or glycerin tinctures or just boil the roots up yourself. Another good thing to try is liquid chlorophyll in water. Make sure its the kind that is made only from alfalfa--no wheat or barley grass anything! Vigorous exercise when she can handle it will also help. Ditto with saunas.

As far as soothing and healing the gut, I have found marshmallow root caps and slippery elm caps (or powders mixed in water; you can also make a gruel with the slippery elm) are amazing. They both are anti inflammatory and specific to healing the intestines.

Pepto Bismol is soothing too, however for me I discovered that my black stools afterwards were a bad sign -- indicating that it made me bleed. I am very allergic to asperin, apparently a big ingredient in Pepto Bismol. They list it as salicylates.

Bea

ek327 Newbie
ek327
Posted

FYI. pepto bismol has bismuth in it which, in its natural state, is black. it turns almost everyone's stool black.

quote name='yolo' date='Sep 19 2008, 12:30 PM' post='468210']

I find bromelain/papain and pancreatin enzymes really help plus enterically coated acidophilus. It also helps me and a friend of mine to go on a detox--use dandelion root and either yellow dock or oregon grape root. I also like to use cleavers or echinacea as lymphatic cleansers. Don't use alcohol extracts by the way since they use grain as a base usually for the alcohol. Caps or glycerin tinctures or just boil the roots up yourself. Another good thing to try is liquid chlorophyll in water. Make sure its the kind that is made only from alfalfa--no wheat or barley grass anything! Vigorous exercise when she can handle it will also help. Ditto with saunas.

As far as soothing and healing the gut, I have found marshmallow root caps and slippery elm caps (or powders mixed in water; you can also make a gruel with the slippery elm) are amazing. They both are anti inflammatory and specific to healing the intestines.

Pepto Bismol is soothing too, however for me I discovered that my black stools afterwards were a bad sign -- indicating that it made me bleed. I am very allergic to asperin, apparently a big ingredient in Pepto Bismol. They list it as salicylates.

Bea

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,848
    • Most Online (within 30 mins)
      7,748
    Brenda Louise
    Newest Member
    Brenda Louise
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Years of testing - no real answers

      By knitty kitty · Posted

      The intestinal tract can be as long as twenty-two feet long, so intestinal damage may be out of the reach of endoscopy tools.  Some people have had more success with capsule endoscopy, but this method cannot take biopsies.  
    • knitty kitty
      What should I do with these test results?

      By knitty kitty · Posted

      @Jack Common, It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ For clarification, the weight of your slice of bread is not equal to the amount of gluten in it.   Gluten helps form those big holes in breads, so breads like thick chewy pizza crust and artisan breads contain more gluten than cakes and cookies.  
    • knitty kitty
      Guidance on next steps after the lab tests

      By knitty kitty · Posted

      Sorry about that link.  It was meant for a different post.   Do consider taking high dose Vitamin D in order to get your level up to around 80 nm/l quickly.   This is the level where Vitamin D can properly work like a hormone and can improve the immune system and lower inflammation.  It makes a big difference.   I took high dose Vitamin D and really improved quickly.  I ate Vitamin D supplements throughout the day like m&ms.  My body craved them.  Very strange, I know, but it worked.   Before you have surgery, you really need to improve your vitamins and minerals.  Vitamins A and D, Vitamin C and Niacin are extremely important to skin health and repair.  Without these, the body does not repair itself neatly.  I've got a scar worthy of a horror movie.  My doctors were clueless about nutritional deficiencies. A sublingual Vitamin B12 supplement will work better for boosting levels.  Tablets or liquid drops in the mouth are easily absorbed directly into the blood stream.   Do bear in mind that about half of Celiac people react to the protein in dairy, Casein, the same as they react to gluten because segments of the protein in Casein resembles segments of the protein Gluten.  Some people lose the ability to produce lactase, the enzyme that digests Lactose, the sugar in dairy, as they age.  Others lose the ability to produce lactase because the intestinal Villi become damaged during the autoimmune response against gluten, and damaged chili can't produce lactase.   Do try Benfotiamine.  It has been shown to improve gastrointestinal health and neuropathy. Keep us posted on your progress!
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      Thanks sending me additional links including how to test for thiamine deficiency. With regards to your first link, I wasn't diagnosed with giardiasis and I didn't take antibiotic for it. I try to generally stay away from antibiotic unless absolutely necessary as it might affect gut health. For treating phimosis, the doctor didn't give me antibiotics. I need to have a circumcision surgery which I haven't got around to schedule it.
    • ABP2025
      Guidance on next steps after the lab tests

      By ABP2025 · Posted

      I'm not vegan, just vegetarian. I consume dairy but not egg. So I have started including some Vitamin D fortified milk as well as a multivitamin with 2000 IU daily. For Vitamin B12, like you said it's very difficult to get it from just vegetarian sources and have started consuming Vitamin B Complex daily. My PCP was worried when my Vitamin D result came out as It was 3.7 ng/ml last year. He said that being low for a lengthy time could have done some damage to the body over the years. Now, though Vitamin D level has improved after the supplements, I'm not sure if the neurological damage has already been done. I'll continue including the supplements and see if my symptoms improve. I'll also get tested for celiac to see if I need to be in gluten-free diet.
×
×
  • Create New...