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Son Has Dvt...any New Info Here About Factor V Leiden ( Fvl), And Aps (hughes Syndrome )?

LadyMac

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LadyMac Newbie
LadyMac
Posted

My son injured his leg last week and although the hospital stitched him up, he insisted the pain in his leg was not related to the injury. They did an ultra-sound and found DVT...put him on Cumadin (sp)...sent him home. He has not made it 24 hours since then without a visit to the hospital during this Thanksgiving holiday break. Today they upped his pain meds and sent him home. Monday he plans on finding a specialist. The emergency room doctors all had differing opinions on cause/treatment. There is no family history of DVT or blood related problems. My son Has asked several of the emergency room doctors if there could be a celiac/deficiency problem that may contribute to DVT. OF course this suggestion was shrugged off.

So, I click in here, do a search and get HUNDREDS of hits about clots. I've been reading and making notes but I wonder if anyone here knows of recent information?

I tell ya...If he's got the C protein problem I've read about I'm going to just explode! I have celiac and both of my sons have been exploring the possibility that they have it too. The son with the DVT has gone so far as to have his doctor take the tests recommended here. Inconclusive. He has so many symptoms that he has started to go gluten free. Could that change be related?

I am worried, concerned and just plain *issed* off that, once again, doctors dismiss celiac as out of hand.....

Thanks for this forum and the help it has already provided to me and so many others!

LadyMac

Still gluten free, still 20 pounds lighter, still feeling the best I've felt in over 10 years.

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