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Glutenease


Sugarfunk

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tom Contributor
The theory of breaking up and thus deactivating the protein is interesting.

Theory/Fable

Toe-may-toe/toe-mah-toe

Why is this conversation mean and competitive?

Is it?

I'm just making what I feel are very worthy points.


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  • Replies 297
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tom Contributor
Thank gawd someone else understands what I am saying.

I think we all understood what u said.

The reason I feel you were bashing on me was, you specifically quoted me to discredit every thing I said. You could have said something to the effect of you can try the product if you choose, but to me it's not worth a stomach ache.

I don't see what the problem is.

Each statement that I felt deserved a comment, got one.

If it discredits what you said, then as a newbie reads the thread, my mission is served.

It doesn't matter to ME who writes something I feel a need to comment on. I just quote & go.

Don't take it personally.

Stating your opinion, does not prove or disprove whether the product works. I may not have any proof it works, but you don't have any proof it doesn't. Bottom line.

Is this an Orwellian moment? Are all opinions equal?

Or is a more learned opinion 'more equal'.

This is science and logic.

The phrase "don't have any proof it doesn't" is an example of a type of fallacy in both science and formal logic. (Wish I remembered what they call it . . . . . )

I say you "don't have any proof" my talisman ISN'T the reason Omaha doesn't have elephants.

Again, I'm sorry if u take this personally and see me as the rudest celiac ever(!).

I'm not. :)

Guest Doll
Hi Doll,

While I do believe many celiacs develop leaky-gut, it's not the primary mechanism in celiac-related problems.

To me, having been greatly affected by both, they are two very separate issues.

The leaky-gut problems are most often not noticed until after a celiac has been gluten-free for a while.

There are also many celiacs who don't develop leaky-gut.

Gliadin (and hordein & secalinin for barley & rye) is responsible for all the celiac-related damage in every system of the body, without any assistance from leaky-gut. Some may see that as opinion, but I think anyone w/ enough research under their belt will agree.

W/ leaky-gut, many types of partially-digested foods can get through to the bloodstream. I suppose also some whole proteins if the size matches up w/ the amount of intestinal permeability.

I have to respectfully disagree here. All current medical research (search Pub Med) suggests that the point of entry for ALL triggers of autoimmune diseases (or most anyway) appears to be in the gut. Evidence supports the theory that all people with autoimmune diseases have a leaky gut, and this is an early step in the autoimmune disease process. Without a leaky gut, those triggers just won't get in...or not in large enough amounts. Of course this is still a theory, but it seems to have data to support it. The leaky gut IS one of the crucial roles in autoimmunity. Alba's AT-1001 is in trials to prevent Celiac and Type 1 diabetes by closing the leaky gut. Apparently almost all people with autoimmune diseases produce excess zonulin, which causes the leaky gut.

i think it is possible to have a leaky gut and not have an autoimmune response (i.e. this may be what non-celiac gluten intolerance is...they lack the genetics for an autoimmune response to gliadin but still have an "allergic" type reaction), but not to have an autoimmune disease and not have a leaky gut.

I would think that by default, all Celiacs have altered intestinal permeability and a leaky gut to at least *some* extent. Once gluten is removed, it is possible for Celiacs to now create antibodies and "focus" on reactions against other foreign proteins (my idea). Or, these reactions become noticeable once the response to gluten is removed.

I do agree that certain protein sizes likely correlate with the degree of intestinal permeability. The leakier the gut, the more (and larger) proteins allowed in.

Of course, this is only my opinion, this is just based on what I know. I can agree to disagree. :D

tom Contributor
I have to respectfully disagree here. All current medical research (search Pub Med) suggests that the point of entry for ALL triggers of autoimmune diseases (or most anyway) appears to be in the gut. Evidence supports the theory that all people with autoimmune diseases have a leaky gut, and this is an early step in the autoimmune disease process. Without a leaky gut, those triggers just won't get in...or not in large enough amounts. Of course this is still a theory, but it seems to have data to support it. The leaky gut IS one of the crucial roles in autoimmunity. Alba's AT-1001 is in trials to prevent Celiac and Type 1 diabetes by closing the leaky gut. Apparently almost all people with autoimmune diseases produce excess zonulin, which causes the leaky gut.

Ahhh very interesting!

While I have read up some on AT-1001 and zonulin, I haven't been as zealous lately as I'd been for many years.

Thx for the info!

