Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bowel Issues Started Up Again


sugarsue

Recommended Posts

sugarsue Enthusiast

After a few really good days and a week of feeling really good, she's had bad diarrhea again today and the day before yesterday. Yesterday it was better but not great. I don't think she's gotten any gluten anywhere. It makes me wonder if something else is also going on. She drank orange juice tonight before her tummy started hurting. She was at a friends house who told me everything she ate. Suposedly no gluten but she did eat a TON of potato chips. She's having some behavioral issues at school, not being able to keep her hands to herself and talking when she should not. Impulsive behavior.

All I can do is hope that with time, this gets better. I'm stressed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wsieving Contributor

I am very new to this, but it sounds to me like she must have been glutened. DD was great all week, found 1 gerber puff (about the size of a peanut, but full of air, not solid) and had horrid diarrhea. It doesn't seem to take much for these little ones who are so sensitive. I hope things get better soon!

Tristan's Mama Newbie

Were you sure the potato chips contained no gluten? I found out that pretty much all of them contain some of it! :S I will pray that she gets better soon!!!

taweavmo3 Enthusiast

I agree that it does sound like gluten. Especially if she was at a friends house......I always get nervous if my kids eat at someone else's house. It is hard for someone to truly understand cross contamination issues, and the gluten free lifestyle unless you actually have to live it. My parents and I are very close, and my kids spend alot of time over their house, but even after three years of teaching them about gluten free, mistakes still happen.

My dd has had moments where she acts like she was glutened and I never find out the source. It's at those times I figure it's most likely cross contamination from crumbs on someone's hands, or something she touched at school, etc. We just plow through, double check everything we've eaten in the past week or more, and usually the issue resolves itself. It is tough to figure out what's going on with our kiddos....hope she gets better soon!

sugarsue Enthusiast

Thanks guys for the ideas and support. I am at this strange stage where we are not certain whether it's celiac or not and our doc said not to worry about cross contamination. But maybe she's more sensitive then we imagine. This is such a big learning experience! I plan on doing the DNA test soon so I can at least know whether she has the gene or not. But.... I guess even if it's gulten intolerance and not celiac, you can still be sensitive enough to need to avoid CC?!?

Trust Birth Rookie
It doesn't seem to take much for these little ones who are so sensitive.

I have to agree, my little guy is extremely sensitive. He always poops in his pants when he has had either gluten or dairy. It really does not take much - a crumb, is all it takes. I have to agree with the next poster on that. Cross contamination is an issue here, it's taken DH a while to wrap his head around it but our DS is VERY sensitive to gluten. As soon as he has a gluten flare up we check and recheck everything he has eaten. I would say more often than not we trace it to a cross contamination issue. Say, accidentally using the same knife for his bread that was used to butter wheat bread (My DD's bread). To be honest, I want us all to be gluten-free. I just think it's a healthier life style anyway beyond my DS's gluten issues.

Cinthia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,807
    • Most Online (within 30 mins)
      7,748

    Nikki W
    Newest Member
    Nikki W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
×
×
  • Create New...