Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Help And Advice For Child With Celiac


katdw

Recommended Posts

katdw Rookie

Hi, I am fairly new to all this. My daughter who is 10 has celiac. She has had all the blood work and a biopsy performed. We have seen the nutrionist and she gave me a bunch of info. But we are struggling though with foods that she likes. Before being diagnosed with this she was a picky eater and now to get her to eat gluten free is even more of a challenge. I need some good ideas, recipes, advice anything you guys can give me to help with my daughters diet. I dont want her to feel abnormal or left out so I want to provide her with things other kids like and eat. She loves mac and cheese, any kind of pasta(no sauce), tortillas, tacos etc. She is not a meat eater so this really concerns me as well. Sorry to go on and on, I just need some pointers on how to shop for her and some ideas. I also wanted to mention we just purchased a bread machine so any good breads would be appreciated to. We tryed the Glutiono and it was not that good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Hi - A lot of people recommend Wheat-Free, Gluten-Free Cookbook for Kids and Busy Adults by Connie Sarros. You could also try Amy's rice mac and cheese, Ian's gluten-free fish sticks and chicken nuggets, and Van's wheat free waffles.

Mother of Jibril Enthusiast

I'm sorry this won't help much in the short term, but...

I'm really enjoying rice pasta (Tinkyada is a good, widely available brand). My husband thinks the pasta is strange, but he doesn't have gluten problem. Honestly, I can't tell the difference! It might be because I've already been off gluten for two months... or maybe because I'm getting a bit desperate for pasta ;) It's not easy adjusting to a new diet (especially when you're a picky eater), but I think it does get easier with time.

Tortillas and tacos can be made with corn, so that shouldn't be a major problem. You might be surprised what you find once you start looking around stores for new products. I've lived in the same town for four years, but until yesterday I didn't realize there was a place to get gluten-free doughnuts! :P Not that I'm planning to eat a lot of doughnuts, but it's nice knowing I can get them if I want. (They're made by Kinnikinnic... I found them in the frozen section of an ethnic/health food store).

Rondar2001 Apprentice

I found with my daughter that for the first few months she hated every bread she tried. Now that it has been awhile since she has had regular bread, she seems to enjoy the gluten free types more. She really likes the Gluten Free Pantry sandwich bread.

She was a picky eater too so I try to get her involved with cooking all the meals and this seems to make her more intested in trying new things.

debmom Newbie

The pasta we found that is delicious is something like Tinkeyada. I know I have it spelled incorrectly, but I'm at work and can't remember the exact spelling. We have also found that the 123 gluten free mixes are amazing. Our non-celiac famly members prefer them to regular cakes and brownies, but the best brownie mix for the money is the Whole Foods 365 brand gluten free. Vans waffles are great. Again, our non-celiac family members eat them every day. Whole Foods baked goods in the frozen section are also amazing, but expensive. we also have found that quinoa is a great substitute for pasta.

Good luck!

Darn210 Enthusiast

What Rondar said has always been something that I have wondered about. In hindsight, I wondered if no matter what, my daughter was not going to like the bread until she had time to "lose" the taste/texture of the wheat bread :huh::huh: Not really sure . . . However, we use Pamela's wheat-free/gluten-free bread. Works great in the bread machine. And even though we've only got one Celiac in the house and have regular bread for the rest of the nonCeliacs, we've all had the Pamela's and the general consensus in the house is it's the best. We also use it for our pizza crust, dinner rolls, and cinnamon rolls. We also use the Pamela's pancake and baking mix for pancakes(make extra and freeze and pop out at anytime and microwave)

Bell & Evans gluten-free chicken nuggets/tenders (well-loved by my nonCeliac son)

Van's waffles (also well-loved by my nonCeliac son)

Cereals are Rice Chex, Fruity Pebbles and Health Valley Corn Crunchems (like corn chex)

Glutino Pretzels

Homemade Chex mix is a big hit (use Lea & Parrins Worcestershire Sauce)

Back to Nature rice thins is my daughter's favourite crackers (the chedder and tomato herb)

Tinkyada is our pasta of choice (we all eat it and had absolutely no problem with switching over) - also it comes in a wide variety of shapes. The "cheese packet" out of the Kraft (blue box) mac & cheese is OK to use just watch your handling (I actually rinse it off before I open it) You can also find containers of "mac&cheese popcorn cheese" or something like that which is also from Kraft - pretty much the same thing but not always easily found - if a store carries it, it is usually with the parmesean cheese.

