Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety About Travelling Over The Holiday


gluten Tag

Recommended Posts

gluten Tag Rookie

Hi everyone! I'm new here and new (2.5 wks) to gluten-free.

I'm having some anxiety. I've just gone gluten-free and it feels pretty manageable in my home because I have a lot of control.

We are supposed to travel at the holidays to my in-laws in NY (we live in MA). I am really nervous about all this because

1) Im afraid of getting sick

2) Im just getting the hang of food and have still managed to gluten myself once. :lol:

3) I feel almost apologetic in going to someone elses house...like I don't want them to have to make concessions on my behalf. :(

4) Celiac Disease, in general, just makes me feel so self-concious. You know? Like I stick out because I am eating something different.

Does anyone have any suggestions or tips of what I could do to make this season a little more bearable? TIA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Your anxiety will improve over time as you become more comfortable with the diet and dealing with situations like this. Since you are new to this I would recommend taking all of your food or preparing your food when you get there and make it similar to what everyone else is eating. It's pretty hard to accurately explain to someone else how to cook gluten-free food in their kitchen when you are just learning yourself without creating stress for you and the host(ess). Over time everyone will get used to you having different food and it won't be so uncomfortable.

Lori T. Newbie
Hi everyone! I'm new here and new (2.5 wks) to gluten-free.

I'm having some anxiety. I've just gone gluten-free and it feels pretty manageable in my home because I have a lot of control.

We are supposed to travel at the holidays to my in-laws in NY (we live in MA). I am really nervous about all this because

1) Im afraid of getting sick

2) Im just getting the hang of food and have still managed to gluten myself once. :lol:

3) I feel almost apologetic in going to someone elses house...like I don't want them to have to make concessions on my behalf. :(

4) Celiac Disease, in general, just makes me feel so self-concious. You know? Like I stick out because I am eating something different.

Does anyone have any suggestions or tips of what I could do to make this season a little more bearable? TIA.

Food is the toughest. Am still struggling too after 2 years but getting better at dealing with this part of the diet. Just wrote to another member with some of the same advice to you. Bring your own or look up stores too that are in the area and find gluten-free guaranteed safe prepared foods to take. I also have asked the hostess, especially family, what they are making and try to duplicate a plate of a few of the items to take for myself. Most of the holiday foods in a family are the same as what you would make for your family at home anyway, it is outside parties that can be the challenge. Offer to make a dish that you can eat but that everyone else can eat too. If they don't know you are gluten-free, they will never know. Just watch the serving spoons. Bring a serving spoon for your dish so that hopefully you won't get others mixing spoons and contaminate the dish. If you are staying for a period of days, try the web for local stores to buy some safe stuff for you. Do not know where in NY you are going, but I am in NY upstate, about 40 minutes from NYC and if you want, write back to monkeybusiness@hvc.rr.com and I can help you with stores near here. Good luck. This part DOES get better once used to it.

henny Explorer

I know how you feel!

I don't have any advice, other than be good to yourself. I'm still figuring out all this stuff myself and being shy does not help at all.

I love your username. Spreken sie Deutsch?

ang1e0251 Contributor

I've been on the diet for a year and I certainly felt exactly like you in the beginning. But after going to a couple of events and sitting very hungry, I promised never to put myself through that again. Last Saturday, we were invited to my sister's in law's T'gvg. Most people I've met but I not to where I want to explain my medical history. I told my sister I would be taking my own food. She started to argue that the turkey would be ok for me but I said in a few words that CC was going to be a problem. She didn't argue. I did take my own food. First I went through the line and found a few foods I could eat. Those satisfied me, I had eaten a snack before I went, and I ended never taking my own food out. It was a very nice time.

I would take or buy your own food and don't apologize if you decide to eat it. Just do it quietly and most people won't say anything, some won't even notice. I went to a flower show and brought out my own food. Another florist asked me about it and I explained, very short version, why I brought it. He asked my symptoms and I only said they are mostly digestive and not proper to mention here at the dinner table. He very kindly said he would rather eat what I had brought. Then the conversation changed and no more was said.

Most situations are going to hinge on your attitude. If you are casual about it and not upset, others will usually follow your lead. I usually don't feel the need to explain in depth to strangers but family I will tell as much as they are ready to listen to. Remember, your health, your choice.

Good luck on your trip and I feell confident it will all go well.

missy'smom Collaborator

If you can look up and find the local/area support group, they can be a good resource. They usually don't mind if people from out of town call or e-mail to ask questions about local shopping or dining. If they have a website, they may provide that kind of info. there.

gluten Tag Rookie

Thank you everyone for your replies. I don't know how long threads stay around here but if it's still around, I'll post in a couple of weeks and let you know how it went.

My in-laws are a bit sheltered. I think I'm the only person they know who has ever been allergic. To anything. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

If you are traveling through Upstate NY and you can stop at a Wegmans that is celiac heaven. They stock lots of gluten free products plus label all their house brand gluten free if it is.

gluten Tag Rookie
If you are traveling through Upstate NY and you can stop at a Wegmans that is celiac heaven. They stock lots of gluten free products plus label all their house brand gluten free if it is.

Thank you so much. I have a feeling there may be a Wegmans in LI.

Takala Enthusiast

If it's just a short casual get together, I just eat beforehand and bring a snack and drink water- and talk, I'm there for the socializing, not the food, and I don't think anybody minds. I accept that this is what I am, and this way I don't have to worry about eating something with gluten accidently. My metabolism is such that if I eat a high protein and fat meal before I go anywhere, I don't get hungry for hours anyway.

If I do bring a main dish or dessert item it's something gluten free. It's easier to just put mine on a plate/bowl beforehand and pack that. I find the shortest answers are the best, if I feel like explaining anything, I just say "oh, allergies, this way I can enjoy myself and not think" and get on with it.

Well, yeah, technically this isn't correct, but I do have a lot of allergies, so it's not exactly being mistruthful, but the average person grasps that "allergy" word much more quickly than "oh, I have a form of gluten intolerance auto immune reaction that results not in my getting sick right away, but instead I don't want to have neurological symptoms like ataxia next week. " :blink:

My goals are simple- I just want to eat stuff that works for me without it being a big drama. The host may just want their cooking praised. This is what omnivore spouses are for. :lol:

We have a travel bag stocked with non perishable gluten free goodies we just throw in the car whenever we go anywhere.

In laws and family can be particularly, ah, tricky, because the other part of acceptance is that you have to accept a lot of them just won't "get" it and will not be able to grasp the concept- research shopping before you go, and pack as much as you can and be as self sufficient as you can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    2. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,267
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory.                               Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.