Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help And Advice Needed For Newbie


littlemissxxx

Recommended Posts

littlemissxxx Newbie

Hi All

I will give you all a quick run down of my history

I am a 30 year old female who has recently been diagnosed with Hashimotos thyroiditis. Both my thyroid antibodies and my ANA counts were in the thousands when normal range is below 60.

Without me mentioning coeliac disease to my doctor she has requested testing for anti-gliadin, anti-endomysial and esr tests. She wrote these tests on the form after listening to my chest, I do have a very spotty back is that why?

Reading up on it I wont be at all surprised if I do have this problem. I have had the following symptoms for months if not a year.

Urgent need to open bowels, very smelly gas, either large bulky hard to pass stools or watery diarrea in fact it can go from large and hard to watery in one visit to the toilet. I feel the watery stools gurgling round in my bowel. I have bad stomach pains sometimes also.

My bowel movement have become so unpredictable that when I feel the urge to pass wind I go to the toilet to do it just in case..... I have had a couple of embarrassing incidents where I thought it was gas and it wasn't :(

What do you all think..... is it likely I have coeliac, would I benefit from a gluten free diet. My blood tests are on the 31st March it is the soonest they could fit me in. I assume I should at least eat normally until then.

Looking forward to some help and advice from all you knowledgable peeps

Ali xx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yes--you should continue to eat a normal diet until you have finished all testing. Celiac affects 1% of the population--so your symptoms, in addition to the general odds, makes it very likely that you might have celiac.

Welcome :)

littlemissxxx Newbie

Hi there

Many thanks for your reply, I suspected I would need to keep eating as normal even though the temptation to go gluten free now is getting to me.

I just want to feel well again and feel that another 4 weeks or so of symptoms is going to be a miserable time when I could be getting better.

I will speak to my doctor and see if she is prepared to give a diagnosis and prescriptions on my blood results and symptoms to cut out the wait for a biopsy.

Thanks

Ali xx

celiac3270 Collaborator

Sure :). That sounds like the right mindset, though--most people are so reluctant to start the gluten-free diet. I think it...sort of helps to have symptoms from gluten, as painful and disruptive they are, because they give you a very noticable incentive to be gluten free and you know when you make a mistake. A month will go by pretty quickly though, so try to get as organized as possible before then. Print the forbidden and safe ingredient lists from this site, call manufacturers about products in your kitchen that appear to be gluten-free.

Remember that with most companies, you will need to call for questionable ingredients, such as modified food starch, natural flavors, artificial flavors, or starch. Some companies, however, have a policy that they will list any gluten that is in their products. This is a blessing for us because instead of having to call about modified food starch, we know that if it doesn't say: modified food starch (wheat) or something of the sort, it's gluten-free. Companies that adopt that policy include:

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Butterball *lists wheat only

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

ConAgra *lists wheat only

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,884
    • Most Online (within 30 mins)
      7,748

    susieq312
    Newest Member
    susieq312
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      But HDL is considered to be the "good" cholesterol, right?
    • plumbago
      Since some time between 2010 and 2014, my HDL-C has been going up and you might even say elevated. The last time I could find in my records that my HDL was normal was in 2014 when it was 67. Last week, it was 101, and it’s been 88 and above since about 2015. A significant life event happened in 2010 when I was diagnosed with Celiac disease and in May of that year began a gluten free diet. An informal perusal of a previously posted topic on HDL on this forum shows that a lot of members responding had high normal or high levels of HDL, so it doesn’t seem to be that unusual. But because my HDL numbers have been so high for so long, I am now officially concerned enough that I will probably reach out to a cardiologist who specializes in lipids. I would like to know if I should have a genetic test, as a specific genetic mutation can be one reason for high HDL numbers. I will also ask if he/she thinks a cardiac work up including a coronary artery calcium score should be considered. I think by now most of us are done with the ridiculous good and bad cholesterol labels; the amount of what we don’t know about HDL is quite large. For me my questions include is it a matter of production or an inability to clear HDL, and are the high levels having an effect on my vasculature (or a result of a less than optimal vasculature)? My last TSH level was normal, so it's likely not a thyroid issue. I also take B12 regularly. I’ve read that niacin can cause HDL levels to go up, but B12 is not niacin, and I could find no definitive link between robust B12 supplementation and abnormally high HDL levels. Any input is appreciated! Plumbago
    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
×
×
  • Create New...