Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Diet Or Paleo Diet?


bigapplekathleen

Recommended Posts

bigapplekathleen Contributor

Hi everyone,

After a 12-week bout with chronic aphthous ulcers (hundreds of them; I was hospitalized), a roller-coaster ride on high-dose prednisone for 11 weeks, and now dealing with daily colchicine (indefinitely) for control of the canker sores, I am back on the SCD Diet (which is very nearly PALEO, except for a some dairy on the SCD). My doctors cannot pinpoint the cause of my canker sore outbreaks (which keep coming back). I usually get canker sores when I get glutened, but have never had HUNDREDS of them. So, we are thinking that this may have been caused by a food sensitivity. The SCD diet seems like the safest choice right now as I try to get my body back to optimal health.

I am wondering if anyone here is also following this diet. I am missing my gluten-free snacks SO MUCH, but my body feels so much better on SCD. If you are following SCD, what do you do when you eat out in the city? I am carrying a cooler with me everywhere with very simple food, but am sick of not being able to join my friends for dinner in a restaurant. Does anyone know of any stores that sell SCD-legal foods (such a backed goods containing nut flours)? The thought of going through the holidays eating chicken soup and broiled meat is a little disappointing.

I should mention that i followed the SCD when I was at a point of terrible illness with Celiac, and it worked wonders. I also ate strict PALEO diet for more than a year after diagnosis, and it was great, too. It's hard to stick to either one, though, for an extended period of time, since no one else eats that way!

Thanks!

KAT

gluten-free since 2003 (Diagnosed with non-celiac gluten intolerance... VERY SENSITIVE to gluten)

Every possible gluten-related medical issue that you could imagine...

plus recently -

Vitamin D Deficiency 2008

Lowered Immunity (low IgG) 2008 and in 2003 when it was last checked

Chronic Aphthous Ulcers 2008

Epstein-Barr Virus (mono reactivation) 2008


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I bet you do have either a secondary intolerance or some sort of allergy you haven't figured out yet, I hope that you get it sorted out. Many people here discover that soy or dairy is also a problem, or they can't tolerate legumes, or corn, or there's even a few people here that can't eat rice. Everyone is different.

Dinners out I just get a plain grilled steak or fish and a salad, or plain sauteed vegetables, or if it's a breakfast menu, I'll get fried eggs (who knows what they put in scrambled), bacon, and maybe some fruit or a side salad again. I ask for oil and a lemon wedge for the dressing. If you can tolerate potatoes baked ones are also an option.

We make such better salads here at home I usually try not to laugh at what passes for a restaurant salad these days. Oh well. If I had money to burn and the restaurant business wasn't so yucky it would be fun to do an actual gluten free restaurant without making an issue of it at all, people would wonder why the food was so much better than usual. My spouse can take a hot pan and some olive oil and make delectable pan- seared fish, so what is the problem that this is some sort of overpriced Mission Impossible when eaten in a restaurant ? :ph34r:

mftnchn Explorer

You might also post your questions here:

https://www.celiac.com/gluten-free/index.ph...mp;#entry490510

I'm doing well on SCD and glad it helps you. Where I am at I cannot eat out at all unless I take my own food. However, in the USA I had a very good experience in a mom and pop place that was not crowded. The chef made steamed salmon and steam vegetables and put nothing on them. At the table they gave me butter salt and pepper which I can have. I brought along an almond flour muffing (because I thought I couldn't eat) but had a wonderful meal and was thrilled.

Claim Jumper has also worked pretty well. They made a mistake and brought my dinner with a roll on top. They redid the whole thing and gave me a free meal.

You might try calling ahead, especially if it is a busy time for the restaurant.

AliB Enthusiast

Just where you have posted your topic is an ongoing SCD thread that quite a few of us who are following the diet encourage each other on - please feel free to join in. It is good when you are doing something radically different to the 'norm' to have that moral support. we are up to 61 pages so far and still going :lol: !!!

Ali.

  • 5 months later...
bigapplekathleen Contributor

FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

AliB Enthusiast
FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

Hi Kath. I think you will find that the SCD and Paleo-type diets will help Colitis of any kind - the SCD was specifically designed for this problem although it is beneficial for a lot of other health issues too . You haven't said whether you are still following it.

Please feel free to join in with the SCD thread. You can jump in at the last/current page at any time. We are all still supporting each other. I ate out the other day with my family and had a very nice prawn salad. There usually are options around if you choose your eating places wisely.

I hope the ulcers have cleared up now. Anything like that can be an indication that your liver isn't coping with the toxins in your body. The skin is an organ as such and any skin conditions can be the body's way of trying to offload stuff it can't get rid of through the normal route. If you can heal your gut through the diet then hopefully the toxins can then be eliminated in the right way.

Ali.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

    2. - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

    3. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Guinness, can you drink it?

    5. - maryannlove commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,272
    • Most Online (within 30 mins)
      7,748

    SLowe
    Newest Member
    SLowe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’m glad you have a clear answer.  Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    • Scott Adams
      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
    • Aretaeus Cappadocia
      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.