For school lunches her "entree" is usually one of three . . . peanut butter on a corn thin (like a rice cake but thinner), peanut butter and nutella on a pancake - folded in half (she calls it her peanutbutternutellataco . . . all one word :lol: ) or loose ham and cheese (stick or slices) sometimes with the glutino (looks like a ritz) crackers. We also send mac&cheese or a hot dog in a thermos. For birthday parties where they notoriously have pizza, she takes the lunchables "nachos" in the snack size (where it doesn't include the drink and little gluten candy bar).

Does she have some prediagnosis favourite recipes that we can help you convert? A lot of time, the recipe stays the same and it's a matter of buying a different brand for one of the ingredients. For instance, I now use Progresso creamy mushroom soup instead of Campbell's cream of mushroom in my caseroles. I do have to puree it in a blender first though because it actually has recognizeable "mushrooms" :lol: and the worst part of that is because it's not the kids but my HUSBAND who doesn't like to see mushrooms :lol::lol:

katdw Rookie

wow you guys have some really good ideas. one mom asked me about a favorite recipe and I would have to say her favorites are: mac & cheese, cheese pizza, and tacos. Anyone have some good affordable recipes for these things that I could make in bulk? Also, can i make any doughs, cookies etc in the bread machine? With the holidays coming up I really need some ideas and recipes. So anybody willing to share some recipes with me I would greatly appreciate it. One last recipe I am also looking for is holiday dough ornaments(gluten free)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

My son is 10 and I cook gluten-free for him. Click on my profile to find a link to what we do for school lunches. If you have any questions you can PM me or leave a comment there. He doesn't care for the breads so he eats rice, potatoes instead. He likes the Glutino pretzels, Namaste Chocolate cake mix made into cupcakes(freeze extra unfrosted), popcorn, gelatin(we like to make it with fruit juice and unflavored gelatin), fruit juice popsicles in dollar store molds, freeze dried fruit and dried fruit, fruit leather, coco krispy bars made with Envirokids Koala Crisp and regular marshmallows, I make homemade chicken nuggets-pulse a loaf of the EnerG light rice bread in the food processor or blender and use for the breading(freeze the extra crumbs in a ziplock), use Rice Chex pulsed in the food processor or blender for the crumbs in meatballs, meatloaf etc., Ore Ida has a list of their products that are gluten-free on their website, Pamela's pancake and baking mix is good for pancakes and waffles. For tacos I use Whole Foods 365 or Garden of Eaten(SP?) hard taco shells. I'm sure there are other safe brands.

I also get my son involved in cooking and baking from time to time. As far as intoducing more variety, make sure it shows up on the family table and in her lunch in small quantity from time to time. I used to add a single cherry tomato to my son's lunch from time to time and they weren't eaten at first but after a while he gave it a try and now likes them. They are the only tomatoes he'll eat. Growing them ourselves made them more appealing too.

I will advise that you make sure that she gets enough protein and overall balance in her diet. It can be from dairy, egg or vegetarian sources. I didn't care for meat most of my life either and didn't get enough balance and have some problems as a result. You don't have to overly worry about it but be aware and don't let her live on carbs long term, which is easy to do as they are easily eaten and digested. Also, our digestive tract is sensitive for a while until it heals so she may become less picky and able to eat and digest more with time.

missy'smom Collaborator

I'll add a few more ideas. Kinnikinnick frozen pizza crusts are good(a little expensive). We served one to a neighbor kid and he didn't even know it was gluten-free and liked it. My son likes Annie's mac and cheese box mix. For pizzas we use Enrico's all-natural pizza sauce in a jar. It is available at some regular chain grocery stores.

mom2twoangels Apprentice

as for receipes if you look in the section : Gluten-Free Recipes - Baking & Cooking Tips

On this site there is one for Gluten Free Pumpkin Chocolate chip cookies. I am only on my third week trying to cook for my kids and they both really liked this one. I think the pumpkin helps mask the fact that there are "odd" flours in there.

