Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

There's Barley In My Dry Lentils


lotusgem

Recommended Posts

lotusgem Rookie

O.K. people. Maybe someone can advise me on this one. I sure hope so, because we love lentils in our family. Somewhere I read that buying bulk is not a good idea when you have Celiac disease because you can't be certain that there won't be other things mixed in with what you are getting. So I threw out all my bulk lentils from the health store in favor of the little packages sold at Wal-Mart. After I had dumped all four of the bags I had bought into my Tupperware container, I noticed a few grains of what appear to be barley before it is pearled. When we lived in northern Idaho where most of the lentils in the world are grown, it wasn't unusual to see a field of barley growing right next to a field of lentils, so I suppose that they could have gotten thrown together even at that phase of production. At any rate, would it be safe if I spread out what I plan to cook on, say, the counter, to pick out any kernels and then rinse the lentils in water?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gillian502

I wouldn't touch any food that had been very obviously tainted with someting like barley. Think of it like this: would you eat something that had just been accidentally dipped in, say, Drano? No way. I wouldn't take the chance, just buy another bag of lentils instead.

darlindeb25 Collaborator
;) me too---if they are touching, there is cross contamination going on--i know, not fair, but taking a chance is taking a chance--i have found that barley doesnt cause a reaction with me, but--just because i do not get physically ill does not mean they arent inside causing damage anyways--i was accidentally eating gluten in butter toffee flavored quaker cracker jack corn cakes----its not fair that we have to give up favorites, but we do----maybe you could grow your own lentils :rolleyes: do you have a green thumb :) deb
lotusgem Rookie

Thank you, ladies, for your input. I think that I already knew that it was a no go situation, but was feeling like, "Tell me it ain't so!" :( Maybe the thing to do is try another brand in the hope that they've got better quality control. I am undaunted though, and if I must give up lentils, I will. (sigh...)

darlindeb25 Collaborator
:( we all know the feeling---sighhhhhhhhhhhhhhhhhhhhh----deb
ianm Apprentice

Bad news. After reading about the lentils I checked the bag that I bought from Kroger and found some kernels of grain in it. I went to Trader Joe

lotusgem Rookie

Oh, bummer, Ianm!! I was afraid of that. Well thanks for sharing all that practical research. I'm guessing that maybe I'm one of the more sensitive people. Early on, I had mistakenly thought that Tabasco sauce was o.k. based on the label on a tiny lunch-size bottle. It said "vinegar", among the other ingredients. One drop on my forkfull of food caused me to cramp up almost before I had stopped chewing. I looked at the bottle (I had later purchased a large one) and it said "distilled vinegar." They must not have had enough space to write the whole thing on the miniature bottles, and it sure messed me up...three days in bed with a stomach ache from just one drop. Would you say that that is sensitive? Goodbye, my beloved lentils.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

More bad news. I bought a 16oz bag of lentils at Whole Foods and found 8 barley kernels in it. Looks like there is no escape when it comes to lentils. :( I ate a 1/2 cup and am not feeling any ill effects. But if you're extra sensitive it is probably not worth the risk.

Ianm

  • 3 years later...
timabihanmom Newbie

Oh!!! I am so glad to have found this site and this discussion.

Our son had a violent reaction to lentil soup last night and we have been beating our heads on the wall trying to figure it out.

Thanks for the word on lentils! It was a clear soup and so I figured that they hadn't thickened it with anything and so we should be go to go. WRONG! He hasn't been able to hold much of anything down since then. He's 11 and he does really well and he wasn't running a temp at all.

lpellegr Collaborator

I also found barley in Whole Foods lentils - they said they were processed on the same equipment as barley. I wonder if we could find safe lentils in an Indian grocery store? They eat so many kinds of lentils and I don't know if there is less chance of them being mixed with other grains. Any thoughts?

missy'smom Collaborator

I know someone with celiac disease who is a vegetarian and eats alot of lentils. Was getting sick and figured out why as explained in the many posts above. She spreads them out on a wire screen and carefully picks out the stray grains. I don't buy pre-made lentil soups, curries in the store or restaurant.

celiac-mommy Collaborator

I've been buying lentils at Fred Meyer (store brand), I look at them when I rinse and have never noticed any other grains. My kids eat them like they're candy and have never had a reaction (dd is SUPER sensitive), but I will be paying more more more attention from now on!

  • 3 months later...
Jess Apprentice

Does anyone have any other brand or store suggestions for gluten free lentils? I noticed that the packages we have at home and all the ones we saw at the store had a note saying that the product may contain other grains (or something along those lines). Even the red Bob's Red Mill lentils appear to be processed in the same facility as other grains. I'd really appreciate if any of you knew any safe brands.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,925
    • Most Online (within 30 mins)
      7,748

    LJ11
    Newest Member
    LJ11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
×
×
  • Create New...