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Scd Diet Or Paleo Diet?


bigapplekathleen

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bigapplekathleen Contributor

Hi everyone,

After a 12-week bout with chronic aphthous ulcers (hundreds of them; I was hospitalized), a roller-coaster ride on high-dose prednisone for 11 weeks, and now dealing with daily colchicine (indefinitely) for control of the canker sores, I am back on the SCD Diet (which is very nearly PALEO, except for a some dairy on the SCD). My doctors cannot pinpoint the cause of my canker sore outbreaks (which keep coming back). I usually get canker sores when I get glutened, but have never had HUNDREDS of them. So, we are thinking that this may have been caused by a food sensitivity. The SCD diet seems like the safest choice right now as I try to get my body back to optimal health.

I am wondering if anyone here is also following this diet. I am missing my gluten-free snacks SO MUCH, but my body feels so much better on SCD. If you are following SCD, what do you do when you eat out in the city? I am carrying a cooler with me everywhere with very simple food, but am sick of not being able to join my friends for dinner in a restaurant. Does anyone know of any stores that sell SCD-legal foods (such a backed goods containing nut flours)? The thought of going through the holidays eating chicken soup and broiled meat is a little disappointing.

I should mention that i followed the SCD when I was at a point of terrible illness with Celiac, and it worked wonders. I also ate strict PALEO diet for more than a year after diagnosis, and it was great, too. It's hard to stick to either one, though, for an extended period of time, since no one else eats that way!

Thanks!

KAT

gluten-free since 2003 (Diagnosed with non-celiac gluten intolerance... VERY SENSITIVE to gluten)

Every possible gluten-related medical issue that you could imagine...

plus recently -

Vitamin D Deficiency 2008

Lowered Immunity (low IgG) 2008 and in 2003 when it was last checked

Chronic Aphthous Ulcers 2008

Epstein-Barr Virus (mono reactivation) 2008


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Takala Enthusiast

I bet you do have either a secondary intolerance or some sort of allergy you haven't figured out yet, I hope that you get it sorted out. Many people here discover that soy or dairy is also a problem, or they can't tolerate legumes, or corn, or there's even a few people here that can't eat rice. Everyone is different.

Dinners out I just get a plain grilled steak or fish and a salad, or plain sauteed vegetables, or if it's a breakfast menu, I'll get fried eggs (who knows what they put in scrambled), bacon, and maybe some fruit or a side salad again. I ask for oil and a lemon wedge for the dressing. If you can tolerate potatoes baked ones are also an option.

We make such better salads here at home I usually try not to laugh at what passes for a restaurant salad these days. Oh well. If I had money to burn and the restaurant business wasn't so yucky it would be fun to do an actual gluten free restaurant without making an issue of it at all, people would wonder why the food was so much better than usual. My spouse can take a hot pan and some olive oil and make delectable pan- seared fish, so what is the problem that this is some sort of overpriced Mission Impossible when eaten in a restaurant ? :ph34r:

mftnchn Explorer

You might also post your questions here:

https://www.celiac.com/gluten-free/index.ph...mp;#entry490510

I'm doing well on SCD and glad it helps you. Where I am at I cannot eat out at all unless I take my own food. However, in the USA I had a very good experience in a mom and pop place that was not crowded. The chef made steamed salmon and steam vegetables and put nothing on them. At the table they gave me butter salt and pepper which I can have. I brought along an almond flour muffing (because I thought I couldn't eat) but had a wonderful meal and was thrilled.

Claim Jumper has also worked pretty well. They made a mistake and brought my dinner with a roll on top. They redid the whole thing and gave me a free meal.

You might try calling ahead, especially if it is a busy time for the restaurant.

AliB Enthusiast

Just where you have posted your topic is an ongoing SCD thread that quite a few of us who are following the diet encourage each other on - please feel free to join in. It is good when you are doing something radically different to the 'norm' to have that moral support. we are up to 61 pages so far and still going :lol: !!!

Ali.

  • 5 months later...
bigapplekathleen Contributor

FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

AliB Enthusiast
FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

Hi Kath. I think you will find that the SCD and Paleo-type diets will help Colitis of any kind - the SCD was specifically designed for this problem although it is beneficial for a lot of other health issues too . You haven't said whether you are still following it.

Please feel free to join in with the SCD thread. You can jump in at the last/current page at any time. We are all still supporting each other. I ate out the other day with my family and had a very nice prawn salad. There usually are options around if you choose your eating places wisely.

I hope the ulcers have cleared up now. Anything like that can be an indication that your liver isn't coping with the toxins in your body. The skin is an organ as such and any skin conditions can be the body's way of trying to offload stuff it can't get rid of through the normal route. If you can heal your gut through the diet then hopefully the toxins can then be eliminated in the right way.

Ali.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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