Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Free


Guest gfinnebraska

Recommended Posts

Guest gfinnebraska

I have been gluten free for years and my family fully supports that I have celiac disease and can't have gluten. Well, recently, I have become aware that I also have to avoid dairy. Will I have to avoid it forever?!!?? I don't know. Only time will tell. WELL, I found out that some of my family members think it is "all in my head." That statement bothered me SO much that I thought, fine, I will eat dairy and test it for sure! Well, after days of being SICK... I know it isn't "in my head." How do you handle people thinking you are just "on another kick"???? Any advice would be helpful. Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

I ignore them. I have found that when I try to explain to them what gluten/dairy did to me they didn't really want to know. They have already decided that it wasn't real, it is "all in my head". So who cares. It's my body and I have to take care of it.

Some people (especially family members) have started asking me questions. They still don't really get it, but they are at least trying to be understanding. Last night my in-laws came over and brought chicken sandwiches and fries from Burger King "for the kids". Well all of my kids are gluten-free and dairy free. When I told my MIL that the kids couldn't eat it she looked at me like I was crazy and asked why not? :blink:

Well then today she was asking more questions about how I was able to loose weight. She doesn't understand about the diet being lifelong, or about the consequences of a gluten accident. She still keeps thinking that it is glucose we have to avoid. I get that alot. So many people are aware of diabetes and glucose, and get it mixed up with gluten.

On a side note. I was off ALL dairy for 14 months and have recently introduced it back into my diet. I am not having any ill effects, except from some dairy products that add guar gum into the product like sour cream, cream cheese, etc. I will be letting my kids try dairy next month at their one year anniversary of being Gluten-free Casein-free. I am hoping they all tolerate it well, since being gluten-free only opens up a whole world of other foods to us!

God bless,

Mariann

stef-the-kicking-cuty Enthusiast

I tell them: "It's not in my head, it's in my guts."

Kidding aside, it's very hard, to get some stubborn people (especially family members) to understand, what our problem is. If they are willing to learn, I'd try to give them all information a can. Brochures, internet-adresses, message boards, maybe something, where they can read a doctors letter or so. If they are not willing to learn, I'd first try to convince them. But if they're really stubborn, I'd try to stick to the people in my family that DO understand. And if you don't have another possibility (like a family gathering or something), bring your own food and try to ignore them.

Hugs, Stef

Guest gfinnebraska

Thanks ~ I just needed a "pep" talk. It is SO depressing to be the only "odd" one in the family ~ on both sides!! Well, odd with food anyway!! Heehee ;) It is just so frustrating when they offer me things they KNOW I can't have. Sigh... patience is a virtue ~ right? :) Thanks again for the words of encouragement.

stef-the-kicking-cuty Enthusiast

Hey, that's what we're here for, right? But hehe, my uncle-in-law dave (nickname uncle frog :lol: ), he and I are good friends. He actually gave me the walk down the isle on my wedding day, because my dad couldn't fly over, because of his pressure problem with his ears. When we made little fires on some nice summer evenings in their backyard last year he always offered me beer, oreos and these marshmallow-thingies on cookies, I forgot, what they're called in english (we don't have them in germany and I actually don't like them anyway). And after we found out I have celiac I couldn't eat most of that stuff anymore. So each time he asked I grabbed my rucksack and held the gluten-free oreos under his nose. I said: 'See this? That's mine!' When he wanted to try one, i said: 'No, you have your own. If you eat mine, what do I eat then???' And so I avoided to give him one and him finding out, that they're probably not that good as his oreos in his own opinion. Good solution for everybody.

Hugs, Stef

celiac3270 Collaborator

I can sympathize with you--

People used to think it was all in my head as well--my mom couldn't understand why I would get sick so often--little did she know I had celiac and malrotation. The doctors thought it might be that I wanted attention....ugh...but at least people know it wasn't in my head now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,231
    • Most Online (within 30 mins)
      7,748

    Patricia Margonari
    Newest Member
    Patricia Margonari
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ryangf
      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
    • Scott Adams
      Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune or inflammatory condition, which might be worth discussing with a healthcare professional. Some people with gluten-related disorders also experience secondary issues like bacterial overgrowth or immune dysregulation, which could potentially contribute to recurrent infections. It’s always a good idea to explore all possible causes, including gluten sensitivity, with your doctor. In the meantime, keeping a food and symptom diary might help identify any patterns. Wishing you the best on your health journey!
    • trents
      You say you have gluten sensitivity? Have you been officially diagnosed with celiac disease or do you refer to NCGS?
×
×
  • Create New...