Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Connection Between Celiac & Scleroderma?


gf-cheryl

Recommended Posts

gf-cheryl Newbie

Do any of you know anything about a possible connection between Scleroderma and Celiac? I just read a little bit about it on the Scleroderma.org site, and I had no clue that undiagnosed Celiac could cause Scleroderma. My mom was diagnosed with Scleroderma several months ago and we're just now realizing that her bloating after eating certain foods, like granola, could be an indication that she may have Celiac. I mean, she's lived with arthritis & psoriasis for years. They come and go. So I told my mom to lay off of the gluten for a while to see if her hands (tight and puffy fingers) get better. I am gluten intolerant (undiagnosed celiac disease) and I also have 2 boys with Type 1 diabetes (autoimmune disorder).

Have any of you heard of this?

Thanks!

--

Cheryl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hi Cheryl,

I don't know much about scleroderma, but I do know that reactions to gluten (and sometimes other foods like dairy and soy) can set off all kinds of autoimmune disorders. They run in my family too.

I found a good book about this... "The Autoimmune Connection" by Rita Baron-Faust and Jill Buyon. It isn't so explicit about the gluten issue, but it does a great job of explaining how autoimmune conditions "cluster" and why.

Mother of Jibril Enthusiast

ps - In case you didn't know, celiac is also considered an autoimmune disorder.

gf-cheryl Newbie

Hi Mother of Jibril!

Thank you for your reply! Yes, I know Celiac is an autoimmune condition. I wasn't really surpised that I got it with all of the autoimmune disorders in my family. It's funny that you mentioned that book because I've been looking at it on Amazon for a while now thinking that I may order it. Thanks for that suggestion.

Blessings...

Cheryl

Hi Cheryl,

I don't know much about scleroderma, but I do know that reactions to gluten (and sometimes other foods like dairy and soy) can set off all kinds of autoimmune disorders. They run in my family too.

I found a good book about this... "The Autoimmune Connection" by Rita Baron-Faust and Jill Buyon. It isn't so explicit about the gluten issue, but it does a great job of explaining how autoimmune conditions "cluster" and why.

Mother of Jibril Enthusiast

Hi Cheryl,

No problem! :) I recommended that book to my mom too.

I have learned SO much about autoimmune disorders in the last couple of months, ever since I was diagnosed with hypothyroidism. With all of the health problems in my extended family (diabetes, arthritis, anemia, lupus, etc...) I can't believe nobody had realized that these might be connected... they're all autoimmune. Based on my diagnosis, my parents asked to have their thyroids tested... my dad turned out to have exactly the same problem as I do. Thank God for the Internet.

Welcome to the group! I hope your mom has good results going off gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,339
    • Most Online (within 30 mins)
      7,748

    valerieclaire
    Newest Member
    valerieclaire
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Itsabit, Ask your doctor for an erythrocyte transkelatose test to measure thiamine.  It's a better measure of thiamine deficiency than a serum test.
    • Scott Adams
      Most toothpastes are naturally gluten-free, but this article may be helpful:  
    • Scott Adams
      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Itsabit
      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in my research as well. I am praying that I don’t have that! The dietary restrictions, esp when combined with eating gluten free are horrendous! Talk about malnutrition! Anyway, one step, one day at a time. I’m trying not to get ahead of myself. Not easy. 
    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
×
×
  • Create New...