I had to substitute potato / corn flour for the rice as we can't do rice, I also subbed soy butter for regular and they still came out good.

April in KC Apprentice

I have to agree with many of the replies here - this thread is a good one for anyone looking to get a start with kid-friendly gluten-free eating.

The kinnikinnick frozen pizza crusts are really very good - pre-gluten-free, I would have preferred a cracker thin crust, but after gluten-free I kind of miss soft breads, and the Kinnikinnick crust is very soft and bread-like.

They ARE expensive, but I have figured out a way to microwave them that works very well, and the convenience factor of having pizza done in 3 minutes makes it very worthwhile to have twice a week. I just invert a paper plate with some depth, top the fozen crust and nuke for 3 minutes on top of the plate. Then I flip the plate over & serve on it.

Amy's frozen rice mac & cheese is also expensive, but perhaps worth a splurge for situations when a frozen, microwavable meal could come in handy. For example, if she's going to someone else's house for dinner, it might be nice to take one along...or keep a few in relatives' freezers for low-stress visits.

Most gluten-free eating is not more expensive, so it can be worth it to just adjust the grocery budget for a few things that will make life yummy and more convenient.

I also agree about 1-2-3 Gluten Free mixes. I invested in some little 3-cup bundt pans, and instead of 1 huge 12-cup chocolate bundt cake, I make four small ones each time I bake. We freeze them whole and pull them out for birthdays...or give them to Celiac friends as a surprise (which they usually love).

I saw some chocolate and cheese souffles at Target the other day that were naturally gluten free.

The trick is regularity - think in terms of how you are going to regularly feed her...I have a weekly menu that repeats. I have found it makes it much easier to keep the kids happy this way, and I don't have to think so hard about what's going to be for dinner tonight.

ang1e0251 Contributor

I usually make my own pizza crust in the bread machine but on "fast food" nights, I use corn tortillas for the pizza base. This usually follows a pattern; first night, big pan of sauce with meat & mushrooms (your taste) served with his pasta and my pasta. Store extra in fridge and freeze some for next week. On the second night, I make my pizzas with the leftover sauce on corn tortillas. I find that if I toast them in the toaster first they stay firmer. You can buy frozen crusts but they won't be cheaper than tortillas, if that is a concern. And I always have tortillas on hand as a staple. I eat them instead of bread every day.

When I realized by elimination diet I could no longer tolerate gluten, my financial situation was grim. I had to east simply and cheaply. That was probably for the best. Now I just don't like a lot of the expensive products. I either make my own till I find a tasty solution or do without. I know that is harder on a child but I have found if I cook my own food, I can convert most of my favorite foods without a taste difference & some are even better,

.

I think the suggestions from other posters are excellant. Helping out in the kitchen is a great way to create interest in food!

Amyleigh0007 Enthusiast

My 8-year-old loves Amy's frozen mac and cheese. They come in handy when we need a quick meal. He also loves Glutino frozen cheese pizza. We do alot of string cheese with deli turkey for lunch. Investing in a small Thermos is also a great idea. That way you can send hot lunches to school. Kinnikinnik (sp) makes great donuts. My son loves the maple glazed and cinnamin (sp) sugar. Tinkyada pasta is our favorite too. I make "mommy helper" with Tinkyada elbow macaroni, Ragu double cheddar sauce, and ground beef. My son also likes BBQ chicken (chicken breasts + BBQ sauce in crockpot). You can shred it and put it in corn tortillas or eat it over rice. He also loves Ore-Ida tator tots and fast food fries. We eat those with cheeseburgers (without buns) a lot. I take my son to the store with me and ask him what he wants for dinners. We then pick and choose items together and make a game out of it. Who can spot the gluten free item the fastest?! That has seemed to perk up his interest in trying new foods.

bbuster Explorer

A staple at our house is Taquitos. I just buy a big bag of them (frozen) and just heat up and serve with salsa and cheese. Just make sure you buy the ones made with corn tortillas and not flour tortillas.

We also do quesadillas (corn tortillas), with or without a little diced meat added to the cheese.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.