  • 2 weeks later...
suzven Newbie
I believe it's an old term, meaning someone who poses as a very satisfied, happy customer while they are affiliated with the company they are raving about.

Tom, correct me if I'm wrong. :)

I myself have tried Glutenease thinking maybe it would help me. I read all these people stating that they would take one and be able to eat pizza or their kids could take it and eat pizza. I would never consider doing something like that, especially if it were my child.

The pill did help with CC, I have not had any CC problems when I take it BUT, it will NOT help if you eat something knowing it contains gluten, (I tried and got sick). So if you worry about going out to eat or over someone's house and think there may be a chance for CC then try it, you may be pleasantly surprised, but that's about as far as I'd go and not take any chances otherwise, not worth it. Stick to your diet as much as possible and it will keep you feeling good.

tom Contributor
The pill did help with CC, I have not had any CC problems when I take it BUT, it will NOT help if you eat something knowing it contains gluten, (I tried and got sick).

This goes exactly to my point.

By its nature, the only evidence of being CC'd is in the reaction.

Absence of a CC reaction, having taken glutenease, is, to me, most likely due to no CC in the 1st place.

I'm SO VERY curious about how much gluten u consumed for your test of whether glutenease *would*, in fact, ease the glutening suffering.

P.S. I did very recently hear a 2nd-hand story of the pill helping someone who was certain they'd gotten CC'd.

  • 3 months later...
ericools Newbie

I believe the original post said: "I was wondering if anyone has tried this yet." I see, posts from what two people who actually stated they had tried it, and about fifteen of you just bashing the poop out of a product you have never laid your hands on.

Maybe it dosen't work for everyone but I ate two pills walked over to the gas station and got a doughnut and felt just fine the rest of the day. Also lets me eat at Chinese buffets with no ill effect.

I don't really care if anyone believes the product works or not. It just pisses me off to see everyone talking poop about something they oviously haven't tried, grow up.


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  • 7 months later...
Unclezack Newbie
I was wondering if anyone has tried this yet. I went to my local Health Food Store and there it was a cure(haha) but the nice lady working there said it could help to "clean out" little bits left over from when I was eating gluten. Check it out. Let me know.

Open Original Shared Link

Just want to say that there are a lot of critics here who want to say that a product they never tried doesn't work. I have been gluten free for 5 years. At first, because of a lot of intestinal damage, I had a hard time digesting any food. I tried a product by Enzymedica called Acid Soothe. It contains many of the same properties as Glutenease in lower dosages and also contains some herbs that help digestion. When I finally got brave enough to eat a meal in a restaurant, I found that the slightest cross contamination would make me sick. My herbalist suggested that I take a few Acid Soothe capsules with a meal. The enzyme action was enough to protect me. I know this because the times that I got poisoned, my belly would become distended and full of gas. With the enzymes, I would feel a slight bloated feeling that wasn't extremely uncomfortable, pass gas one time and it was over and done with.

When Glutenease first came out, my herbalist offered me a bottle at no charge and asked me to report back the results. I told him I was extremely careful about gluten and I might not have any good answers for him. I considered politely turning down his free offer, as Glutenease is fairly expensive and I didn't want to come back without a testimonial, but I took the bottle.

I am extremely sensitive to gluten and could be sick for three days if I ate something with gluten. We went to a restaurant we used to eat at often. I ordered sauteed prawns, rice pilaf and salad without croutons as usual. They had gotten a new cook. Halfway through my meal, I was wondering why some of the rice grains were bigger than the others. I was told that the big grains weren't rice, but that they were "orzo" a wheat pasta that looks like rice. OOPS! I took two Glutenease then and two more about an hour later. I could tell in the morning that my bowel felt a little bit like I was going to spend half of the day on the toilet, but it didn't happen! I know Glutenease worked for me. I won't eat gluten on purpose, but I always carry a few Glutenease along with my usual Acid Soothe.

I know the non believers will probably try to rip me apart. I don't care! If you want to check to see if I am real or not, I have a website with my experiences and helpful information.

Check it out. I am real and have spent many hours putting together information to help people who have wheat intolerance or Celiac disease. There are references to products I use, but I do not receive any compensation for mentioning them other than the satisfaction of helping others.

Jack Andreasen

ShayFL Enthusiast

I have a bottle. I plan on using it just in case for CC when I finally try to eat out again. But I will still be uber careful like always.

slmprofesseur Apprentice

Where can you buy Glutenease?

Unclezack Newbie
I have a bottle. I plan on using it just in case for CC when I finally try to eat out again. But I will still be uber careful like always.

