Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Worse Instead Of Better- How Much Longer- Please!

crunchy-mama

Recommended Posts

crunchy-mama Apprentice
crunchy-mama
Posted

My 4y.o. is going on day 8 of being gluten-free/cf. His symptoms (behavioral) are way worse instead of better. He was sporadically peeing the bed when he had something to drink right before bed, now it has been nearly every day. He has also started peeing himself out of defiance and has just been a nightmare. The stools got better and then worse. I am thinking there are other issues going on w/ perservatives and colors etcf(we are going to be starting the feingold diet as soon as it comes in the mail). But I am also wondering what the range is for symptoms to subside. This week has been so hard. I do have to add that it seems we are having a harder issue getting the casein out. We had some chocolate chips for a few days that were marked as cf but then we got a recall notice. He got some gum one day and then yesterday 2 bites of ham w/ trace dairy. Please! Please! Tell me about your child's recovery.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

So sorry it is worse for you right now. Keep in mind there is a "de-tox" period from gluten (and casein). The proteins in these foods fit into the "opiate" receptors in our brains. Which means they are addictive. He is going through withdrawal and it can last a week or 2. It was about 2 weeks for me. I didnt notice improvements in the BM's for 6 weeks. So hang in there!!!

Meanwhile make double sure nothing he eats has GLUTEN. And if cutting the dairy too...you have to be very diligent.

It does get better. Promise.

Kirsty27 Newbie
Kirsty27
Posted

My son was about two weeks before we noticed any difference. His tummy aches stopped (more or less) after that but he had no energy for about six weeks. We are just starting to notice his concentration improving four months later.

It takes a while and it is hard, but keep at it. Once you're through this rough patch things will improve. I expected immediate changes but it doesn't always work like that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,113
    • Most Online (within 30 mins)
      7,748
    ArielGartner
    Newest Member
    ArielGartner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StaciField
      My bone structure is disintegrating and I’m having to have my teeth removed

      By StaciField · Posted

      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...