Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Abdominal Symptom


lotusgem

Recommended Posts

lotusgem Rookie

Hi Everyone! Before I get into my question, I want to say how impressed I am with all the caring and informed people in this group. Wow! I'm fast becoming addicted to this message board. :)

My question has to do with a symptom that I had as a pre-teen, more than 30 years ago. You see, until I had learned about Celiac disease and begun the diet several months ago, I had forgotten all about these unpleasant spells that I used to endure from time to time as a child. I feel certain that they were directly a result of Celiac, and wondered if anyone knows what they were. I used to sometimes feel my lower abdomen start to stiffen and get hard and I would hobble into my bedroom and lay down on my back. I could feel and see the outline of my innards start to swell or inflate and push out from what would normally be a flat stomach. It would continue to get worse and worse for a couple of minutes or so. I remember reaching out and touching the area and it was hard as a rock, and the part that was raised resembled the shape of a hose. I was vaguely aware of anatomy and decided that from the looks of the form, that it was probably my intestines. It was very scary for me as a child, not to mention painful. I was always afraid that something would burst. But after a few minutes the stress would subside and whatever was going on down there would relax and my stomach would flatten out again. Odd, but I never told anyone about it, either family or doctor. Can anyone tell me what was going on there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hmm...I don't know--I used to have a strange abdominal symptom--not sure if it was celiac or the malrotation, but when I felt sick, all the muscles in my stomach would tense up completely--making it look I had really amazing abs :lol: and my stomach would....get sucked inwards--without me trying to or anything....I think that was malrotation, not celiac, but another weird stomach thing. Sorry I can't help with your situation, cause mine was basically the opposite.

lotusgem Rookie

Thanks, celiac3270 for taking the time to reply. I wonder if it was malrotation. After I read your post, I did a little research on the subject. If what I understand is correct, the right side of the abdomen is where the action takes place, and that's the side that was most affected in myself. What I wonder now is if there is a connection between Celiac and this birth defect. Seems like I've noticed a few people participating in this message board that say they have both. Well, I saw your earlier post about your recent operation; I hope that you stay well and happy!

Paula :)

celiac3270 Collaborator

Thank you :)--it's been 19 days now w/o getting sick--I haven't gone that long in over a year!

Really? Who else has this? Also, I'm not trying to suggest that you have that-- do you still get that symptom or was it just in the past? If you no longer get the symptom, I think it would effectively rule out malrotation. If not--well, you said it started as a child...so who knows?

lotusgem Rookie

Way to go, celiac3270! 19 days and counting! You're on a roll (mal-ROLL-tation :D )

Gosh, I wish that I could tell you who I thought I saw that had both Celiac and malrotation, but I have no idea. I've been all over this message board and just don't remember, but could swear there were others. I realize that you are not suggesting that this could be the problem, but still, it is interesting and I had decided to research it but had forgotten the name. So you did me a nice favor by reminding me! No, I haven't had any other symptoms like that since childhood. That means that I can rule it out, huh? I had wondered about that. Well, good. Maybe we'll talk again sometime.

Take care.

Paula

celiac3270 Collaborator

Yes--your intestines wouldn't be twisting as a child and then all of a sudden stop--this is ongoing and will not be present without symptoms of some sort--which is why they usually find it at birth--often a baby has a problem, such as projectile (or green) vomiting. So yes--you can rule out malrotation. Congratulations, your intestines aren't messed up structurally :lol::D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,089
    • Most Online (within 30 mins)
      7,748

    Dodo86
    Newest Member
    Dodo86
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your symptoms would not be typical celiac disease symptoms, but still could be related due to possible nutrient deficiencies.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      This is a difficult situation, and one that your employer may not take seriously. It's possible that they don't have a way to accommodate your issues, but I don't know much about your work environment. Obviously moving you to another work area would be ideal, but would or could they do that? If not, you might be stuck having to wear a K95-type mask at work to avoid breathing any particles, but they still could end up on your skin. Another alternative is searching for a new job.
    • Scott Adams
    • Scott Adams
      This is an interesting theory, but it’s important to note that Ozempic, while it does slow digestion, doesn’t change the body’s immune response to gluten in individuals with celiac disease. Even if symptoms seem reduced, the immune system is still triggered, which can cause the same long-term damage to the intestines, regardless of symptom severity. Regarding sourdough bread, while it may have lower levels of gluten depending on how it’s made, it’s still not safe for people with celiac disease unless it’s explicitly gluten-free. The immune response to gluten in celiac disease is triggered by even tiny amounts of gluten, so adhering strictly to a gluten-free diet is essential for health and healing. If you suspect Ozempic or other factors are influencing your symptoms, it might be worth discussing with your healthcare provider or a specialist to ensure you’re fully addressing your health needs.
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. Re: tTG-IgA:    
×
×
  • Create New...