Glad you read my reply. It really works! As I said, Acid Soothe works well for CC and added help with digestion if you need that. Helps a lot with heartburn and acid reflux. Be sure to ask questions at the restaurant when you eat out. Most people will be glad to find out for you if the food is reasonably safe (never know about CC). Hope you look at my site at: glutenhelp.com

I praise you for going Gluten Free. Too many people don't when they should

Jack

Unclezack Newbie
Where can you buy Glutenease?

:D

I'm fortunate to have a good herb store and a great herbalist near to my home (45 Miles). Here is a link to Enzymedica's store locator. Open Original Shared Link

Hope this helps. Possibly you can buy direct from Enzymedica. Don't let the cost scare you. The stuff works. It costs me $22 a bottle of 60.

Jack

Unclezack Newbie
Glad you read my reply. It really works! As I said, Acid Soothe works well for CC and added help with digestion if you need that. Helps a lot with heartburn and acid reflux. Be sure to ask questions at the restaurant when you eat out. Most people will be glad to find out for you if the food is reasonably safe (never know about CC).

I praise you for going Gluten Free. Too many people don't when they should

Jack

Unclezack Newbie
I *personally* would be wary of any product indirectly claiming/implying it can treat a disease when it has NO scientific data or FDA research to back it up.

In theory, if gluten was broken down so fast that there was no chance of it being absorbed whole by the leaky gut, then it would technically be possible to avoid a Celiac related immune response. However, I highly doubt this product could do what it claims.

There have been some trials with different enzymes hoping to do just that, but nothing has been brought to market so far or been very successful as far as I know.

Usually, if it sounds too good to be true, it probably is.

If you want to use it for CC, it may (or may not) help. It probably can't hurt anything but your wallet. :P

I also think this product can be very misleading and dangerous to newbies, especially if the hippie/grandmother types at the local health food store are saying that it is a "natural cure" for Celiac.

It's not a scam and it's not really magical either. The enzymes only need to be able to break down one molecule in the complex chain called "Gluten". Enzymes "eat" thus, digest specific molecules they are designed to break down. Once the molecule is digested by the enzymes, there is no auto immune reaction because it is no longer seen as an enemy by our systems.

Enzymes are used for many specific purposes. Enzyme based wallpaper removers eat glue, thus make it easier to remove old wall paper. There are enzyme cleaners for use in kitchens. They eat grease. When you have your carpet cleaned by a professional, he treats your carpet with an enzyme to eat odors and make it smell fresh.

The enzymes mix with the food while it is in our stomach. It doesn't have to be a super fast process, because the damage caused by gluten happens in our lower intestines.

I use the product for CC, but once ate a lot of wheat (unknowingly) until after I had eaten it. I took four Glutenease. I started to feel like a reaction was coming on in the morning, but it faded away quickly. Otherwise, I would have been deathly ill for 3 days and tired and spacey feeling for another 3-4 days and my intestines would have been very tender for about 2 weeks after that.

I have been gluten free for five years, but still super sensitive to it. I avoid it like the plague. However, I am so sure about the attributes of Glutenease that I would sit down with four capsules of it and a whole slice of wheat bread to prove to any disbelievers that it works.

As far as your statement about no scientific data or FDA research. FDA is approving drugs that are killing people every day after they have supposedly been tested for years. What a crock! The drug companies own FDA and are getting rich from you or your insurance carrier by feeding you poison and telling you it will make you well.

Drug companies have no desire to spend their research dollars on Celiac Disease. With estimates of 1 person out of 133, there isn't enough money in it. From my observations, I believe that somewhere around 15-20% of the population has Celiac Disease. However, the drug companies are selling a lot more drugs because most doctors are diagnosing it as IBS or Fibromyalga. I don't think the drug companies can come up with a poisonous chemical that they can control and sell for billions of dollars that will work as well as Glutenease.

Enzyme research for gluten allergies is in it's infancy now, and it is working pretty well. It is only going to get better!

tom Contributor
It doesn't have to be a super fast process, because the damage caused by gluten happens in our lower intestines.

Lower? .. .. . huh ... ....aren't all the endoscopies done on the upper intestine?

I use the product for CC, but once ate a lot of wheat (unknowingly) until after I had eaten it. I took four Glutenease. I started to feel like a reaction was coming on in the morning, but it faded away quickly. Otherwise, I would have been deathly ill for 3 days and tired and spacey feeling for another 3-4 days and my intestines would have been very tender for about 2 weeks after that.

