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New Celiac, Seeking Good Md In Orange County, Ca. Please Help.

Lindaa

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Lindaa Newbie
Lindaa
Posted

Hi Everyone,

I am 23 and have been somewhat diagnosed by my family Dr for Celiac Disease. After describing my symptoms to him, he told me that I have celiac disease. But when asked if there were any medical tests and measures I should take, he said that they were not necessary & that a lifetime gluten free diet was the only way to go.

After doing some research online and seeing all the symptoms that I've endured for SOO long ( stomach pains, bowel problems, weight loss, mouth sores, depression, constant fatigue etc), I am certain I am a Celiac.

I want a more knowledgeable & concerned Dr and was wondering if there were any recommendations anyone could make. And what tests should I take? Will seeing a GI specialist be necessary as well? I want to be able to see this through the right way.

thank you in advance for your help.

-Linda

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Lisa Mentor
Lisa
Posted
Hi Everyone,

I am 23 and have been somewhat diagnosed by my family Dr for Celiac Disease. After describing my symptoms to him, he told me that I have celiac disease. But when asked if there were any medical tests and measures I should take, he said that they were not necessary & that a lifetime gluten free diet was the only way to go.

After doing some research online and seeing all the symptoms that I've endured for SOO long ( stomach pains, bowel problems, weight loss, mouth sores, depression, constant fatigue etc), I am certain I am a Celiac.

I want a more knowledgeable & concerned Dr and was wondering if there were any recommendations anyone could make. And what tests should I take? Will seeing a GI specialist be necessary as well? I want to be able to see this through the right way.

thank you in advance for your help.

-Linda

Welcome LInda,

Celiac can be diagnosed by a Serologic Panel, Endoscopy/biopsy and Positive Dietary Response. And for some with a rash confirming Dermatitus Herpetiformis, a skin condition.

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

It would not be too much effort for your doctor to order these blood tests. If your current doctor will not order this test, I would recommend that you find one that will.

Anyone with a history of intestinal discomfort should be tested for a variety of concerns. Your symtoms are some associated with Celiac or a gluten intolerance. I would continue to eat gluten and pursue further testing.

Some people here have chosen to self-diagnose based on a positive dietary response.

Good luck to you.

Julia's mom Newbie
Julia's mom
Posted

Although we don't know an experienced Celiac physician in Orange County, please let us know what you find out. Without elaboration, my husband has been on and off hospitalized for 6 years until his physician (good friend) just cut our wheat and meat and see what happens. He had a positive response within 2 weeks! We haven't been to the hospital in over a year and with the recent diagnosis of our 5 year with Celiac, we are positive without a doubt that he has it as well. Stay vigilant. Our doctor is Jesus (Chuy) Valadez-Herrera in Laguna Hills. Harvard/UCLA and living our reality!

Lindaa Newbie
Lindaa
Posted
  • Author

Momma Goose-Thank you for your informative & quick response!

I will definitely request those tests from my next MD.

Julias Mom- I will keep you posted on who I find :)

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