Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Go Away?

kim:)

By kim:)
in Coping with Celiac Disease

Recommended Posts

kim:) Apprentice
kim:)
Posted

This morning my mom was looking through my flours and mixes to see what all I needed at the store and came across some of my apple spice cake mix. My dad orders me things online and it said gluten-free apple spice cake mix. So I have gone through like two packages of this mix and have been fine. But my mom this morning was looking at it and it said whole grain. On the back it had all of this wheat and high gluten ingredients. And this was out of the same box and all it wasnt just one thing. So I was wondering why I havent gotten sick? Does celiac go away. I mean like three months ago I was accendently glutened and felt sick, but I have been eating this apple spice cake mix for a while now and havent gotten sick. So I am a very confused person. Out of the 5 years diagnosed I have never been able to eat gluten and not get sick. Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Everyone is different, but my thought is that you reaction time will begin to vary. At times, I have felt a reaction up to 24 hours later.

Now, after three plus years gluten free, I have healed to the point that I do not reaction to gluten on a one time only basis. (possible cross contamination only). I have described it as a car rolling down the hill, slowly getting closer to the cliff, but yet no damage....eventually the car crashed over the cliff and gets all banged up. A silly little story, but it makes sense to me. ;)

Ooops, and no it does not go away.

mysecretcurse Contributor
mysecretcurse
Posted

Nope, I don't think it goes away.

You could probably heal to the point where you wouldn't notice a drastic reaction from a chance encounter, but the problem with this type of thinking is it leads to cheating once, then again and a generally over relaxed attitude about gluten, which can lead you right back to being as sick as you once were.

I would never conciously eat gluten in the rest of my life.

kim:) Apprentice
kim:)
Posted
  • Author
Everyone is different, but my thought is that you reaction time will begin to vary. At times, I have felt a reaction up to 24 hours later.

Now, after three plus years gluten free, I have healed to the point that I do not reaction to gluten on a one time only basis. (possible cross contamination only). I have described it as a car rolling down the hill, slowly getting closer to the cliff, but yet no damage....eventually the car crashed over the cliff and gets all banged up. A silly little story, but it makes sense to me. ;)

Ooops, and no it does not go away.

Thanks! I like your story!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,981
    • Most Online (within 30 mins)
      7,748
    Mink38
    Newest Member
    Mink38
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Welcome to the forum, @WildFlower1! The reason you are seeing conflicting results when you research the length of time recommended for doing the "gluten challenge" is that the guidelines have recently been under revision. So there are two components: 1. amount of daily gluten consumption and 2. duration of that amount of daily gluten consumption Recently, the guidelines have been under revision because the medical community was sensing the previous standards were too relaxed, particularly in the daily amount of recommended gluten consumption. The more recent guidelines seem to be calling for higher amounts of daily gluten consumption over (perhaps) as shorter period of time. So, it is becoming a daily minimum of 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks. Personally, I would recommend that amount of consumption be extended from two weeks to four weeks to ensure valid testing. Your Immunoglobulin IgA at 1.25. Was that within normal range? If that one is low, you are IgA deficient and other IgA test results cannot be trusted. But regardless of whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) the antidote is the same, namely, a gluten free diet. What would you do different if you had a more confident differential diagnosis? And there are other reasons for the development of osteopenia/osteoporosis that you probably should explore. Are you on any serious supplementation for D3 and magnesium?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      The results of my blood tests after 4 weeks: *Tissue Transglutaminase Ab IgA —->   “<0.5 NEGATIVE” *Immunoglobulin IgA —-> “1.25” *Deamidated Gliadin peptide Ab IgG —-> “<0.5 NEGATIVE”    
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Hi there, I have been scouring the forums, medical journals, celiac websites, speaking to my doctor and there seems to be a contradiction in the exact amount of time one must do the gluten challenge for a blood test. Let me please express my gratitude for taking your time to help! I will try and keep this short. In a nutshell, I am positive genetically for celiac. Previously for many years 10+ I have been on a strict gluten free diet. At a very young age, I had infertility, hair loss, low iron, stomach problems, neurological symptoms, continued low bone density etc. etc. all the symptoms that line up with celiac.  I could never get an “official diagnosis” because I was not eating gluten for years.   Recently, I had a bone density scan, and was shocked at the results. I am young and my low bone density is continuously lowering. This lead me  to seriously consider doing the celiac blood test to confirm if I actually have celiac. Years ago, I had an endoscopy and they did a biopsy saying it was negative for celiac - but I had been on a gluten free diet for years. Now, I asked my doctor if I can start the gluten challenge and get this over with. My doctor said two weeks then get the blood test. I have been having 2-3 pieces of bread daily. After four weeks of doing this, I went for the bloodwork - it came back negative for celiac. I am continuing to eat bread daily, it has now been over 6 weeks. I am not able to get an endoscopy. Please, from your experience how long really must I eat bread daily to ensure I do not get a false negative blood test for celiac? I have read up to 12 weeks. One doctor advised this is foolish to even do this gluten challenge as I am damaging my body. My other doctor said 2 weeks eat it, but it showed negative. But with my recent continuous lowering of bone density I personally need to rule celiac out.   Thank you VERY much for your help, I truly appreciate it!!
    • Soleihey
      Long Story Of Neurological Symptoms And Lowish Ferritin- Could It Be Celiacs?

      By Soleihey · Posted

      How are you now?
    • Scott Adams
      Conflicting results

      By Scott Adams · Posted

      It's possible he's in the early stages of celiac disease, and it has been caught before villi damage. The blood test results so far do indicate possible celiac disease, as well as his strong family history of celiac disease. If his symptoms get better on a gluten-free diet this would be another strong indication. Personally I think it's definitely better to proceed on the safe side and go gluten-free, rather than to risk severe villi damage and all that comes with it.
×
×
  • Create New...