Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Diet Or Paleo Diet?


bigapplekathleen

Recommended Posts

bigapplekathleen Contributor

Hi everyone,

After a 12-week bout with chronic aphthous ulcers (hundreds of them; I was hospitalized), a roller-coaster ride on high-dose prednisone for 11 weeks, and now dealing with daily colchicine (indefinitely) for control of the canker sores, I am back on the SCD Diet (which is very nearly PALEO, except for a some dairy on the SCD). My doctors cannot pinpoint the cause of my canker sore outbreaks (which keep coming back). I usually get canker sores when I get glutened, but have never had HUNDREDS of them. So, we are thinking that this may have been caused by a food sensitivity. The SCD diet seems like the safest choice right now as I try to get my body back to optimal health.

I am wondering if anyone here is also following this diet. I am missing my gluten-free snacks SO MUCH, but my body feels so much better on SCD. If you are following SCD, what do you do when you eat out in the city? I am carrying a cooler with me everywhere with very simple food, but am sick of not being able to join my friends for dinner in a restaurant. Does anyone know of any stores that sell SCD-legal foods (such a backed goods containing nut flours)? The thought of going through the holidays eating chicken soup and broiled meat is a little disappointing.

I should mention that i followed the SCD when I was at a point of terrible illness with Celiac, and it worked wonders. I also ate strict PALEO diet for more than a year after diagnosis, and it was great, too. It's hard to stick to either one, though, for an extended period of time, since no one else eats that way!

Thanks!

KAT

gluten-free since 2003 (Diagnosed with non-celiac gluten intolerance... VERY SENSITIVE to gluten)

Every possible gluten-related medical issue that you could imagine...

plus recently -

Vitamin D Deficiency 2008

Lowered Immunity (low IgG) 2008 and in 2003 when it was last checked

Chronic Aphthous Ulcers 2008

Epstein-Barr Virus (mono reactivation) 2008


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I bet you do have either a secondary intolerance or some sort of allergy you haven't figured out yet, I hope that you get it sorted out. Many people here discover that soy or dairy is also a problem, or they can't tolerate legumes, or corn, or there's even a few people here that can't eat rice. Everyone is different.

Dinners out I just get a plain grilled steak or fish and a salad, or plain sauteed vegetables, or if it's a breakfast menu, I'll get fried eggs (who knows what they put in scrambled), bacon, and maybe some fruit or a side salad again. I ask for oil and a lemon wedge for the dressing. If you can tolerate potatoes baked ones are also an option.

We make such better salads here at home I usually try not to laugh at what passes for a restaurant salad these days. Oh well. If I had money to burn and the restaurant business wasn't so yucky it would be fun to do an actual gluten free restaurant without making an issue of it at all, people would wonder why the food was so much better than usual. My spouse can take a hot pan and some olive oil and make delectable pan- seared fish, so what is the problem that this is some sort of overpriced Mission Impossible when eaten in a restaurant ? :ph34r:

mftnchn Explorer

You might also post your questions here:

https://www.celiac.com/gluten-free/index.ph...mp;#entry490510

I'm doing well on SCD and glad it helps you. Where I am at I cannot eat out at all unless I take my own food. However, in the USA I had a very good experience in a mom and pop place that was not crowded. The chef made steamed salmon and steam vegetables and put nothing on them. At the table they gave me butter salt and pepper which I can have. I brought along an almond flour muffing (because I thought I couldn't eat) but had a wonderful meal and was thrilled.

Claim Jumper has also worked pretty well. They made a mistake and brought my dinner with a roll on top. They redid the whole thing and gave me a free meal.

You might try calling ahead, especially if it is a busy time for the restaurant.

AliB Enthusiast

Just where you have posted your topic is an ongoing SCD thread that quite a few of us who are following the diet encourage each other on - please feel free to join in. It is good when you are doing something radically different to the 'norm' to have that moral support. we are up to 61 pages so far and still going :lol: !!!

Ali.

  • 5 months later...
bigapplekathleen Contributor

FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

AliB Enthusiast
FYI - update... They just diagnosed me with Lymphocitic Colitis... which is the cause of all the previous trouble + more recent ones. (look at my other posts)

K

Hi Kath. I think you will find that the SCD and Paleo-type diets will help Colitis of any kind - the SCD was specifically designed for this problem although it is beneficial for a lot of other health issues too . You haven't said whether you are still following it.

Please feel free to join in with the SCD thread. You can jump in at the last/current page at any time. We are all still supporting each other. I ate out the other day with my family and had a very nice prawn salad. There usually are options around if you choose your eating places wisely.

I hope the ulcers have cleared up now. Anything like that can be an indication that your liver isn't coping with the toxins in your body. The skin is an organ as such and any skin conditions can be the body's way of trying to offload stuff it can't get rid of through the normal route. If you can heal your gut through the diet then hopefully the toxins can then be eliminated in the right way.

Ali.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748

    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.