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Gene Test Results


Amber M

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Amber M Explorer

My Gene tests are below with my signature. Is there any experts out there who can give me further explanation of the number stuff and the subtypes? I understand I do not have Celiac, but gluten sensitivity and they said I have gluten sensitive genes from both parents and my children will have at least one. I have gluten ataxia and lower colon problems. I have read and re-read the gene info and I feel like I understand, but then I don't. Especially the subtype number thing. Thanks


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ShayFL Enthusiast

You and I have the same genes. I had ataxia, vertigo, migraines and neuropathy. GI was minimal.....just going 6 times a day.

My ataxia is nearly gone, vertigo is getting there, but the migraines, neuropathy and frequent BM's are all gone. :)

I am not a gene expert, but our genes predispose us to gluten sensitivity, grass allergy and a few others.

One of our genes is protective of T1 Diabetes. Genes have good and bad points.

Amber M Explorer
You and I have the same genes. I had ataxia, vertigo, migraines and neuropathy. GI was minimal.....just going 6 times a day.

My ataxia is nearly gone, vertigo is getting there, but the migraines, neuropathy and frequent BM's are all gone. :)

I am not a gene expert, but our genes predispose us to gluten sensitivity, grass allergy and a few others.

One of our genes is protective of T1 Diabetes. Genes have good and bad points.

Cool! I take daily med. for the migraines. I don't dare to cut down and find out yet, but will in the near future hopefully. My vertigo is getting better. The numbness, tingling, twitching is gone some days and rearing its ugly head others. My bowels are up and down. You see I had severe constipation from gluten the last two years, after years of Dia. I still ache all over some days and my lower colon is bad right now. If it doesn't hurt, its spasming or ice cold, like a cold spot. I will be having a colonoscopy soon. I had an apt. on Dec. 8 with a new doc. that just got changed to Dec. 22, so now I have to wait again! My head is clearing, I talk better and the literal "Haze" visually is better.

I was reading on the Ataxia, kind of scary what it does the the base of the brain. No wonder I couldn't walk straight. That is getting better too. I was getting so discouraged, I really felt like I might be slowly dying there for awhile. I was giving up because I couldn't seem to get help from the medical community. No one around here seems to knows much about it.

I ate chocolate chips in gluten free cookies this week and I don't feel to well the last few days. I think it was the "soy licithin". I had read it was of "no consequence" to persons with soy allergy because of the way it is broken down. ( I've had that for 30 years) I know I have not eaten gluten. What do you think about the soy licithin? My usual gluten symptoms seem worse right now. Could soy do that?

ShayFL Enthusiast

I avoid soy. I make all my own food from scratch. I cannot eat chocolate at all. I get severe rebound depression. I have challenged it so many times and always regret it.

Any food can cause symptoms, you just have to eliminate/challenge to find out. It is no fun, but can be rewarding when you nail it down.

My genetic sister, you are on the right path. My migraines were the first to go and have not returned. :)

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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