Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes I Can Tolerate Carrageenan, Sometimes I Can't?


Pyro

Recommended Posts

Pyro Enthusiast

Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Right after I posted this, I read the health concerns found here:

Open Original Shared Link

Hmmmm... Still I wonder why we do fine with it at least some of the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

sickchick Community Regular

I can't tolerate soy lecithin OR carageenan... and it makes me crazy! :) HAHAHA

Pyro Enthusiast
Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

Wow, maybe! Though soy sauce, soy ice cream, tofu, and lechitin don't seem to bother me.

mslee Apprentice

I'm wondering about these too.

Seems like they both cause problems, I've been using rice milk and it seems ok

this is so weird, really we just experiment with all these things until we can tell what exactly is the problem ingredient???

I tried making an allergist apt and they had never heard of celiac, the lady wanted to know if it was something they put in food. They other office I called said they had never heard of it either and that if any of my allergy tests came back neg. my insurance would not cover them.

guess I have more phone calls to make.

Is there any other option???

RiceGuy Collaborator

There's also the possibility of CC, which can vary from batch to batch. So one time it might bother you, and the next time not.

But anyway, if you have a blender, you can make your own nut/rice/soy milks. It'll save you money, and you get to choose the ingredients. Some xanthan gum or guar gum works fine in most cases. I've done this many times.

  • 2 years later...
Austin Guy Contributor

I got glutened this morning and paid the price in the bathroom, but started feeling better more quickly than usual. Then I had canned soup late in the day that contained carrageenan, which I knew nothing about. I was in the bathroom several times within 25 minutes just as if I had been glutened again.

I have had the same soup when feeling non-glutened a couple of weeks ago and was fine. Is my reaction to this stuff perhaps turned up a notch because of accidental gluten ingestion? Can getting glutened make people more sensitive to other food products? Seems like it would.

Still so very new to this - some adventure!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748

    Terry49
    Newest Member
    Terry49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...