Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Multiple Allergies And Growing:


Gerri

Recommended Posts

Gerri Explorer

Multiple allergies and growing:

Food Allergies: Egg, Alcohol, (anything with sulfides, sulfates, sulfur & derivatives), Niacin (a Vitamin B than is found in processed food), Garlic & Onions, MSG, Curry, Sorbitol, Manitol, Corn, popcorn, lactose/casein, soya, very low tolerance to sugar, having increased problems with most vegetables (natural sulfur), apples, citric fruit (grapefruit, oranges, tomatoes), caffiene, chocolate

Special Diets: * Diabetic * High blood Pressure * High Cholesterol * Celiac * Corn Free * Egg Free * Lactose/casein free * Allergic to sulfa, sulfites, sulfates, sulfur derivatives * Osteopenia * NASH (liver disease) *Sugar Free because of Leaky Gut

* Special note - Chronic Constipation better when following Gluten free diet, still problematic

Today I made some muffins, with rice flour, banana, gluten-free backing powder, baking soda, lactose free milk, and two tbsp of margarine which contained little soya (maybe should have used butter or even some oil). Going to see how fast I swell up (20 minutes). What am I supoose to eat.

Hugs

Gerri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Its concerning that this list is growing.

Maybe Rachel24 will post about genetic issues about enzymes, this could be what you are dealing with at least partially.

I wonder if the SCD (specfic carbohydrate diet) approach would work for you? It eliminates most of what you mention above and is designed to help heal the gut.

GFqueen17 Contributor

just curious, what in the world do you eat?!

im sorry you have to deal with so many intolerances...it makes my Gluten-free Casein-free diet look like a piece of cake

AliB Enthusiast
Multiple allergies and growing:

Food Allergies: Egg, Alcohol, (anything with sulfides, sulfates, sulfur & derivatives), Niacin (a Vitamin B than is found in processed food), Garlic & Onions, MSG, Curry, Sorbitol, Manitol, Corn, popcorn, lactose/casein, soya, very low tolerance to sugar, having increased problems with most vegetables (natural sulfur), apples, citric fruit (grapefruit, oranges, tomatoes), caffiene, chocolate

Special Diets: * Diabetic * High blood Pressure * High Cholesterol * Celiac * Corn Free * Egg Free * Lactose/casein free * Allergic to sulfa, sulfites, sulfates, sulfur derivatives * Osteopenia * NASH (liver disease) *Sugar Free because of Leaky Gut

* Special note - Chronic Constipation better when following Gluten free diet, still problematic

Today I made some muffins, with rice flour, banana, gluten-free backing powder, baking soda, lactose free milk, and two tbsp of margarine which contained little soya (maybe should have used butter or even some oil). Going to see how fast I swell up (20 minutes). What am I supoose to eat.

Hugs

Gerri

Gerri, I was intolerant to a lot of the same foods as you, but since I have been following the SCD I have gradually been recovering. I still have a way to go, but can now tolerate a lot more foods than before.

Eggs are now fine, as are veg and several fruits but I still need to avoid Soya, MSG, sugar, chocolate (probably because it contains soya lecithin) - all of which are best avoided anyway as they are detrimental to the body and will contribute to the gut damage, and dairy which although I can tolerate it better, binds me up and makes me C. As I think I mentioned before, pasteurised dairy is no good for us anyway because the pasteurisation process kills the enzymes in it that would help us digest it, especially as the gut damage prevents us from being able to provide the enzymes ourselves.

Alcohol has always been a problem for me - I would always say that I only needed one drink and I would be 'under the table'! I suspect that is because my body is already high in Ethanol due to the sugar alcohol produced by the Candida/yeast overgrowth and other bacteria. I don't need to ingest it - I am already half drunk most of the time!!!

As I said in my PM reply to you, carbs will be a big problem for you because of rogue bacteria/parasites and the only way to control them is to remove their food source and replenish the gut with plenty of good probiotics from supplements and the SCD 24-hour yogurt. I am sorry there is no quick and easy way to deal with it, but at least the SCD gives a hope of recovery. Niacin should not be a problem as with your health issues you should not be consuming processed food anyway.

All the foods that are problematic to you are removed on the Specific Carb Diet and it is that removal that gives your gut the chance to start healing. Those who follow the SCD do find that after a year or two they can start to re-introduce some of the removed foods within reason, even sometimes gluten. It just depends on how disciplined we have been and how well we have healed.

The last thing to do is to go back to eating the way we were before as it is very contributory to how we get into the mess in the first place. The 'Western' High-carb, high-sugar SAD/SED is rogue bacteria heaven!!!

