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Explaining Gluten Intolerance/celiac

LuvMoosic4life

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LuvMoosic4life Collaborator
LuvMoosic4life
Posted

It's very frustrating when people are constantly asking me "can you it this? can you eat that?" But it is more frustrating when they are asking it while I am eating. I understand it is the time when these questions would pop up, obviously, but I just feel like I need to end my explaining this to people while I am trying to eat and say "I would be happy to explain this after I am done eating" - would this be rude or wrong?? Its such a complex topic to explain to people who dont know anything about it....and the last thing I need is a nervous stomach while eating.

When I went home for thanksgiving, I pretty much made the entire meal. Just when I finally got to sit down and eat... and put one bite of food in my mouth.... my brother asks about my gluten intolerance and what happens when I eat gluten. This completely made me not want to eat anymore. I've been wanting to explain to him what I've been going through so he understands it, but the dinner table was NOT the place I wanted to exaplain it....especially symptoms. Basically i just said "it makes me sick and run to the bathroom, even from a little bit" but I was upset b/c this isnt completely true, there are SOOOO many other symptoms I go through, they just arent a very nice thing to talk about while eating....I was kinda on the spot when he asked this and it made me nervous...now i just wish I would have thought about asking to explain it to him after eating..... He went into question like "is it heredity" and questons that require quite a bit of explaining....which I would be happy to do WHILE NOT EATING. Especially since I looked so forward to eating an actual meal for the first time in FOREVER. It just ruined the whole thing.......

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converge Apprentice
converge
Posted

I understand what you mean. I end up feeling like a broken record when I spend time with new people in social situations where food is involved. I think its fair to say "it makes me really sick" and leave it at that. Your family and friends will get used to it and it wont be brought up anymore. Think of it like a new tattoo. At first, it will get lots of attention... after a while, it will just be part of you.

Good luck.

ang1e0251 Contributor
ang1e0251
Posted

It sounds like you feel you missed an oppurtunity with your brother. Could you write him a thoughtful letter or email to explain the topics he was asking about? Start off by saying you weren't trying to brush him off but discussing symptoms that are like the stomach flu were taking away your appetite. He didn't know better. Get the info to him now so maybe he won't spoil your meal again.

lizard00 Enthusiast
lizard00
Posted

It happens a lot! And logically, when we're eating. I don't see anything wrong in you wanting to hold off until after you eat, especially when you start to explain symptoms and all the gross stuff that goes with celiac.

You could just make a joke out of it and say "Look... do you really want me to tell all the gross stuff while we're eating. Let's talk about it after dinner." If he really wants to know, bring it up again after dinner or whenever you feel relaxed. He won't mind, since he asked the question in the first place. It just probably popped into his mind while you were eating, and I have two older brothers, I know how they can be. B)

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    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Oats gluten free?

      By Scott Adams · Posted

      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
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      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
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      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
    • Scott Adams
      Test results

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
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