Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety About Travelling Over The Holiday


gluten Tag

Recommended Posts

gluten Tag Rookie

Hi everyone! I'm new here and new (2.5 wks) to gluten-free.

I'm having some anxiety. I've just gone gluten-free and it feels pretty manageable in my home because I have a lot of control.

We are supposed to travel at the holidays to my in-laws in NY (we live in MA). I am really nervous about all this because

1) Im afraid of getting sick

2) Im just getting the hang of food and have still managed to gluten myself once. :lol:

3) I feel almost apologetic in going to someone elses house...like I don't want them to have to make concessions on my behalf. :(

4) Celiac Disease, in general, just makes me feel so self-concious. You know? Like I stick out because I am eating something different.

Does anyone have any suggestions or tips of what I could do to make this season a little more bearable? TIA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Your anxiety will improve over time as you become more comfortable with the diet and dealing with situations like this. Since you are new to this I would recommend taking all of your food or preparing your food when you get there and make it similar to what everyone else is eating. It's pretty hard to accurately explain to someone else how to cook gluten-free food in their kitchen when you are just learning yourself without creating stress for you and the host(ess). Over time everyone will get used to you having different food and it won't be so uncomfortable.

Lori T. Newbie
Hi everyone! I'm new here and new (2.5 wks) to gluten-free.

I'm having some anxiety. I've just gone gluten-free and it feels pretty manageable in my home because I have a lot of control.

We are supposed to travel at the holidays to my in-laws in NY (we live in MA). I am really nervous about all this because

1) Im afraid of getting sick

2) Im just getting the hang of food and have still managed to gluten myself once. :lol:

3) I feel almost apologetic in going to someone elses house...like I don't want them to have to make concessions on my behalf. :(

4) Celiac Disease, in general, just makes me feel so self-concious. You know? Like I stick out because I am eating something different.

Does anyone have any suggestions or tips of what I could do to make this season a little more bearable? TIA.

Food is the toughest. Am still struggling too after 2 years but getting better at dealing with this part of the diet. Just wrote to another member with some of the same advice to you. Bring your own or look up stores too that are in the area and find gluten-free guaranteed safe prepared foods to take. I also have asked the hostess, especially family, what they are making and try to duplicate a plate of a few of the items to take for myself. Most of the holiday foods in a family are the same as what you would make for your family at home anyway, it is outside parties that can be the challenge. Offer to make a dish that you can eat but that everyone else can eat too. If they don't know you are gluten-free, they will never know. Just watch the serving spoons. Bring a serving spoon for your dish so that hopefully you won't get others mixing spoons and contaminate the dish. If you are staying for a period of days, try the web for local stores to buy some safe stuff for you. Do not know where in NY you are going, but I am in NY upstate, about 40 minutes from NYC and if you want, write back to monkeybusiness@hvc.rr.com and I can help you with stores near here. Good luck. This part DOES get better once used to it.

henny Explorer

I know how you feel!

I don't have any advice, other than be good to yourself. I'm still figuring out all this stuff myself and being shy does not help at all.

I love your username. Spreken sie Deutsch?

ang1e0251 Contributor

I've been on the diet for a year and I certainly felt exactly like you in the beginning. But after going to a couple of events and sitting very hungry, I promised never to put myself through that again. Last Saturday, we were invited to my sister's in law's T'gvg. Most people I've met but I not to where I want to explain my medical history. I told my sister I would be taking my own food. She started to argue that the turkey would be ok for me but I said in a few words that CC was going to be a problem. She didn't argue. I did take my own food. First I went through the line and found a few foods I could eat. Those satisfied me, I had eaten a snack before I went, and I ended never taking my own food out. It was a very nice time.

I would take or buy your own food and don't apologize if you decide to eat it. Just do it quietly and most people won't say anything, some won't even notice. I went to a flower show and brought out my own food. Another florist asked me about it and I explained, very short version, why I brought it. He asked my symptoms and I only said they are mostly digestive and not proper to mention here at the dinner table. He very kindly said he would rather eat what I had brought. Then the conversation changed and no more was said.

Most situations are going to hinge on your attitude. If you are casual about it and not upset, others will usually follow your lead. I usually don't feel the need to explain in depth to strangers but family I will tell as much as they are ready to listen to. Remember, your health, your choice.

Good luck on your trip and I feell confident it will all go well.

missy'smom Collaborator

If you can look up and find the local/area support group, they can be a good resource. They usually don't mind if people from out of town call or e-mail to ask questions about local shopping or dining. If they have a website, they may provide that kind of info. there.

gluten Tag Rookie

Thank you everyone for your replies. I don't know how long threads stay around here but if it's still around, I'll post in a couple of weeks and let you know how it went.

My in-laws are a bit sheltered. I think I'm the only person they know who has ever been allergic. To anything. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

If you are traveling through Upstate NY and you can stop at a Wegmans that is celiac heaven. They stock lots of gluten free products plus label all their house brand gluten free if it is.

gluten Tag Rookie
If you are traveling through Upstate NY and you can stop at a Wegmans that is celiac heaven. They stock lots of gluten free products plus label all their house brand gluten free if it is.

Thank you so much. I have a feeling there may be a Wegmans in LI.

Takala Enthusiast

If it's just a short casual get together, I just eat beforehand and bring a snack and drink water- and talk, I'm there for the socializing, not the food, and I don't think anybody minds. I accept that this is what I am, and this way I don't have to worry about eating something with gluten accidently. My metabolism is such that if I eat a high protein and fat meal before I go anywhere, I don't get hungry for hours anyway.

If I do bring a main dish or dessert item it's something gluten free. It's easier to just put mine on a plate/bowl beforehand and pack that. I find the shortest answers are the best, if I feel like explaining anything, I just say "oh, allergies, this way I can enjoy myself and not think" and get on with it.

Well, yeah, technically this isn't correct, but I do have a lot of allergies, so it's not exactly being mistruthful, but the average person grasps that "allergy" word much more quickly than "oh, I have a form of gluten intolerance auto immune reaction that results not in my getting sick right away, but instead I don't want to have neurological symptoms like ataxia next week. " :blink:

My goals are simple- I just want to eat stuff that works for me without it being a big drama. The host may just want their cooking praised. This is what omnivore spouses are for. :lol:

We have a travel bag stocked with non perishable gluten free goodies we just throw in the car whenever we go anywhere.

In laws and family can be particularly, ah, tricky, because the other part of acceptance is that you have to accept a lot of them just won't "get" it and will not be able to grasp the concept- research shopping before you go, and pack as much as you can and be as self sufficient as you can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.