Sounds like something that would be so easy to prove w/ double-blind trials.

Why hasn't the company done any? Or maybe it's safer to say "Why haven't they published any?"

Woolygimp Contributor

A shill is the byproduct of a form of viral marketing and advertising where as a company hires people to go around posting comments, threads, posts, webpages, and testimonials praising a products effectiveness. It's very effective and quite a few companies are guilty of engaging in it, especially those without large advertising budgets or with products that won't hold up to public scrutiny (hint, hint).

People are very gullible and tend to believe what they read, hear, or are told without really thinking about it; it's stupidity, and allows yourself to be taken advantage of. Alternative medicine and its products are full of people looking to take advantage of such people. My mom is one of the biggest offenders, she recently dropped almost a grand on a water electrolysis machine after someone came to her house (the person selling the product) and offered to give her tap water a 'free water test' which showed her that her tap water was filled with nasty stuff. If you can't see the conflict of interests there then pfff...

If a product was a miracle cure, or if it was revolutionary it'd be worth a fortune. A company would go through the proper testing and approval process in a heartbeat, and there'd be dozens of scientific trials to back it up. Products that don't work and that are meant to scam people...

DON'T DO THIS.

They sit on the shelf of a health food store and say, "this product is not intended to diagnose or cure any disease." Yet people still buy into that scam and purchase those products. Our knowledge of health and internal medicine is somewhat limited right now but I promise you this: ginko root is NOT the cure for cancer, so stop thinking it is just because someone makes a little box that says, "this product might cure cancer."

People need to wisen up. Tom made very good points. All this poop and fake medicine convolutes real science and medicine (which is being done) and that may advance our understanding of the human body, all because someone wants to make a quick buck at your expense.

Unclezack Newbie
Lower? .. .. . huh ... ....aren't all the endoscopies done on the upper intestine?

Sounds like something that would be so easy to prove w/ double-blind trials.

Why hasn't the company done any? Or maybe it's safer to say "Why haven't they published any?"

It is my understanding (correct me if I'm wrong) that endoscopies are taken by going through the esophagus and through the upper intestine and partially into the lower intestine. Biopsies are taken from the lower intestine. Biopsies and blood tests are the "accepted" test for Gluten allergy/Celiac disease. Anyway, my point is that the enzymes begin to mix with the offending molecule in the gut. Who's to say that the enzyme action won't continue as it passes through the entire digestive system.

I understand everyone's reasons for being skeptical, but I can say that once I became brave enough to try eating out, I got CC every time. Once I started taking Enzymediac's enzyme based products, either the restaurants magically quit CCing me, or the enzymes are working. I used their products V-gest and Acid Soothe for several years before Glutenease came on the market. They both work fine for CC. Even though Acid Soothe isn't as powerful as Glutenease, I prefer it over their other products because it has a few other ingredients that aid digestion and stop heartburn and acid reflux while protecting me from CC.

I haven't had CC since I started taking the enzymes. I watch the waiters and waitresses touching baskets of bread and rolls before touching my dishes. I can't be convinced there isn't some gluten transferred in the process.

Jack

Woolygimp Contributor
It is my understanding (correct me if I'm wrong) that endoscopies are taken by going through the esophagus and through the upper intestine and partially into the lower intestine. Biopsies are taken from the lower intestine. Biopsies and blood tests are the "accepted" test for Gluten allergy/Celiac disease. Anyway, my point is that the enzymes begin to mix with the offending molecule in the gut. Who's to say that the enzyme action won't continue as it passes through the entire digestive system.

I understand everyone's reasons for being skeptical, but I can say that once I became brave enough to try eating out, I got CC every time. Once I started taking Enzymediac's enzyme based products, either the restaurants magically quit CCing me, or the enzymes are working. I used their products V-gest and Acid Soothe for several years before Glutenease came on the market. They both work fine for CC. Even though Acid Soothe isn't as powerful as Glutenease, I prefer it over their other products because it has a few other ingredients that aid digestion and stop heartburn and acid reflux while protecting me from CC.

I haven't had CC since I started taking the enzymes. I watch the waiters and waitresses touching baskets of bread and rolls before touching my dishes. I can't be convinced there isn't some gluten transferred in the process.

Jack

This is another shill. Is there a way to report these to moderators?

Jack, [censored] you. You may be getting paid to do this poop but you're spreading misinformation which could cause great harm to an individual. What's to happen when some parent, who doesn't know any better, reads this crap and purchases it for their sick kid?

