Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Dr. Report Please, "flattened Mucosa"?


dizzygrinch

Recommended Posts

dizzygrinch Enthusiast

Hello all, I may have posted this before, I cant find it, but, can someone help explain what this means, in my pathology report, it says "somewhat flattened mucosa was seen in the TI." Can anyone tell me what that might mean? is that a normal finding? Im asking because in my follow up appt, my doc didnt say anything to me about it, wasnt until I got this report that I noticed this.... thanks...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

That my dear would indicate CELIAC disease. There are a few other rare reason your villi would be flattened or partially flattened too. BUT THIS IS NOT NORMAL!!

Did you have Celiac bloodwork done too?

dizzygrinch Enthusiast

Hi ShayFL! I didnt think that was normal at all either. I finally get my health insurance back on the first, I will request a second opinion. Im just going to take all my reports, along with a list of symptoms, to the new doctor. Although, this past month of October I have been gluten free, Im staying this way. I feel a ton better, so I dont care anymore about the tests, well, too much.. I had a bad gallbladder attack at the end of sept, I had to pay cash to see a doc, and at that time, to avoid surgery, even though if I had to have emergency surgery, I just would, but I have been very, very, careful what I eat. I realized, too, that the Prilosec the docs have told me to double up on, are probably just making it harder for my stomach to do its normal job anyway. So, on the 24th of this month, I havent touched a prilosec. I am just eating very good, staying away from gluten like its the plague, and trying to heal my insides. I still have appts starting after the first, because of my gallbladder, but, I must be doing something right, by avoiding gluten. Well, sorry to ramble. Thanks for the info about the "flattened mucosa", I just dont even know what that means! lol...

Lisa Mentor

Did you have a endoscopy or a colonoscopy? Flattened mucosa can be found in the small intestines and it can indicate ulcerated colitis, as well as other things of concern in the large intestines.

It would be wise to pursue additional medical advise.

dizzygrinch Enthusiast

HI, actually, that day I had both done. The "flattened mucosa" was seen within the "terminal ileum" whatever that is. On my report, he does say No evidence of ileitis or colitis was seen. Also, had a biopsy, that said negative for microscopic colitis. So, safe to say it isnt colitis? Wish I knew what all this meant!

Lisa Mentor
HI, actually, that day I had both done. The "flattened mucosa" was seen within the "terminal ileum" whatever that is. On my report, he does say No evidence of ileitis or colitis was seen. Also, had a biopsy, that said negative for microscopic colitis. So, safe to say it isnt colitis? Wish I knew what all this meant!

ileum is the lower part of the small intestines opening up into the large intestine. I would see a professional for an interpretation.

happygirl Collaborator

I agree about seeking medical interpretation. If your doctor doesn't know what it means and its implications, then find a doctor in your area that is familiar with Celiac. (A local Celiac support group can often help).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
I agree about seeking medical interpretation. If your doctor doesn't know what it means and its implications, then find a doctor in your area that is familiar with Celiac. (A local Celiac support group can often help).

Ditto. This is something to be sorted out by your doctor. From personal experience, sometimes it takes a second medical opinion to get to the bottom of what's going on.

dizzygrinch Enthusiast

Hi all! yep, I am definitly getting a second opinion. I cant wait to see what they say! Ill let you all know, thanks

  • 9 years later...
Traci742 Newbie

Perhaps you have answers by now, but if not...SIBO can also cause flattened mucosa. I also had flattened mucosa on an endoscopy two years ago. The GI did additional tests for Celiac Disease and all came back negative. From there, they had no answers for me and no interest to keep investigating. It wasn't until I saw a Naturopath that I got the SIBO diagnosis and treated for it. I'm doing much better now. A lot of conventional doctors don't think SIBO is real, but it most certainly is. That was my first venture into alternative medicine. Without it, I wouldn't have gotten my life back. If you don't get answers, keep searching. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      33

      What should I do with these test results?

    2. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe

    3. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,334
    • Most Online (within 30 mins)
      7,748

    califromNewyork
    Newest Member
    califromNewyork
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Itsabit
    • Itsabit
    • trents
      From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high high.
    • Itsabit
      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the same necklaces for literally years with no reaction. The dermatologist at the time repeated over and over again that “allergies are acquired.” Which I knew. But I was not reacting to any other jewelry I was wearing. So it didn’t make any sense to me that it would only be from my necklaces. Anyway, it abated on it’s own. Only to come back with a vengeance months later - and I had not worn any necklaces at all. And the rash involved more area. I was put on Prednisone (oral steroid) taper and it worked well, and the itch and eventually the rash went away. Another trip to a different dermatologist at that time, prior to starting the Prednisone, told me to change all of my hygiene products like soap and shampoo, and to slather on Vaseline. None of which worked, hence the Prednisone. Needless to say, the itch and subsequent rash returned - and now spread everywhere, not just the hollows on both sides of my neck. It’s there, on my upper chest and left breast, both upper arms front and back, and elbows, my entire back, down both of my hips and buttocks and the front of my right thigh. Now the back of that right thigh is starting to itch as well. Also my lower right forearm and middle knuckle on my left hand since going gluten free. I’m just itching everywhere all the time. It keeps me awake, or wakes me up when I do fall asleep. I’m trying my best not to scratch, but it’s nearly impossible! I’ve been using a dry washcloth to rub instead of scratching. And I have used cool wet washcloths which help, but only lasts for a few minutes before starting up again. I’m pretty much at my wit’s end. Just waiting for something to indicate what’s really going on so I can do SOMETHING to stop it! 
    • Itsabit
      Reply to Russ H, Thank you for your input. As a nurse for 46 years I was aware of much of this. However, as a new member to dermatitis herpetiformis, I have been reading and researching everything I can about it in order to educate and help myself. I was hoping that the oral Dapsone would help to alleviate the itching. I knew the rash would take longer to abate. Instead of relief from the Dapsone, I had adverse reactions so had to stop it. After 2 months on it, if hadn’t helped with the itching at all, and I understand it usually helps in the first few days if it’s going to. My itch and rash actually got worse on the Dapsone and with going gluten free - which lead me to question whether I was getting glutined from other products I am using. It’s like a huge puzzle trying to put all these pieces together to somehow make it fit and make sense. Right now, myself and my doctor are perplexed. 
×
×
  • Create New...