Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swelling And Pain Associated With Celiac Disease?

AndreaMelanie

Recommended Posts

AndreaMelanie Newbie
AndreaMelanie
Posted

I am so glad to have found this forum. For months I have had tremendous swelling of my feet, ankles, knees, hands, fingers, elbows, wrists, you name it. It's not always in a joint. And I go red and itchy where i'm swollen. This summer I had a bad reaction to a skin cream with wheat in it. And I have found out that I also had a reaction as a child. I was dianosed with Crohn's 6 years ago at 21. Both of these things led me to request an antibody test from my Dr.

No Dr. can confirm my gluten suspicion and i am still (!) waiting for blood test results (although i know they are inconclusive).

Has anyone experienced these kinds of symptoms? I also get general pain throughout - especially arms and the pads of my fingers and toes, stiffness and red and swollen and itchy.

I am so sick of my own complaining and would love some light shone on all this.

THanks for reading. *sigh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


quentin Newbie
quentin
Posted

If these were my symptoms I would suspect a food allergy. One thing you could try would be to eat only fresh boiled vegetables with grilled chicken, turkey, fish. No cooking oils, no salt. Only drink water. It's tough but it's healthy and keep it up for a few weeks and see if the symptoms improve. Then introduce one thing new into the diet like milk or cheese for a couple of weeks and see if the symptoms worsen. That way you'll discover the problem knowing that you can always return to your safe basic diet.

Hope this helps.

mftnchn Explorer
mftnchn
Posted

Could be an allergy, but could also be celiac. Hope you find the answers you need. You may improve on gluten-free, but might also need an elimination diet to determine the cause.

AndreaMelanie Newbie
AndreaMelanie
Posted
  • Author

Thanks for the information. My Dr is skeptical that it's an allergy adn wants to call it rheumatism. But I may ask for some genetic testing. Thanks for the advice - it's nice to know there is a whole forum of people here with much more insight than I. This elimination diet sounds pretty tough (going gluten-free was tough enough) but I my have to give it a try.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,074
    • Most Online (within 30 mins)
      7,748
    David Croft
    Newest Member
    David Croft
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Celiac pain relief

      By Jmartes71 · Posted

      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Positive gliadin (deamidated) IgG, normal everything else?

      By aattana · Posted

      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...