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Finally! Some Doctors Do Listen

samantha79

By samantha79
in Meet Up Room

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samantha79 Newbie
samantha79
Posted

Hi everyone,

I will apologise in advance if i rant and make this topic overly long but for the first time in ages i am some what getting there with doctors and my kids.. :) My 7yr old daughter has shown the symptoms of Coeliac for the past 2 years! She also carries one of the genes for it. I had all of my children gene tested when i was diagnosed, although i have only been diagnosed for just about 16months now i have been taking my daughter to multiple doctors to find out why she suffers constant stomach pains which at times reduce her to tears. fluctualting bowel motions, headaches, tiredness, iriitability and so on and so on... <_<

Every doctor i took her to would feel her tummy check her temp and send her on her way..

That was until i moved to a new town went to a new doctor and next thing i know i'm with a paediatrician who upon 15min appointment referred her to a gastroenterologist :D I am nervous for her now as this wednesday she goes in for her endoscope.. I am hoping we are about to get to the bottom of her problem. :D

BUT,

The doctor i took her to that referred her to the paed has now left the doctors practice i took her to so i had to make an appointment for my 6 yr old son with a different doc!

Low and behold i back to square one :angry: My son had full coeliac screen done 8 months ago and came back borderline on these results, the doc back then said he would leave him for 6 months and then see what the next lot of results are.. So i go see new doc explain about last test results and he won't redo blood work!!!

According to this doctor there is no need to rush to do these tests as even if he is a coeliac there isn't anything to do for it.. Then tried to tell me, a diagnosed coeliac that it has nothing to do with gluten!!

As you can imagine i grabbed my sons hand, told the doctor to go back to school and proceeded out the door!!

So i again on the search for a doctor that knows what their doing ;)

  • 2 weeks later...
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happygirl Collaborator
happygirl
Posted

While not ideal for many, if you are having trouble finding a doctor and getting your daughter tested for Celiac, it may be worth it to try the diet to see if it relieves her symptoms.

Maybe others will have some good ideas. Good luck.

amber Explorer
amber
Posted
Hi everyone,

I will apologise in advance if i rant and make this topic overly long but for the first time in ages i am some what getting there with doctors and my kids.. :) My 7yr old daughter has shown the symptoms of Coeliac for the past 2 years! She also carries one of the genes for it. I had all of my children gene tested when i was diagnosed, although i have only been diagnosed for just about 16months now i have been taking my daughter to multiple doctors to find out why she suffers constant stomach pains which at times reduce her to tears. fluctualting bowel motions, headaches, tiredness, iriitability and so on and so on... <_<

Every doctor i took her to would feel her tummy check her temp and send her on her way..

That was until i moved to a new town went to a new doctor and next thing i know i'm with a paediatrician who upon 15min appointment referred her to a gastroenterologist :D I am nervous for her now as this wednesday she goes in for her endoscope.. I am hoping we are about to get to the bottom of her problem. :D

BUT,

The doctor i took her to that referred her to the paed has now left the doctors practice i took her to so i had to make an appointment for my 6 yr old son with a different doc!

Low and behold i back to square one :angry: My son had full coeliac screen done 8 months ago and came back borderline on these results, the doc back then said he would leave him for 6 months and then see what the next lot of results are.. So i go see new doc explain about last test results and he won't redo blood work!!!

According to this doctor there is no need to rush to do these tests as even if he is a coeliac there isn't anything to do for it.. Then tried to tell me, a diagnosed coeliac that it has nothing to do with gluten!!

As you can imagine i grabbed my sons hand, told the doctor to go back to school and proceeded out the door!!

So i again on the search for a doctor that knows what their doing ;)

Are you in Victoria, Aust. or Victoria, Canada. If you are in Victoria Aust. please call the coeliac society and have a chat to them there and they will give you a list of gastroenterologist (pediatric) specialists to see. I am very surprised at your experiences as generally most Australian doctors are well informed about coeliac disease. You need to get a referral to a pediatric gastro who will sort it all out for you. There are always going to be a few doctors who have no idea or are not up to date but it seems you have struck a few of them.

Good luck.

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