Self decency, you should look it up. You apparently sold yours for less than minimum wage.

Unclezack Newbie
This is another shill. Is there a way to report these to moderators?

Jack, [censored] you. You may be getting paid to do this poop but you're spreading misinformation which could cause great harm to an individual. What's to happen when some parent, who doesn't know any better, reads this crap and purchases it for their sick kid?

Self decency, you should look it up. You apparently sold yours for less than minimum wage.

Wollygimp,

I wish I was getting paid for this. You can call me all the names you want, but I will continue to tell people about the attributes of Glutenease. You obviously haven't tried the product or you wouldn't be arguing against it and calling me a shill. If you are really so sure of your stand on the subject, check out this link: Open Original Shared Link The second paragraph will speak about scientific studies using the right combination of enzymes to break down gluten. This link:Open Original Shared Link Will show you the ingredients Enzymedica is using in their product Glutenease. My guess is that you won't even read the article, but at least you have the opportunity!

I don't now and never will advise anyone to intentionally eat gluten containing foods, but cross contamination happens not only at home, but also in restaurants and processing plants. My only reason for trying to educate people about these products is to help people with the disease I have lived with for 57 years to be able to enjoy a meal in a restaurant and not have to suffer from cross contamination.

Woolygimp Contributor

I read the article and it's fraught with bad grammar and mispelled words as well as fallacious logic. It's borderline fraudulent how they attempt to link irrelevant good science to back their bogus claims. At least I'm glad you took the time to send me an unbiased link from...none other than the maker of the product.

Here's a link to another thread on a different forum that proves that this company engages in the practice of forum marketing (i.e. shills such as the one I'm arguing with).

Open Original Shared Link

Check the creation date for these users, the fact that they have no posts in threads other than the ones with glutenease and it's pretty easy to deduce that these people are employed by this company and are attempting to spread disinformation.

A quote I like from the sensibleCeliac regarding your product:

Recommended Usage (from enzymedica):

Take 1 capsule with any meal containing gluten or casein.

Recommended Usage (from the Sensible Celiac):

Do not eat meals with gluten. If casein bothers you, do not eat meals with casein. Do not take these capsules. Do not buy these capsules. Do not take medical advice from somebody that wants to sell you something unless that person is a licensed pharmacist or other medical professional.

Other Uses for Glutenease

In addition to not using Glutenease from Enzymedica to treat gluten intolerance, which is also known as celiac disease, the Sensible Celiac also recommends that you do not use Glutenease from Enzymedica to treat hemorrhoids, hangnails, Parkinsons disease, or cardiomyopathy. While we imagine that it is possible that Glutenease from Enzymedica could help people with these medical problems digest proteins, it is not the standard, scientifically supported treatment for any of the medical conditions discussed in this thread, none of them.

The amount of scientific evidence that indicates Glutenease from Enzymedica can be used to treat hemorrhoids, hangnails, Parkinsons disease, or cardiomyopathy is exactly the same as it is for gluten intolerance, which is also called celiac disease.

And for those of you who don't get it.

This product is not intended to diagnose, treat, cure or prevent disease.

It however is intended to part the naive from their hard earned cash.

Woolygimp Contributor

Here's a quick article about the company that makes Glutenease, Enzymedia. From the Charlotte Sun:

Today, it
Lisa Mentor

I am concerned for all those that check into this forum for information, that they might think that "CC" or cross contamination is a lesser degree to a true glutening. They are quite the same. And for Uncle Zack to say that a product like Glutenease is acceptable for cross contamination is not factual. UncleZacks soliicitation of this produce is a concern to me, additionally as a moderator of this site.

Whether getting glutened by cross contamination or sitting down and eating a piece of bread or pizza, the autoimmune response, for those that have Celiac, is just as dangerous.

As Woolygimp has posted, Glutenease carried it's own disclaimer that is is NOT A CURE FOR DISEASES - TO INCLUDE CELIAC DISEASE.

Rachel--24 Collaborator

I have done alot of research on the enzymes. I also see Dr.'s who are treaing autistic children who have required the gluten-free/casein free diet due to leaky gut/dysbiosis issues.

They use these enzymes and they DO work for a large percentage of the kids.

This is not a "cure" for Celiac....and from what I could tell...it didnt appear that UncleZack was making any claims that a Celiac could purposely eat gluten with the use of these enzymes.

