Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know What This Is?


jasonD2

Recommended Posts

jasonD2 Experienced

After I eat i get tired and experience a light-headed feeling with some sinus pressure. Its usually worse with foods im sensitive to. It has nothing to do with gluten since I am gluten-free, but I do notice it the most after eating vinegar, citrus and fermented foods. Ive had this for 3 years already. the very first time i noticed it was when i ate yogurt...then i had it after eating cliantro and i eventually developed the reaction to mostly everything i consume. does anyone know what this might be? i almost feel as if there is a common ingredient to everything i eat that triggers this reaction and it cant be avoided

My biggest concern is that if i continue to always get this reaction when I eat that eventually i will develop an autoimmune disease or something life threatening.

I am 100% certain this all stems from my leaky gut and multiple food allergies brought on by damage to my digestive tract several years ago. I contracted giardia after being on a course of antibiotics for 5 months and was also under a lot of stress from a bad relationship..so all of this together wiped out my insides and i havent been the same since. Since then i have cut out a lot of foods, went on an anti-candida diet and take probiotics and digestive enzymes. I used to be severely constipated and now pretty much go every day but my bowels still do not function properly. My movements are difficult because my stools are hard regardless of what i take to prevent constipation.

Is there anything I can do? I'm already on such a restricted diet and the thought of having to cut out more foods is extremely frightening, yet it might be the only solution to my problem. Im having such difficulty enjoying life now because i am so restricted and being a traveling sales rep makes it even more challenging.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Mold would be my guess.

jasonD2 Experienced

dont think its mold...my parents had a mold problem in their basement and it would always make me sneeze and my eyes would tear up. this is something else

lizard00 Enthusiast

ok. i deleted what i originally said because i read only half the post... apparently. told you i was working on half a brain. :huh:

so, did they treat you for giardia? i'm figuring they did. have you tried the scd? or is there some residual to the giardia?

Liz

:)

AliB Enthusiast

Hi Jason.

I also would suggest trying the SCD. Although your diet is very limited you may still be ingesting foods that are keeping the 'cycle' going. Many of us have problems with carbs in general, particularly sugar, as our guts lose the ability to produce the necessary enzymes due to the damage, and it may be that that is your problem - gluten is often only a part of the picture. Because the SCD limits foods to those that the body can more easily cope with it gives the gut a chance to heal.

The SCD is not so limiting that you cannot eat. When with clients you could have salad and meat or fish - if you confine your foods to basic then you would be at far less risk of having gluten, too. You could just request fruit for dessert. Although it is low-carb in the essence that you are not eating carb-laden foods, carbs are still provided in the fruit and veg. As long as we have enough protein and fat and a good selection of veg, cooked and raw, we will not lose out on energy - au contraire, I find that carbs drain my energy because my digestion has to work so much harder to digest them.

Basically it takes out anything that is processed or has additives. It confines to unadulterated meat, fish, poultry, fresh veg and fruit and a little honey and nuts.

One of the most important foods on the SCD is yogurt - but not the commercial rubbish. It needs to be 24 hour fermented with mainly Lactobacillus strains and no bifidobacterium. You didn't specify what kind of yogurt you had which caused the problem but it may well have had sugar or other additives with it. That is one advantage of making it yourself - at least you know what is in it!

It might be difficult to make yourself - do you have anyone that could make it for you on a regular basis? I bought a yogurt maker that cultures a liter at a time and have a spare bowl so that I can keep some on the go before the previous lot runs out. That way I am less likely to eat the commercial yogurt.

Many are under the illusion that by dropping gluten they will get better, when in reality that rarely happens. Digestive breakdown is often due to the 'Western' high-carb, high-sugar diet and only by getting 'back to basics' can we stand any chance of getting better. The Western Diet with its high carbs, copious chemical additives along with many medical drugs, feeds rogue bacteria, like Giardia and prevents the growth of the good immune and digestive support bacteria.

There is a Specific Carbohydrate Diet thread in this section if you want more info and support and if you have not looked into this before, check out the 'Breaking the vicious cycle' and 'Pecanbread' sites.

I know how difficult this is - your whole life ends up revolving around food when your digestion is compromised. It is a struggle for me and I don't work, so it must be a nightmare for you most of the time!

Rachel--24 Collaborator
After I eat i get tired and experience a light-headed feeling with some sinus pressure. Its usually worse with foods im sensitive to. It has nothing to do with gluten since I am gluten-free, but I do notice it the most after eating vinegar, citrus and fermented foods.

Look at these articles and see if it rings any bells for you.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Usually when someone is seemingly reacting to *everything* they eat.... its most often due to a problem metabolising food chemicals. Basically, the body is having a hard time breaking them down and eliminating them....its not an uncommon thing but people vary in how much they can tolerate.

I'm sensitive to food chemicals. Amines are a big one for me and I do react very strongly to all of the things you listed (any fermented foods, vinegar, citrus, etc). I've strictly avoided those things (and alot more) for a few years now.

Theres alot of info available online as to which foods are high in certain food chemicals (amines, salicylates, glutamates, sulfur). By viewing these lists you may be able to identify whether or not these natural food compounds are causing you to have these symptoms.

In this case its not actually the foods themselves that your body is sensitive to....its actually the chemicals that are naturally occuring in these foods that your body is unable to process. The reactions are dose related.

Reactions to food chemicals are pharmacological and dose dependent rather than immune-system related like allergies. However, the symptoms of food chemical intolerances are often mistaken for allergies, and they can cause autoimmune-like conditions such as eczema, asthma, arthritis and chronic back pain, and have been implicated in a number of other autoimmune disorders including coeliac (celiac) disease, fibromyalgia, and can produce multiple sclerosis-like symptoms. They may even contribute to heart disease.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.