Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Dr. Report Please, "flattened Mucosa"?

dizzygrinch

Recommended Posts

dizzygrinch Enthusiast
dizzygrinch
Posted

Hello all, I may have posted this before, I cant find it, but, can someone help explain what this means, in my pathology report, it says "somewhat flattened mucosa was seen in the TI." Can anyone tell me what that might mean? is that a normal finding? Im asking because in my follow up appt, my doc didnt say anything to me about it, wasnt until I got this report that I noticed this.... thanks...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

That my dear would indicate CELIAC disease. There are a few other rare reason your villi would be flattened or partially flattened too. BUT THIS IS NOT NORMAL!!

Did you have Celiac bloodwork done too?

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Hi ShayFL! I didnt think that was normal at all either. I finally get my health insurance back on the first, I will request a second opinion. Im just going to take all my reports, along with a list of symptoms, to the new doctor. Although, this past month of October I have been gluten free, Im staying this way. I feel a ton better, so I dont care anymore about the tests, well, too much.. I had a bad gallbladder attack at the end of sept, I had to pay cash to see a doc, and at that time, to avoid surgery, even though if I had to have emergency surgery, I just would, but I have been very, very, careful what I eat. I realized, too, that the Prilosec the docs have told me to double up on, are probably just making it harder for my stomach to do its normal job anyway. So, on the 24th of this month, I havent touched a prilosec. I am just eating very good, staying away from gluten like its the plague, and trying to heal my insides. I still have appts starting after the first, because of my gallbladder, but, I must be doing something right, by avoiding gluten. Well, sorry to ramble. Thanks for the info about the "flattened mucosa", I just dont even know what that means! lol...

Lisa Mentor
Lisa
Posted

Did you have a endoscopy or a colonoscopy? Flattened mucosa can be found in the small intestines and it can indicate ulcerated colitis, as well as other things of concern in the large intestines.

It would be wise to pursue additional medical advise.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

HI, actually, that day I had both done. The "flattened mucosa" was seen within the "terminal ileum" whatever that is. On my report, he does say No evidence of ileitis or colitis was seen. Also, had a biopsy, that said negative for microscopic colitis. So, safe to say it isnt colitis? Wish I knew what all this meant!

Lisa Mentor
Lisa
Posted
HI, actually, that day I had both done. The "flattened mucosa" was seen within the "terminal ileum" whatever that is. On my report, he does say No evidence of ileitis or colitis was seen. Also, had a biopsy, that said negative for microscopic colitis. So, safe to say it isnt colitis? Wish I knew what all this meant!

ileum is the lower part of the small intestines opening up into the large intestine. I would see a professional for an interpretation.

happygirl Collaborator
happygirl
Posted

I agree about seeking medical interpretation. If your doctor doesn't know what it means and its implications, then find a doctor in your area that is familiar with Celiac. (A local Celiac support group can often help).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I agree about seeking medical interpretation. If your doctor doesn't know what it means and its implications, then find a doctor in your area that is familiar with Celiac. (A local Celiac support group can often help).

Ditto. This is something to be sorted out by your doctor. From personal experience, sometimes it takes a second medical opinion to get to the bottom of what's going on.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Hi all! yep, I am definitly getting a second opinion. I cant wait to see what they say! Ill let you all know, thanks

  • 9 years later...
Traci742 Newbie
Traci742
Posted

Perhaps you have answers by now, but if not...SIBO can also cause flattened mucosa. I also had flattened mucosa on an endoscopy two years ago. The GI did additional tests for Celiac Disease and all came back negative. From there, they had no answers for me and no interest to keep investigating. It wasn't until I saw a Naturopath that I got the SIBO diagnosis and treated for it. I'm doing much better now. A lot of conventional doctors don't think SIBO is real, but it most certainly is. That was my first venture into alternative medicine. Without it, I wouldn't have gotten my life back. If you don't get answers, keep searching. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
    2. trents
      - trents replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
    3. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck.
    4. Scott Adams
      - Scott Adams replied to Tonya Kane's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters and gluten

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can...
    5. trents
      - trents replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      2 months in... struggling with symptoms

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,934
    • Most Online (within 30 mins)
      7,748
    Reidey
    Newest Member
    Reidey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      Refractory or super sensitive?

      By trents · Posted

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck. 
    • Scott Adams
      Water filters and gluten

      By Scott Adams · Posted

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can cause undo fear, as well as reputational damage to these companies. Don't get me wrong here, I am not saying that this isn't possible, but is very unlikely.
    • trents
      2 months in... struggling with symptoms

      By trents · Posted

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing done and it was positive and then you had an endoscopy/biopsy done to confirm those results? That is the normal process for diagnosing celiac disease. Have your constipation/irregularity problems improved since going gluten free? Some of the continuing symptoms you describe would seem to fall into the category of neurological effects (muscle twitching, shakiness, weakness and headaches) and others such as dry eyes, fatigue, stiffness and joint aches sound like they could be autoimmune effects. Are you taking any high potency to vitamin and mineral supplements? Celiac disease often/typically results in vitamin and mineral deficiencies due to malabsorption from the damage to the small bowel lining it causes. I note that your vitamin D levels are barely within normal range and the only B vitamin testes is B12. The B vitamins and D3 are very important to neurological health. And the several B vitamins all work together synergistically. So, they all need to be up to snuff, not just B12. I would suggest starting on D3 supplementation in the amount of about 5000 IU daily and also a high potency B-complex. Costco's Nature Made and Kirkland brand products are good quality and priced well and usually gluten free (and will state so on the packaging). Realize also that gluten free flours and facsimile foods are not fortified as are their FDA mandated gluten equivalents. So, when you cut out gluten, you cut out a significant source of vitamins. One thing to be aware of is that Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster. That is, when you have one you there is a good chance you will develop others in time. I don't wish to alarm you because I know you have said you already struggle with heath anxiety but many of your symptoms make me think you have some other autoimmune condition going on in addition to celiac disease. Have you been checked for Sjogren's or lupus for instance?  Finally, I am including an article that is helpful to newly diagnosed celiacs in getting a head start on the learning curve of eating gluten free:   
×
×
  • Create New...