Guest Jsn7821
Multiple allergies and growing:

Food Allergies: Egg, Alcohol, (anything with sulfides, sulfates, sulfur & derivatives), Niacin (a Vitamin B than is found in processed food), Garlic & Onions, MSG, Curry, Sorbitol, Manitol, Corn, popcorn, lactose/casein, soya, very low tolerance to sugar, having increased problems with most vegetables (natural sulfur), apples, citric fruit (grapefruit, oranges, tomatoes), caffiene, chocolate

Special Diets: * Diabetic * High blood Pressure * High Cholesterol * Celiac * Corn Free * Egg Free * Lactose/casein free * Allergic to sulfa, sulfites, sulfates, sulfur derivatives * Osteopenia * NASH (liver disease) *Sugar Free because of Leaky Gut

* Special note - Chronic Constipation better when following Gluten free diet, still problematic

Today I made some muffins, with rice flour, banana, gluten-free backing powder, baking soda, lactose free milk, and two tbsp of margarine which contained little soya (maybe should have used butter or even some oil). Going to see how fast I swell up (20 minutes). What am I supoose to eat.

Hugs

Gerri

At first I was like "wow, sounds like me!". But I wouldn't go near those muffins... I don't eat anything from a package.

A week and a half ago I was feeling the exact same thing "What am I supposed to eat?", it's a terrible place to be, and I hope you find something that works for you. I went on an elimination diet and only had vegetables for a week. I started a few supplements and now I am doing very well. Vitamin D (for overall health), glutamine (gut & digestion), milk thistle seeds (liver), and rhodiola (stress), and plenty of exercise (helps with all of the above). Not sure if any of this will help you, but it helped get me out of my recent foot rut.

Best of luck!

caek-is-a-lie Explorer
A week and a half ago I was feeling the exact same thing "What am I supposed to eat?"

Yeah I can put a big ME TOO under that one. I already have to avoid all grains, sugars, banana, kiwi, apples, pears, peaches, mango, chamomile, shell fish, persimmon, yeast, squash, beans (not all legumes tho), sage, MSG, and caffeine. Some of it just bloats me, but most of those give me neurological problems.

Then recently I add ALL gluten to that list and my options suddenly get much smaller (and I start feeling much better! wow, who knew D 3x's a day and gut cramps/nausea wasn't normal?) Then a few days later I find that I can't even tolerate corn (was my last OK grain) or milk products. Argh! I thought I would go mad. What's left to eat??? I'm down to plain meat and veggies, gluten-free mayo, yellow mustard, frozen blueberries and 2 kinds of herbal tea. I indulge in the occasional sugar free Dove chocolate, but for the most part I just sit at parties and look dejectedly at everyone else while they eat yummy goodies while I nibble on carrots and broccoli. Sometimes I think I will go mad, but I'm hoping that if I'm gluten-free for 6 months I can try some of the milk and rice again or something. (not holding out too much hope for the rice tho...sadly)

I seriously think sometimes I'm going to lose it completely. Sometimes I wonder why bother to eat at all? Is there a point where the elimination diet goes too far? I can't eliminate EVERYTHING, can I? Then I have a night like last night were I baked some yummy home-made sweet potato chips in the oven and I think, 'ok maybe I can do this.' I don't even know if I'm eating nutritiously but I suppose if my body can finally actually digest what I'm eating (which seems to be the case) then I'm much more nutritious now than I was when I was eating gluten.

mftnchn Explorer

Looks like you can still eat nuts. I am enjoying some very yummy things made with almond flour. Maybe some of the SCD recipes would work for you.

Also some on the SCD enjoying coconut milk, cream, yogurt, etc.

Its worth searching out some of the causes of leaky gut, evaluating the healing process after gluten-free, parasites, etc.

I have had a lot of unpredictable food sensitivities. Sometimes a food bothers me, sometimes it doesn't, or "safe" foods still would give me reactions but I couldn't trace why. This has really settled down since I started the SCD. Apparently gluten-free wasn't enough for my gut to start healing, but now it seems to be. I am also seeing a cleansing process which has lasted now for months, getting rid of yucky stuff including visible parasites. That has got to have compromised my health in a big way.

Now I have some clear reactions to a few SCD safe foods, but other than that the reactions are stabilizing. I do get bloating a lot still but am not assuming that is about a food allergy just may be that my gut still has trouble working right. But it is improving over time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Whilst we are still eating the foods that are encouraging the rogue bacteria/yeasts/whatever and our body as the host environment is still in a state that encourages it then we will not get better.

We have to change our diet and the environment in order to allow the gut to heal.

We have this major problem. Because our Western world is so glutted with food, when we can't have certain things we feel deprived. But what is worse? Not being able to eat what everyone else is eating, or suffering with illness and disease? It is totally and utterly psychological. We only feel deprived because everyone around us is stuffing themselves stupid with it all (and very often trying desperately to ignore the many and varied symptoms that are trying to tell them they are heading for a digestive or general bodily breakdown!).

As I have said in the past, if we lived on a desert island we would not feel deprived because we would undoubtedly be eating the same healthy food as everyone else around us (and we more than likely would not have become sick in the first place!).

