Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free/celiac Gi Specialist In Santa Fe

luciddream928

By luciddream928
in Doctors

Recommended Posts

luciddream928 Explorer
luciddream928
Posted

Anyone know of any? I have one but might look for a 2nd opinion in the future...

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tequila Newbie
Tequila
Posted
Anyone know of any? I have one but might look for a 2nd opinion in the future...

I don't know of any specialists. They know about it at the GI place, but I had a lot of questions they couldn't answer. I was diagnosed by blood test by my dr, but I wanted to get an endoscopy, I just waited too long and it was negative. What kind of help are you looking for?

luciddream928 Explorer
luciddream928
Posted
  • Author
I don't know of any specialists. They know about it at the GI place, but I had a lot of questions they couldn't answer. I was diagnosed by blood test by my dr, but I wanted to get an endoscopy, I just waited too long and it was negative. What kind of help are you looking for?

Wow, thanks so much for the reply - I posted this months ago. Since that post, I've had a colonoscopy/endoscopy/2 biopsies, all normal (but that was on a gluten-free diet for 6 months, which I asked about, and they said "Diet doesn't matter.").

I'm not sure if gluten is my problem anymore, they're saying it's IBS, but I've read in the research that gluten is related to IBS, IBD, etc. I've cut out all dairy as well, and that has helped a lot. I feel like the gluten diet helped to mitigate the symptoms (especially irritability and depression, sleeplessness and constant fatigue), and stopping dairy practically eliminated them. But I'm still not 100%.

I'm looking for a specialist who can close the gap between the conflicting information I've been told. Everyone on this forum who has responded insists that diet does matter, and so did my acupuncturist, but then I went to a reputable GI in Los Alamos and he says it doesn't matter with Prometheus blood tests because they test for an enzyme in your blood.

I wouldn't be so conflicted if I could just trust that the enterolab results were correct (see my signature).

Thank you for the response. Are you celiac or gluten intolerant?

Tequila Newbie
Tequila
Posted
Wow, thanks so much for the reply - I posted this months ago. Since that post, I've had a colonoscopy/endoscopy/2 biopsies, all normal (but that was on a gluten-free diet for 6 months, which I asked about, and they said "Diet doesn't matter.").

I'm not sure if gluten is my problem anymore, they're saying it's IBS, but I've read in the research that gluten is related to IBS, IBD, etc. I've cut out all dairy as well, and that has helped a lot. I feel like the gluten diet helped to mitigate the symptoms (especially irritability and depression, sleeplessness and constant fatigue), and stopping dairy practically eliminated them. But I'm still not 100%.

I'm looking for a specialist who can close the gap between the conflicting information I've been told. Everyone on this forum who has responded insists that diet does matter, and so did my acupuncturist, but then I went to a reputable GI in Los Alamos and he says it doesn't matter with Prometheus blood tests because they test for an enzyme in your blood.

I wouldn't be so conflicted if I could just trust that the enterolab results were correct (see my signature).

Thank you for the response. Are you celiac or gluten intolerant?

I'm Celiac, runs in the family so it wasn't really a surprise when it started, and since I knew about it I was diagnosed in about a week and therefore hopefully hadn't suffered too much damage like my mother and grandmother had. I don't at all look like I'm malnourished :) It would have been nice to lose atleast a few pounds. I am also lactose intolerant. It took a while to figure that out exactly, but for me I can have dairy as long as its lactose free. I'm not sure why the drs said diet didn't matter. 6 months should be enough time to heal for the biopsy. The drs I talked to said if you want the biopsy you should go back on gluten for a few weeks, no thanks. The blood tests are even more sensitive. If you are actively sick the antibodies will have built up but over time they may go below detectable levels. If you get sick again, you should ask for the blood test for the transglutaminase within a week of getting sick. I think it would be hard to be negative in that situation. I think it's hard to diagnose if you have been on the diet for a long time, did your drs sound like they knew what they were talking about?

  • 8 months later...
mrsbks2008 Newbie
mrsbks2008
Posted
Anyone know of any? I have one but might look for a 2nd opinion in the future...

Did you ever find a specialist in the Santa Fe/Los Alamos area? I was told by a nutritionist that I am gluten intolerant. I've been on a GFCFSF diet for a year now and it seems like I'm getting the "glutened" feeling again from other foods. My nutritionist said I'm not celiac, but now I'm not so sure.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to K6315's topic in Coping with Celiac Disease
      3

      Newly gluten free… withdrawal?

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    2. K6315
      - K6315 replied to K6315's topic in Coping with Celiac Disease
      3

      Newly gluten free… withdrawal?

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in...
    3. Sandi20
      - Sandi20 replied to Sandi20's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Gluten Free Daily Vitamins for Kids w/ Celiac

      I really like Thorne! I've researched thier products. Thank you so much.
    4. trents
      - trents replied to K6315's topic in Coping with Celiac Disease
      3

      Newly gluten free… withdrawal?

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is...
    5. K6315
      - K6315 posted a topic in Coping with Celiac Disease
      3

      Newly gluten free… withdrawal?

      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,748
    • Most Online (within 30 mins)
      7,748
    Jojo W.
    Newest Member
    Jojo W.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
×
×
  • Create New...