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Confused About Endocrinology Test

mamasaidso

By mamasaidso
in Related Issues & Disorders

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mamasaidso Apprentice
mamasaidso
Posted

After being gluten-free since diagnosis in February I decided to go to endocrinologist for my osteoporosis. He did several tests including a 24 hour urine calcium test. My level was 13 mg which was considered low. However, he said test result meant I was actually absorbing more calcium and not to worry. I am worried about taking Forteo or any other drug if calcium level that low. I have quite a few cardiac arrhythmias and have bounced around with so many doctors this year I am worn out. Waiting for my dexa scan results next week and bet it won't be pretty. Recent celiac test still showed positive, tTg IgA down to 5 U from 71 U in February. Getting there slowly.

Has anyone else had this test? On the report it stated that anything under 200mg indicated a low calcium diet, so 13 mg must not be good.

I do have an appt with Dr. Cynthia Rudert in November and hopefully she can recommend an endocrinologist that is familiar with celiac.

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      Hi guys. Apologies for the late reply. Many many thanks for the replies. Hi - I am eating both white rice and wholegrain brown rice, due to it being very difficult to just eat brown rice. In regards to histamine foods - I am taking 10mg loratadine to combat this issue, however haven't seen any positive results as of yet. I have noticed if I am on a strict gluten free diet for around 1 week, the insomnia instantly pops up, and I have to eat around half a slice of bread for it to stop. I am trying to lower this amount, however the insomnia is still present. I have searched these forums and the internet but there seem to be no solution to this issue. I thought if I gradually reduce from half a slice and a little less, the issue will be resolved. However this is not the case.
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      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
    • Scott Adams
      Conflicting results

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      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
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