We live in a highly commercialised and greedy system. All that rubbish out there on the shelf is designed for one purpose. Money. The people that make it don't give a monkeys that it makes the people who eat it, sick. We are surrounded by bad food. It is hard to find places that will serve good wholesome food - gluten is in everything and if it isn't gluten, it's dairy, or soy or.......or........

God is the only person who has made food that is good for us - if we eat that, well as much of it that has not been mucked about by humans, as possible, then we stand some semblance of recovery.

The more 'bad' food we eat, the more acidic the body becomes and the less able we are to tolerate a lot of foods, especially fruit and vegetables. We need to try to get the body back to the slightly alkaline state it should be and then these foods would no longer be problematic. The acid environment also encourages the rogue bacteria.

I was conversing with a chap on a Raw Food forum the other day. He said he was like I was originally and could hardly tolerate any fruit or many veg at all, but he gradually introduced more raw food and as his body changed he found he could then tolerate more and more.

The SCD is a good diving-board to getting the body back to its optimum state. By removing the antagonistic foods for a while and allowing the body to heal we then give it the opportunity to recover.

Eventually we may be able to indulge in the occasional treat, but it would always be wise to never resort to the rubbish-fest that many of us - very likely through ignorance or lack of understanding - had indulged in and eventually eaten ourselves into a never-ending cycle of misery and despair.

I think, well, ok, maybe I am somewhat restricted in what I can eat at the moment on the SCD and some raw, but at least I don't live in Somalia or somewhere where the most I can expect is half a cup of sorghum a day if I am fortunate.

I consider the SCD to be a lifesaver. Good healthy food and a recovery of my health into the bargain. What riches indeed.........

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,102
    • Most Online (within 30 mins)
      7,748

    SarahHitch21
    Newest Member
    SarahHitch21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Looked this up.   Yes, forgiveness and bearing with people is people is vital.  
    • cristiana
      I must admit I've been on both sides.  Before my diagnosis, and in my ignorance, I thought all the special diets we see around us today were unnecessary and people were making a big fuss over nothing.  There is a shop in the small town where I live that sells organic and gluten free food and I used to people walking in and buying things and thought they were being a bit ridiculous spending extra money on what I thought was a fad.  Yet since my diagnosis that shop has been a real lifesaver.  I guess It is hard for people to see the necessity of all this extra effort if they haven't experienced celiac disease either themselves, or in someone they love.  That said, honestly, I have wondered at times if I would have been as understanding had my husband been diagnosed with coeliac disease instead of me. He has been great.  It must be incredibly difficult if your close friends and family aren't supporting you in this way. Following a gluten-free diet can involve a lot of extra hassle and can be expensive, but I do find that the world is so full of people struggling with autoimmune illnesses now, allergies and intolerances, that people are definitely becoming more attuned to things.   Word is getting out there. In 2022 a long-running popular TV series in the UK, Doc Martin, ended with a final case: a patient being diagnosed with coeliac disease.  I don't know if anyone saw it but I was so heartened by that episode, that celiac disease was given centre stage for the last ever programme. The patient in question had been suffering from a horrible rash which turned out to be dermatitis herpetiformis. He also had anemia, felt faint and was plain exhausted.  It would have been good education to anyone watching who didn't know about the disease and they would have been left in no doubt about its seriousness.  I thought to myself as it ended, well, now, that's another piece in our campaign to make coeliac disease better understood!    
    • trents
    • CatS
      I understand your frustration about socializing while having celiac disease. I also have allergies to nuts, dairy, all forms of gluten including oats, strawberries and MSG. I get anxiety while grocery shopping and really take my time to read all labels. I always carry a magnifying glass with me wherever I go to read labels. Many products are labelled Gluten Free but contain Oats, and apparently this is becoming more common. I almost bought some gluten free flour but read that it contained oats. A certain percentage of Celiacs have this complication. I can’t help feeling offended and excluded when others act like I am being “high maintenance”. I am becoming better at being an advocate for myself.  I have had diverticulitis 3 times and each time hospitalized-once, the attending nurse didn’t know what celiac means-she had to research...  If others around me make comments I try to enlighten them, those who don’t get it are not my friends anymore. Be very careful about cross-contamination. I was sick recently for 10 days after a meal was contaminated while I was on holiday. If servers say they have gluten free buns or bread, ask if they use a toaster specifically reserved for gluten-free, or don’t chance it. On a positive note, I didn’t find out I had Celiac Disease until I was 60. Eating a gluten free diet means no more terrible headaches, hives, rashes, intestinal bloating and irregularity, Gastro Intestinal Reflux….when I follow a strict diet and mostly always eat at home, I feel great! I also weeded out “friends” who weren’t worth being around.
    • Kwinkle
      Thank you, Trents- are there any safe alternatives?
×
×
  • Create New...