Every Celiac is at risk for cross contamination when eating out...or even when eating certain "gluten free" prepackaged foods. I really dont see where there is any harm in some people wanting to add a bit of "protection" for these instances. Is it better to just take the risk without using the enzymes....or is it better to take the risk while using the enzyme...just in case??

It doesnt seem like a "crazy" idea to want to use the enzymes....especially when alot of people DO benefit from them.

Personally, I'm a little confused by people who get so upset by things like this. If you havent actually tried the product...and if you havent actually researched the enzymes...why jump all over people who use them and who find them to be helpful??

I have no idea whether UncleZack is a "shill" or not....but just because you dont particularly "believe" in something doesnt make it OK to throw insults around.

The product is not intended for Celiacs to use in place of the diet.....and this is made very clear to anyone who chooses to look into it.

People use it to help them in circumstances where cross contamination is a possibility...and non-celiacs use it help digest gluten and other proteins. Some people simply lack the enzymes necessary to break the proteins down and by supplementing the enzymes they no longer have issues. Of course this does not apply to anyone with Celiac Disease....but only to some who are non celiac gluten sensitive.

Doctors use enzymes to help the autistic children...many of these kids are doing well with the addition of enzymes (not sure about Glutenease specifically as I've learned more about Peptizyde). These are the kids who are not Celiac...but alot of them are able to abandon the diet with the use of enzymes along with other treatments which improve gut issues.

If UncleZack were claiming that Glutenease is a cure for Celiac....then I could understand why some would be upset....however, thats not the message I got out of his posts.

Alot of people post about supplements (or meds) that help them after they've experienced a reaction from cross contamination. Lots of people are telling others what they use to ease their symptoms...after the harm has been done.

Why is it so terrible for someone to tell others what helps them to NOT end up in this situation?? Why is it so wrong for people to take something that might help them to avoid a reaction. This is not "acceptable"...and yet...its perfectly OK to discuss all of the things we should do or take after we've already done damage?? :huh:

Honestly, it doesnt make any sense to me.

I know that the enzymes help alot of people. They help people who are reacting to gluten for reasons other than Celiac Disease...and they help some people with Celiac Disease in situations where they might be cross contaminated.

If it were a perfect gluten free world...and noone ever experienced these "accidents"...then I suppose we wouldnt be having this discussion. However, its not realistic to believe that you can eat out all the time and not ever be at risk. Heck...its not even realistic to think you can eat at home and not ever be at risk....unless the entire house is gluten-free.

I dont think its right to "attack" members who use enzymes to help them in situations where they may be unknowingly exposed to gluten.

Like I said, I have no idea if UncleZack has other motives for posting....but I do know that enzmyes help alot of people....and I also know that many members here use them (both Celiac and non-Celiac). Although, after seeing these kinds of reactions...they may not wish to discuss it here.

Rachel--24 Collaborator
And for Uncle Zack to say that a product like Glutenease is acceptable for cross contamination is not factual. UncleZacks soliicitation of this produce is a concern to me, additionally as a moderator of this site.

Since cross conatmination isnt entirely avoidable for everyone...and since most people arent actively *trying* to be glutened "on accident"....I dont understand why there is so much "concern" over using a product to try to reduce the risk???

If I were someone who likes to eat out....and occassionally end up sick as a result of ACCIDENTAL exposure...I think I'd prefer to spend a little money on something that might help me to NOT get sick...rather than to spend the same amount of money on the things people take to help them feel better AFTER they're suffering from the exposure.

I cant speak for everyone but it just seems like the "smarter" choice to me.

Lisa Mentor
I am concerned for all those that check into this forum for information, that they might think that "CC" or cross contamination is a lesser degree to a true glutening. They are quite the same. And for Uncle Zack to say that a product like Glutenease is acceptable for cross contamination is not factual. UncleZacks soliicitation of this produce is a concern to me, additionally as a moderator of this site.

Whether getting glutened by cross contamination or sitting down and eating a piece of bread or pizza, the autoimmune response, for those that have Celiac, is just as dangerous.

As Woolygimp has posted, Glutenease carried it's own disclaimer that is is NOT A CURE FOR DISEASES - TO INCLUDE CELIAC DISEASE.

My response was directed to those with Celiac Disease specifically, as I have indicated. Cross contamination is an equal evil as is a Duncan Donut. Glutenease is not beneficial to an autoimmune response to the exposure of gluten to one with Celiac Disease.

If it can help others without Celiac, great.

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    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Celiac or Addison's complications? Can someone share their experience?


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    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
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