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Let My Guard Down...

Glutina

By Glutina
in Coping with Celiac Disease

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Glutina Rookie
Glutina
Posted

Hi everyone!

It has been a while wincw I last wrote, not really by choice, but due to 2 jobs and moving etc. So I hope everyone is doing well!!

Well it is currently 4:15am and I am wide awake in a state of full-fledged glutening. And I have noone to blame except myself!! Not even the wonderful thanksgiving meal that my fiance's mother cooked up...and she tries very hard to always cook gluten free and read labels. Nope, it wasn't someone or something else that got me this time but it was me. Ugh.

Fiance and I were at the grocery store before going over for dinner and I decided that I wanted to bring my own pre-dinner munchies for when we were playing monopoly (tradition haha). So, I went to my usual section where I buy gluten-free Cheechas (really good light munchies!) and saw a flavour on sale: Salt and Vinegar. mmm sounded good. So, assuming that they were also a gluten free flavour, I grabbed a bag and we paid and left.

Fast forward to about half-way through our monopoly game, which also leaves me half-way through the bag of Cheechas! I was noticing my brain getting "foggy" and I was having trouble concentrating/people were even making fun of me for missing collecting my rent all the time haha and my tummy was unusually gurgly. My fiance's brother was interested in my snack of choice and asked if he could see the bag. As we was reading the ingredients, he read "blah blah blah...wheat flour...blah blah"...and he stopped and said, "um...doesn't wheat flour have gluten"...and that's when things started going south. My gurgling stomach soon started to turn crampy/gassy, and I had to ask for a heating pad. Nothing says thanksgiving like a heating pad and stomach troubles, huh???

Because I had just assuuuumed that this flavour was also gluten free because several others say it right on the bag, I had failed to actually read the label. I had gotten lazy!!! Oh noooo!!! And I paid for it...and still am. I can't sleep as the pain is coming in waves...bathroom issues are doing the same...I am puffed up and bloated like a blow-fish and look about 4 months pregnant. I am finding some relief from the IBS drugs I was given during my last trip to the hospital about half a year ago before diagnosis (I'm still kinda a newbie...diagnosed severe gluten intolerance in January) called "Dicetel"....but not much. Just seems to dull the pain a bit, almost like it's foggy...but the cramping and gas are still there. I bet if I hopped on the scale I will have magically gained 5 pounds...I am a "gainer" when eating gluten. Not pretty.

I am supposed to work this morning...but since I haven't slept and can hardly walk I will now have to call in sick (not good) and miss out the subsequent holiday pay. Boo.

I also teach music lessons/am a singer, and this has given me such bad reflux that my throat feels raw and almost like I am getting sick now.

So all in all...LESSON LEARNED. I know better than to assume that things are gluten free, and I admit I got lazy.

I am in such a food rut ( little to no time to cook...2 jobs...) that I think I just simply got lazy. Maybe this is a wake-up call that I need to do more cooking and prepare good, tasty food for myself on a regular basis so that I can have food to bring with me on occasions like this...or at least not be tempted to just buy without reading labels.

I hope all of you reading this are feeling better than I am, and I'm wishing all you Canadians a great thanksgiving monday too!!!

-Glutina

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MollyBeth Contributor
MollyBeth
Posted

I'm sorry you are not feeling well and that your holiday isn't going well!!! I hope you are on the road to recovery!

ShayFL Enthusiast
ShayFL
Posted

Dont beat yourself up too badly. We all make mistakes. That is how we learn. Hope you are better soon.

DarkIvy Explorer
DarkIvy
Posted

I've done the exact same thing with flavored potato chips before. It seemed like a harmless flavor, so I started munching on them. A little while later I started to think "hmm, I never actually bothered to read the label"... sure enough, there was barley something or other on them!

Even more recently, I got sick off of tomato paste. I love the stuff and was eating it out of a jar with the spoon (yeah, I'm weird, I know)... I read the label and realized that it was the "Italian" flavored kind (instead of the regular tomato paste that doesn't really have much in it besides tomato) and was full of spices and wheat. Whoops. I usually grab two or three cans of it at a time at the store just so I have it on hand for cooking (or eating, lol!) and I think I may have just accidentally grabbed a can of the Italian stuff that was mixed in with the regular stuff in the bin. Now every time I shop, I look at every can to make sure I didn't accidentally grab a flavored kind. It was completely inadvertent, I know, because I've always checked the labels on canned foods before I buy them. Once I read one label and knew it was safe, I must have just grabbed a couple more, not making sure each one was the same.

It sucks but it happens, and I'm sorry you got sick! It's the worst when you make a tiny mistake like that and feel really bad about it. I get really hard on myself over this sort of thing, we work so hard to keep gluten our of our systems and the tiniest mistake over something as silly as chips or tomato paste ruins it. After the tomato incident, I cried for about thirty minutes, ranting to the BF about how no one gets it, and how frustrating it is to try so hard to stay healthy, how unsupportive outsiders are, how someone had gotten in my face and said "but I thought you couldn't *eat* bread!" one day when I was munching a sandwich on gluten free bread, etc, etc.

Bah, this stuff is rough. I hope you feel better soon though, and next time you'll know :)

Glutina Rookie
Glutina
Posted
  • Author

Thanks everyone, you already made me feel better :)

Actually it is still affecting me a bit today...feeling "off" and irritable for no otehr reason, despite getting enough sleep and eating well. I am still kinda bloated as well...probably me least favorite of the lovely side effects of glutening.

But now I know for next time, and I have realized that being so hard on myself has no point. It is bound to happen sometimes, right??? Noone's perfect after all of course :)

I hope you all have a great rest of the week and thanks for the caring replies!!!

-Glutina

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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