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Maybe Not Celiac?

minton

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minton Contributor
minton
Posted

Okay so yes my symptoms since birth fit celiac disease, but given my genetic history (to date nobody in my family even carries the genes much less has symptoms), and a few other things, I'm wondering if I should try reintroducing gluten?

Here are things bringing me to wonder:

-There are major case studies about ingesting gluten via dust and skin contact. I owned a horse the last 9 years of my life and I hand mixed his grain (gluten), practically rolled in barn hay and dust with him, and honestly, I was healthier before he passed away, forcing me to get out of the horse world.

-My symptoms are back and I'm sick again like hell but my only diet change is my inability to afford my raw milk for the last 3 weeks or so. I am still gluten-free though.

-I was never tested. No biopsy, blood, or genetics. The doctor just took my medical history and said it fit celiac so I should start the diet.

-The genetics of course

-My parents and I cook using the same utensils. They eat gluten, I don't and the cross contamination has never been an issue. Ever.

-my symptoms started coming back after i returned dairy to my diet, but disappearred again when I switched to raw milk. My initial start going gluten-free was also dairy free.

Is it possible I have a dairy allergy and not celiac? Or something else that acts similar to celiac? I plan on asking my doctor at next visit but I would love opinions. Should I try adding gluten back in but stick to only raw milk products? Any suggestions or ideas would be appreciated.

Sidenote: I'm not anti-celiac, but it's been 2 years and I'm still pretty sick...

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ravenwoodglass Mentor
ravenwoodglass
Posted

I noticed you have DH is that still active? If it is then you may not be as safe sharing a kitchen with gluten eaters as you think you are. You say you are sure you are not being glutened but if the DH is active you are.

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minton Contributor
minton
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Posted
I noticed you have DH is that still active? If it is then you may not be as safe sharing a kitchen with gluten eaters as you think you are. You say you are sure you are not being glutened but if the DH is active you are.

As I said in the DH thread, it was said it probably was DH. I have not been eating at home too much lately. When I do, it hasn't been cooked. I will thaw out gluten-free brownies on the counter and eat the or something but I haven't been home enough to cook.

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ShayFL Enthusiast
ShayFL
Posted

If you still have the DH or it is coming back....get it biopsied. Super easy and not painful. 10 minutes at the Dermo. Genes mutate. You could be the first one if EVERYONE else has been genetically tested in your family and dont have Celiac Genes. PLUS a very small % of people have GOLD STANDARD DX Celiac without either DQ2 or DQ8. So I wouldnt rule it out just yet.

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