Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let My Guard Down...

Glutina

By Glutina
in Coping with Celiac Disease

Recommended Posts

Glutina Rookie
Glutina
Posted

Hi everyone!

It has been a while wincw I last wrote, not really by choice, but due to 2 jobs and moving etc. So I hope everyone is doing well!!

Well it is currently 4:15am and I am wide awake in a state of full-fledged glutening. And I have noone to blame except myself!! Not even the wonderful thanksgiving meal that my fiance's mother cooked up...and she tries very hard to always cook gluten free and read labels. Nope, it wasn't someone or something else that got me this time but it was me. Ugh.

Fiance and I were at the grocery store before going over for dinner and I decided that I wanted to bring my own pre-dinner munchies for when we were playing monopoly (tradition haha). So, I went to my usual section where I buy gluten-free Cheechas (really good light munchies!) and saw a flavour on sale: Salt and Vinegar. mmm sounded good. So, assuming that they were also a gluten free flavour, I grabbed a bag and we paid and left.

Fast forward to about half-way through our monopoly game, which also leaves me half-way through the bag of Cheechas! I was noticing my brain getting "foggy" and I was having trouble concentrating/people were even making fun of me for missing collecting my rent all the time haha and my tummy was unusually gurgly. My fiance's brother was interested in my snack of choice and asked if he could see the bag. As we was reading the ingredients, he read "blah blah blah...wheat flour...blah blah"...and he stopped and said, "um...doesn't wheat flour have gluten"...and that's when things started going south. My gurgling stomach soon started to turn crampy/gassy, and I had to ask for a heating pad. Nothing says thanksgiving like a heating pad and stomach troubles, huh???

Because I had just assuuuumed that this flavour was also gluten free because several others say it right on the bag, I had failed to actually read the label. I had gotten lazy!!! Oh noooo!!! And I paid for it...and still am. I can't sleep as the pain is coming in waves...bathroom issues are doing the same...I am puffed up and bloated like a blow-fish and look about 4 months pregnant. I am finding some relief from the IBS drugs I was given during my last trip to the hospital about half a year ago before diagnosis (I'm still kinda a newbie...diagnosed severe gluten intolerance in January) called "Dicetel"....but not much. Just seems to dull the pain a bit, almost like it's foggy...but the cramping and gas are still there. I bet if I hopped on the scale I will have magically gained 5 pounds...I am a "gainer" when eating gluten. Not pretty.

I am supposed to work this morning...but since I haven't slept and can hardly walk I will now have to call in sick (not good) and miss out the subsequent holiday pay. Boo.

I also teach music lessons/am a singer, and this has given me such bad reflux that my throat feels raw and almost like I am getting sick now.

So all in all...LESSON LEARNED. I know better than to assume that things are gluten free, and I admit I got lazy.

I am in such a food rut ( little to no time to cook...2 jobs...) that I think I just simply got lazy. Maybe this is a wake-up call that I need to do more cooking and prepare good, tasty food for myself on a regular basis so that I can have food to bring with me on occasions like this...or at least not be tempted to just buy without reading labels.

I hope all of you reading this are feeling better than I am, and I'm wishing all you Canadians a great thanksgiving monday too!!!

-Glutina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MollyBeth Contributor
MollyBeth
Posted

I'm sorry you are not feeling well and that your holiday isn't going well!!! I hope you are on the road to recovery!

ShayFL Enthusiast
ShayFL
Posted

Dont beat yourself up too badly. We all make mistakes. That is how we learn. Hope you are better soon.

DarkIvy Explorer
DarkIvy
Posted

I've done the exact same thing with flavored potato chips before. It seemed like a harmless flavor, so I started munching on them. A little while later I started to think "hmm, I never actually bothered to read the label"... sure enough, there was barley something or other on them!

Even more recently, I got sick off of tomato paste. I love the stuff and was eating it out of a jar with the spoon (yeah, I'm weird, I know)... I read the label and realized that it was the "Italian" flavored kind (instead of the regular tomato paste that doesn't really have much in it besides tomato) and was full of spices and wheat. Whoops. I usually grab two or three cans of it at a time at the store just so I have it on hand for cooking (or eating, lol!) and I think I may have just accidentally grabbed a can of the Italian stuff that was mixed in with the regular stuff in the bin. Now every time I shop, I look at every can to make sure I didn't accidentally grab a flavored kind. It was completely inadvertent, I know, because I've always checked the labels on canned foods before I buy them. Once I read one label and knew it was safe, I must have just grabbed a couple more, not making sure each one was the same.

It sucks but it happens, and I'm sorry you got sick! It's the worst when you make a tiny mistake like that and feel really bad about it. I get really hard on myself over this sort of thing, we work so hard to keep gluten our of our systems and the tiniest mistake over something as silly as chips or tomato paste ruins it. After the tomato incident, I cried for about thirty minutes, ranting to the BF about how no one gets it, and how frustrating it is to try so hard to stay healthy, how unsupportive outsiders are, how someone had gotten in my face and said "but I thought you couldn't *eat* bread!" one day when I was munching a sandwich on gluten free bread, etc, etc.

Bah, this stuff is rough. I hope you feel better soon though, and next time you'll know :)

Glutina Rookie
Glutina
Posted
  • Author

Thanks everyone, you already made me feel better :)

Actually it is still affecting me a bit today...feeling "off" and irritable for no otehr reason, despite getting enough sleep and eating well. I am still kinda bloated as well...probably me least favorite of the lovely side effects of glutening.

But now I know for next time, and I have realized that being so hard on myself has no point. It is bound to happen sometimes, right??? Noone's perfect after all of course :)

I hope you all have a great rest of the week and thanks for the caring replies!!!

-Glutina

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    2. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    3. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    4. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
    5. sha1091a
      - sha1091a posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia. going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 9...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748
    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.