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Test Results..

nutbutters

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nutbutters Rookie
nutbutters
Posted

I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

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gluten Tag Rookie
gluten Tag
Posted
I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

Have you been gluten-free leading up to the biopsy?

ravenwoodglass Mentor
ravenwoodglass
Posted
I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

A one month challenge is often not long enough to redamage the gut and one biopsy sample is basically useless. IF you have been having relief from symptoms you have your answer from the best doctor you could find, your own body. One word of caution about the barium test the solution they will have you drink is going to be full of gluten. You will have to ask specifically for one that is gluten free. The gluten free forms are clear and have the consistency of water. If you became symptomatic after you added gluten back in you may want to hold off on the barium and see if they resolve now that you can get back on the diet.

nora-n Rookie
nora-n
Posted

The way I understand the first posting, is that the person has been gluten free for six month and has had one encounter with gluten only, the barium contrast, and reacted to it.

nora

nutbutters Rookie
nutbutters
Posted
  • Author

No, I was gluten free for five months, and I was preparing for the biopsy for one month on a heavy gluten-diet. I have not yet had the barium test (that is the next step). Sorry, that was very unclear.

lizard00 Enthusiast
lizard00
Posted

My GI wouldn't do an EGD on me at 6 months gluten free. He said it would probably not show anything. If we had gone the EGD route, I would've had to eat gluten for 3 months.

And in light of the fact that he took one biopsy, I wouldn't rule celiac out at all. How did you feel during your month of eating gluten?

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