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Migrating Pain

Green Eyes

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Green Eyes Rookie
Green Eyes
Posted

When I was first diagnosed I "thought" I had absolutely no symptoms at all. Now, as I read more I realize there are many things that I can attribute to celiac. Now that I am gluten free my headaches have reduced to almost none, had problems with teeth (3 root canals, sensitive teeth, etc.), and now I'm wondering about other things. Like my hysterectomy could in some way be attributed to the celiac.

I am also having problems with a pain inside my left leg that moved to the back of my leg. An MRI has shown it is not related to my back (or believed to be). Even though I am gluten free I am still having problems, but can this some way be related to the celiac?

I have an appointment with a neurologist this week and I'm certain he will have no clue what I'm talking about when I say "celiac." Any thoughts, suggestions, or similiar problems?

Jennifer

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Amber M Explorer
Amber M
Posted
When I was first diagnosed I "thought" I had absolutely no symptoms at all. Now, as I read more I realize there are many things that I can attribute to celiac. Now that I am gluten free my headaches have reduced to almost none, had problems with teeth (3 root canals, sensitive teeth, etc.), and now I'm wondering about other things. Like my hysterectomy could in some way be attributed to the celiac.

I am also having problems with a pain inside my left leg that moved to the back of my leg. An MRI has shown it is not related to my back (or believed to be). Even though I am gluten free I am still having problems, but can this some way be related to the celiac?

I have an appointment with a neurologist this week and I'm certain he will have no clue what I'm talking about when I say "celiac." Any thoughts, suggestions, or similiar problems?

Jennifer

I have pain in my legs, and everywhere. (3 months gluten free except a few slips) I have charlie horses that won't quit some times. My allergist has me taking 1000 mg of magnesium for this. It is helping. I saw a neurologist too for many other neurological symptoms. She diagnosed me with hyperventalation syndrome, saying it caused all the symptoms. Upon reading further about that, I discovered that she may have been partly right in the sense of "Malabsorption" causing the "hyperventalatin syndrome". I didn't realize I had it. I learned "yoga breathing" which does help the nervousness of not feeling well, but honestly, The neurological symptoms get better and then when I slip, they return 10 fold, yoga breathing or not. I think this neurologist would have let me "slip through the cracks" without finding out the"root cause." I don't think most of the doctors I have seen know much about it. We have to be our own advocates. Good Luck, Amber

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      Awaiting diagnosis

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    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

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      Awaiting diagnosis

      By trents · Posted

      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Awaiting diagnosis

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      Thank you for the reply. It was the TTG IGA that was within normal limits
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      Awaiting diagnosis

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      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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