Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Up With My Symptoms Getting Worse?

gluten Tag

By gluten Tag
in Dermatitis Herpetiformis

Recommended Posts

gluten Tag Rookie
gluten Tag
Posted

I have been gluten-free for about a month. Mentally Im feeling much better. In addition, no aches and pains and sleeping better. But my DH has become worse and my occasional mouth ulcers are here with a vengence. What the heck? :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Have you checked all your toiletries? Shampoos, lotions, makeup, lip sticks and balms etc can all provide enough gluten for a reaction.

dilettantesteph Collaborator
dilettantesteph
Posted

It seems to be pretty typical to get more sensitive to smaller amounts of gluten after you go off it. You need to check carefully for sources of gluten to eliminate.

gluten Tag Rookie
gluten Tag
Posted
  • Author

I feel like I've checked everything very closely. It's feeling very discouraging.

dilettantesteph Collaborator
dilettantesteph
Posted

I think we need more details about what you use to be able to help you. For instance there are a lot of "gluten free" foods that have marked on the label that they are processed in facilities that also process wheat. Most of those make me and my celiac son sick. They get contaminated by incompletely cleaned machinery or just by gluten containing dust in the air. There are medications and vitamins that contain gluten. Have you eliminated oats? Some celiacs react to even gluten free oats. What brand of gluten free flour do you use? Some celiacs react to grain alcohol and some wine.

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition to the stuff already mentioned do you use Iodized salt? If you do stop until after you lesions have been gone for a while. The iodine also activates DH lesions and it takes a while for the antibodies to leave the skin.

ang1e0251 Contributor
ang1e0251
Posted

Don't forget toothpaste. Have you been around any remodeling like drywall or wallpapering? Do you work any crafts or art projects? Sometimes things we don't even think about have gluten. I had the worst reaction I've since going gluten-free this summer after having 2 packets of stevia. Stevia is a sweetener that doesn't have gluten but I stupidly didn't check the packet. It was laced with wheat flour!

Could you be getting CC'd? At home it can happen easily. That was another dumb mistake I made. I guess I've been my own worst enemy. Look out for yourself!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
Emily888 Rookie
Emily888
Posted

Are you taking any medication? Medications and OTC drugs can have fillers that have gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,044
    • Most Online (within 30 mins)
      7,748
    Teddyboss
    Newest Member
    Teddyboss
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sarah Marie
      Bloodwork Help for my Teen

      By Sarah Marie · Posted

      Is it worth it to remove gluten before they potentially do an endoscopy & biopsy? I thought I read it’s best to be eating gluten for 3 months prior to it. So hoping they have a cancellation and call us in sooner. 
    • LCO
      Travel Abroad

      By LCO · Posted

      Thank you very much!
    • Aleda D
      Celiac Maybe a Possibility?

      By Aleda D · Posted

      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
    • trents
      High dosage of B12 gave me life.

      By trents · Posted

      I think you would do well to take a high potency B-complex such that you get more balanced dosage across the spectrum of B vitamins. They work in concert.
    • Scott Adams
      Travel Abroad

      By Scott Adams · Posted

      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
×
×
  • Create New...