Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Diet Or Paleo Diet?


bigapplekathleen

Recommended Posts

bigapplekathleen Contributor

Hi everyone,

After a 12-week bout with chronic aphthous ulcers (hundreds of them; I was hospitalized), a roller-coaster ride on high-dose prednisone for 11 weeks, and now dealing with daily colchicine (indefinitely) for control of the canker sores, I am back on the SCD Diet (which is very nearly PALEO, except for a some dairy on the SCD). My doctors cannot pinpoint the cause of my canker sore outbreaks (which keep coming back). I usually get canker sores when I get glutened, but have never had HUNDREDS of them. So, we are thinking that this may have been caused by a food sensitivity. The SCD diet seems like the safest choice right now as I try to get my body back to optimal health.

I am wondering if anyone here is also following this diet. I am missing my gluten-free snacks SO MUCH, but my body feels so much better on SCD. If you are following SCD, what do you do when you eat out in the city? I am carrying a cooler with me everywhere with very simple food, but am sick of not being able to join my friends for dinner in a restaurant. Does anyone know of any stores that sell SCD-legal foods (such a backed goods containing nut flours)? The thought of going through the holidays eating chicken soup and broiled meat is a little disappointing.

I should mention that i followed the SCD when I was at a point of terrible illness with Celiac, and it worked wonders. I also ate strict PALEO diet for more than a year after diagnosis, and it was great, too. It's hard to stick to either one, though, for an extended period of time, since no one else eats that way!

Thanks!

KAT

gluten-free since 2003 (Diagnosed with non-celiac gluten intolerance... VERY SENSITIVE to gluten)

Every possible gluten-related medical issue that you could imagine...

plus recently -

Vitamin D Deficiency 2008

Lowered Immunity (low IgG) 2008 and in 2003 when it was last checked

Chronic Aphthous Ulcers 2008

Epstein-Barr Virus (mono reactivation) 2008


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I bet you do have either a secondary intolerance or some sort of allergy you haven't figured out yet, I hope that you get it sorted out. Many people here discover that soy or dairy is also a problem, or they can't tolerate legumes, or corn, or there's even a few people here that can't eat rice. Everyone is different.

Dinners out I just get a plain grilled steak or fish and a salad, or plain sauteed vegetables, or if it's a breakfast menu, I'll get fried eggs (who knows what they put in scrambled), bacon, and maybe some fruit or a side salad again. I ask for oil and a lemon wedge for the dressing. If you can tolerate potatoes baked ones are also an option.

We make such better salads here at home I usually try not to laugh at what passes for a restaurant salad these days. Oh well. If I had money to burn and the restaurant business wasn't so yucky it would be fun to do an actual gluten free restaurant without making an issue of it at all, people would wonder why the food was so much better than usual. My spouse can take a hot pan and some olive oil and make delectable pan- seared fish, so what is the problem that this is some sort of overpriced Mission Impossible when eaten in a restaurant ? :ph34r:

mftnchn Explorer

You might also post your questions here:

https://www.celiac.com/gluten-free/index.ph...mp;#entry490510

I'm doing well on SCD and glad it helps you. Where I am at I cannot eat out at all unless I take my own food. However, in the USA I had a very good experience in a mom and pop place that was not crowded. The chef made steamed salmon and steam vegetables and put nothing on them. At the table they gave me butter salt and pepper which I can have. I brought along an almond flour muffing (because I thought I couldn't eat) but had a wonderful meal and was thrilled.

Claim Jumper has also worked pretty well. They made a mistake and brought my dinner with a roll on top. They redid the whole thing and gave me a free meal.

You might try calling ahead, especially if it is a busy time for the restaurant.

AliB Enthusiast

Just where you have posted your topic is an ongoing SCD thread that quite a few of us who are following the diet encourage each other on - please feel free to join in. It is good when you are doing something radically different to the 'norm' to have that moral support. we are up to 61 pages so far and still going :lol: !!!

Ali.

  • 5 months later...
bigapplekathleen Contributor

FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

AliB Enthusiast
FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

Hi Kath. I think you will find that the SCD and Paleo-type diets will help Colitis of any kind - the SCD was specifically designed for this problem although it is beneficial for a lot of other health issues too . You haven't said whether you are still following it.

Please feel free to join in with the SCD thread. You can jump in at the last/current page at any time. We are all still supporting each other. I ate out the other day with my family and had a very nice prawn salad. There usually are options around if you choose your eating places wisely.

I hope the ulcers have cleared up now. Anything like that can be an indication that your liver isn't coping with the toxins in your body. The skin is an organ as such and any skin conditions can be the body's way of trying to offload stuff it can't get rid of through the normal route. If you can heal your gut through the diet then hopefully the toxins can then be eliminated in the right way.

Ali.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.